Managing Director, Digital Health Policy ▪ Savage & Savage LLC
Passionate about power of digital health information access & tools for people & communities!
I’m the first HHS Secretary to visit an abortion clinic. This issue is personal to me.
Doctors, like Carolina, my wife & an OBGYN, are forced to weigh LEGAL opinions before rendering their MEDICAL opinions.
My daughters have fewer rights today than their mothers & grandmothers.
Day 8-12 (today): Request status = "pending"
(Updates here as the saga continues ;-) To be fair, I'm probably the first person ever to press this button, and the process details are inchoate. Wrinkles to iron over time. Still, I'm not encouraged that the button disappeared.)
Yes! That's why UCSF urged@ONC_HealthIT in 2019 to require that QHINs, HINs, Participants, etc. each include access and transmission through standardized APIs conforming to ONC's standards. So TEFCA & CEHRT could be interoperable and leverage each other, not siloed. 1/2
Is a regulatory clash brewing? TEFCA provisions in ONC HTI-1 rule could weaken FHIR-based interop. We propose TEFCA align fully with the FHIR ecosystem, allowing no exceptions to 21st Century Cures Act API reqs. @JoshCMandel@gotdan@SMARTHealthIT
https://t.co/meyNIQPVed
Inspiring. Energizing. Amazing.
Just a few words to describe the @BMHCaucus 2023 Stakeholder Summit, where we celebrated the progress we’ve made and the steps we’re taking to pass the full #Momnibus and end our maternal health crisis.
That's why, in 2019, UCSF urged @ONC_HealthIT to require that QHINs, HINs, Participants & Participant Members each include access and transmission through standardized APIs conforming to ONC's standards. So TEFCA & CEHRT could be interoperable and leverage each other, not siloed.
##TEFCA and the digital economy - thinking in specifics about what we need to truly improve #health (and no surprise some competition would help not hurt) @ONC_HealthIT
https://t.co/Gtuf57E8lC
My book FRAGMENTED is out today, in any place books are sold. It is my vision of what's really broken in health care - and how we can fix it. For anyone who interacts with health care, it's a call to action & humane guide for navigating medicine better. https://t.co/05fAZXf8p7
Today is the official launch of the Division of Clinical Informatics and Digital Transformation @UCSF_DOCIT@UCSF. We will be a unique academic unit advancing research, education, and health sx efforts to achieve digital transformation.
Read more here: https://t.co/wJ3SbjppBO
👇🏾👇🏾 Reminds me of telecom mid-1990s with all the local exchange carriers and separate regulatory regimes for local exchange landline, long distance, internet, wireless, broadband. Also endlessly fragmented electronic health info exchange resulting in HITECH Act of 2009. Lessons?
Please join @thegravityproj Terminology Team, #DigitalAccess + #DigitalLiteracy subject matter experts, and our community @ the Thurs 4pm EST public call.
We'll review #SocialCare terminology build updates and identify needed terminology for both domains.
https://t.co/gaue1iNNF8
Yes! 👇🏾👇🏾 Both to Patient's #HIPAA Right to Correct--another example of critical #PGHD--and to patient disclosure and transparency of data flows to preserve trust. Thank you @JoshCMandel!
1/8 🧵As an MD & software developer, I've been reflecting on @ONC_HealthIT's #HTI1 rule, which proposes recording patient preferences on data sharing without required providers to honor them. This can disappoint -- and it misses more pragmatic opportunities for patient control.