Shannon Peters Banks

Female entrepreneur, mother, lupus warrior passionate about social leadership, action learning and purpose #lupus #stillshielding #cev #immunocompromised

[Shannon Peters Banks @ShannonB]

This week I spoke to @JamesTGallagher at @BBCRadio4 about what it is like to be #immunocompromised and #shielding from covid for nearly 1000 days.👇

https://t.co/IIhYsR49es

Here's a 🧵 about why I told my family's story. 1/15 @LUPUSUK @RAIRDA_org #evusheld #Forgotten500k

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

Many thanks to @mrjamesob for giving a voice to Clinically Vulnerable Families💙💜💗 founder, @lara_wong.

They discussed job losses since the start of the pandemic, air filters and more...

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[Shannon Peters Banks @ShannonB]

@andreabarrett__ @tomlins_amanda @STRAVINSKYstudy @AlexRichter3 @mkwillicombe @EleanorBarnesOx @NIHRresearch @britsocimm @cv_cev @glynhuskisson1 Yes me too!

[Amanda Tomlins @tomlins_amanda]

@NHSEngland We need multiple Covid preventions & protections URGENTLY. The #Clinically Vulnerable (about a third of the population!) remain at risk. The ‘CEV’/immunocompromised remain at HIGH RISK. We need #CleanAir #MasksInHealthcare We STILL need #PrEP #Monoclonal #Antibodies @GwynneMP

[Shannon Peters Banks @ShannonB]

@PeteUK7 @Rocket57 I bought one recently and the code from the FB group worked for us in the UK. Ours is still making its way through customs but we are hoping we can finally see family indoors at Christmas for the first time since 2019.

[Shannon Peters Banks @ShannonB]

Such a great podcast episode - thank you @cathy_finnis for representing us. @cv_cev #cev https://t.co/dqSCCSTFqe

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

👑 Anyone can become Clinically Vulnerable, even a King or future Queen.

👵 With age, everyone will become Clinically Vulnerable.

💨 We shouldn't accept missing out on our lives due to "fear". Instead, we must reduce risks so *everyone* can fully live their lives.

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

💥Clinically Vulnerable Families 💥

Quite a moment as Dr Catherine Finnis take the stand as volunteer deputy leader of CVF.

1/ FOLLOW THIS THREAD

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

#MasksInHealthcare

CVF members who wore good quality (FFP2/ FFP3) masks were told to remove them by staff who may have been poorly informed.

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[Clinically Vulnerable Families 💙💜💗 @cv_cev]

📊 𝗙𝗙𝗣𝟯 𝗠𝗮𝘀𝗸 𝗣𝗼𝗹𝗹

For those who have worn an FFP3 mask for over 3 hours:

😷 𝘏𝘢𝘷𝘦 𝘺𝘰𝘶 𝘦𝘹𝘱𝘦𝘳𝘪𝘦𝘯𝘤𝘦𝘥 𝘢𝘯𝘺 𝘯𝘦𝘨𝘢𝘵𝘪𝘷𝘦 𝘴𝘪𝘥𝘦 𝘦𝘧𝘧𝘦𝘤𝘵𝘴 𝘵𝘩𝘢𝘵 𝘮𝘢𝘬𝘦 𝘺𝘰𝘶 𝘩𝘦𝘴𝘪𝘵𝘢𝘯𝘵 𝘵𝘰 𝘸𝘦𝘢𝘳 𝘰𝘯𝘦 𝘢𝘨𝘢𝘪𝘯?

[Shannon Peters Banks @ShannonB]

@andreabarrett__ Glad you are there. Well done.

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

⚠️TRIGGER WARNING⚠️
This part has made people cry and vomit. It will bring back emotions and experiences faced by our families.

"Cara's" story was why CVF was needed in August 2020. We wanted to avoid this. We could and should have.

No child should ever carry this burden!
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[Clinically Vulnerable Families 💙💜💗 @cv_cev]

🚨 Do not underestimate the importance of today! 🚨

CVF are finally able to take our advocacy for #SafeSchools to the next level.

Safety for children, school staff, families, and communities from not just Covid, but *all* airborne contaminants.
@thetuc
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[Prof. Christina Pagel - @chrischirp.bsky.social @chrischirp]

THREAD: the summer Covid wave in the UK continues.
Basically, there is a LOT of Covid around and not a lot of other respiratory viruses.

If you have cold or flu symptoms, it's probably Covid.

The latest hospital data from England shows steady, quite high levels. 1/8

[Mark Oakley @MarkOak04974342]

Its 2022 again. The mistakes made then being made again.
An innovative company with a solution for the immunocompromised out off due to our lengthy assessment process

Lets start getting this sorted

@GwynneMP @wesstreeting @libdemdaisy @DHSCgovuk @peterkyle @SalBrinton

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

🧵 The #UKCovidInquiry's first report on 𝗥𝗲𝘀𝗶𝗹𝗶𝗲𝗻𝗰𝗲 𝗮𝗻𝗱 𝗣𝗿𝗲𝗽𝗮𝗿𝗲𝗱𝗻𝗲𝘀𝘀 has been published.

While it addresses many critical areas, it missed significant issues faced by Clinically Vulnerable (CV) families. Here’s what you need to know...

1/ #CVAwareness

[Eileen Molloy @dirtybird12345]

Thanks to @NikolaBrigden @MarkOak04974342 @martin_eve for your relentless efforts in supporting & providing invaluable info for the 1.8m still with no protection from Covid. Also the team who have produced our new website. Thank you @DavidSmithWales for your ongoing support.

[ProtectPatients @ProtectPatient5]

#NewProfilePic

[Gillian Smith @GillianSmith16]

I have fired off a complaint to @BBCNews about their dreadful article yesterday on 'Are we in a summer #Covid wave? They do not allow much space so I have not been able to cover everything I have to say about it

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

Clinically Vulnerability Should Be Added to the Equality Act.

The Covid pandemic has drastically altered the landscape, exposing heightened risks and unprecedented challenges for people who are Clinically Vulnerable.

TLDR: 🙏HELP needed 10 & 11🙏
#CVAwareness #CVEquality
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[Donald Thomas, MD @lupuscyclopedia]

🩻Joint and muscle pains occur in 85-90% of #SLE #lupus patients. I just put up an article for patients about the causes and treatments:
👉https://t.co/Z1B6JK0qH6