SLV

[Hypophosphatemia Q&A @HypophosphaBot]

Love to see young XLHers taking the initiative to make sure they transition to adult care. https://t.co/PFvs0NjVFC

[Waterloo 4-H @Waterloo4H]

Waterloo 4-H Beef Club is ready for the Masterfeeds Jr Beef Heifer Show Friday and Saturday!
Come say hi if you're at the Royal this weekend.

[Durhane Wong-Rieger @Durhane]

🚨📢@raredisorders calls for First Ministers to address the urgent need for a Rare Disease National Plan #Canada4Rare #cdnpoli #cdnhealth #COF2022

[Durhane Wong-Rieger @Durhane]

.@raredisorders and @rarediseasesint stand with the global rare disease community at #HLPF.
I will deliver Key Messages to #rarediseases community at the Formal Side-Event on #gender and #rarediseases

👉 6 July 2022, ONLINE https://t.co/0xYAUlhfO1

[Durhane Wong-Rieger @Durhane]

🚨📢@raredisorders calls for First Ministers to address the urgent need for a Rare Disease National Plan #cdnpoli #cdnhealth #Canada4Rare #COF202

[SLV @ShariVanVugt]

@AClostmyluggage left Toronto for Dublin on June 28. Haven’t seen my bag since. 3+ hour wait to report it missing in Dublin. An hour wait in line upon arrival back in Toronto July 3 - still no luggage. 2 phone calls to AC both ended up with AC hanging up on me. I miss my stuff.

[CORD @raredisorders]

Planning Smart Webinar Series! There's still time to register for next week's Webinars! @RareDiseases @CanMPSSociety @defeatduchenne @canpku

Registration:https://t.co/bpSxxk97vE

[Durhane Wong-Rieger @Durhane]

In just 5 seconds, you can help save the lives of Canadians living with rare diseases. Sign CORD petition. Send a message to your government representative: https://t.co/zcOaVfGrZ4

[SLV @ShariVanVugt]

https://t.co/hkpFET54UO

[CBC @CBC]

Name that sport, wrong answers only! 🙃

[International XLH Alliance @AllianceXlh]

The next recommendation in our International XLH Awareness Campaign focuses on better supporting patients with an XLH diagnosis to better understand their genetic inheritance pattern. Genetic counselling be offered to patients with XLH, especially at the transition from child...

[International XLH Alliance @AllianceXlh]

(1 of 2) We are delighted to announce the start of our International XLH Awareness Campaign. For the next three weeks we will be sharing 12 recommendations for the diagnosis and management of adults with XLH inspired by the 2019 Haffner.D paper...

[CORD @raredisorders]

Thank you @ninatangri for speaking up on #Ontario govt concerns regarding federal price controls for new meds (👉 https://t.co/M11OtO9Qmb) that harm patients w #CysticFibrosis and other rare disorders #Canada4Rare #HESA #CdnPoli #CdnHealth 1/2

[Schneider Haus National Historic Site @JSchneiderHaus]

Crocheters, you have two extra weeks to get us your granny squares to be a part of our Community Blanket project in partnership with ArtsPay and Artist Johanna Thompson. We can't wait to see them.
Full details at https://t.co/Nnc4u1vz52

[Schneider Haus National Historic Site @JSchneiderHaus]

Teachers! We have FREE 30 minute live online classroom visits!
Feathered Friends - Kindergarten
Canadian Wildlife: Mammals - Grades 2 & 4
Canadian Wildlife: Birds, Amphibians and Reptiles - Grades 2 & 4
Contact Katie Anderson to book. [email protected]

[Schneider Haus National Historic Site @JSchneiderHaus]

Did you know, you can visit Schneider Haus virtually anytime? Check out our website for Things to do Inside, Things to do Outside and Virtual field trips. We'll be adding more fun for the whole family. Stay tuned.
https://t.co/ELzQ82BXZL

[Schneider Haus National Historic Site @JSchneiderHaus]

Things have changed a lot in the last year and they continue to. From the now normal site of masks hanging to dry to how we celebrate milestones. What are you surprised to find normal now? Help us make history by sending your submissions to [email protected]

[Region of Waterloo @RegionWaterloo]

We have reached more milestones in our vaccine rollout: the number of COVID-19 vaccines administered has surpassed 50,000, and residents in the 70-79 age group are being contacted to let them know they can book an appointment for their vaccine. Read more: https://t.co/eSn3unLi4u.

[Schneider Haus National Historic Site @JSchneiderHaus]

Check out The Record's recent article about our Help Us Make History initiative featuring Region of Waterloo Museums curator of collections, Stacy McLennan. We are still collecting pieces. Submit yours to [email protected]

[Schneider Haus National Historic Site @JSchneiderHaus]

We have quite a few gems in our collection. We thought we'd share this one for a midday laugh. I wonder what he said! #MuseumMemes