Sickle Cell Association of Ontario

The oldest, community based, volunteer Sickle Cell organization in Canada. Tweets are NOT medical advice! For more details visit

[Sickle Cell Association of Ontario @SickleCellON]

#GeneTherapy, what is it? why do I keep hearing about? and exactly what does it have to do with #SickleCell? Join @SCDAAorg & @globalscdorgs next Saturday April 27th at 10 AM EST for a #Masterclass that will aim to answer these questions. https://t.co/sHvLMOeEdT

[Sickle Cell Association of Ontario @SickleCellON]

This Saturday we welcome Dr. @akwatukhenti as we tackle the #stigma & #racism that has impacted the #MentalWellness of the SCD community for generations. Register today to be a part of this important conversation; https://t.co/8whXCyja1q

[Sickle Cell Association of Ontario @SickleCellON]

As #genetherapy becomes more & more an option for Warriors, we like the @SCDAAorg & @globalscdorgs believe information is key when making such a life changing decision. Register today for this #masterclass. https://t.co/sHvLMOe6ol

[SCDAA @SCDAAorg]

SCDAA is here for you as we navigate the possibilities and challenges of the newly approved gene therapy treatment options. Check out our Warrior FAQs to learn more about what these treatments may mean for you: https://t.co/n5XEiKCfXU

[Sickle Cell Association of Ontario @SickleCellON]

On this International Women's Day, we would like to celebrate the woman who is responsible for the SCAO being the organization it is today.
We would like to honour Lillie Johnson. One of our founders and the impetus that has kept it going for all these years.

#SCAO #iwd2024

[Sickle Cell Association of Ontario @SickleCellON]

Join @sicklecellca @PCANAD_APIIOA @UHN @drzsicklecell @AgiosPharma & @campjumoke on Friday February 16th as we bust myths, misconceptions and more all while educating about clinical trials. Register TODAY for Understanding Clinical Trials 101 at https://t.co/4CCIVgRTAm

[Sickle Cell Association of Ontario @SickleCellON]

Back by popular demand! Part 2 of our COVID-19 & Mental Health: Take Charge of your Mental Wellness series w/ @AWSaintiche Register NOW for todays 2PM session https://t.co/OJEjVZduoN

[Sickle Cell Association of Ontario @SickleCellON]

Happy Holidays & a heartfelt thank you to everyone who has supported the SCAO throughout what has been a remarkable year with its many ups, downs and numerous pivots. We look forward to your continued support in 2021 & beyond. With blessings to you & yours. #SCAO

[Sickle Cell Association of Ontario @SickleCellON]

SPECIAL COMMUNITY TOWN HALL :: The Improve Access to Healthcare Act Information Session. Register TODAY at https://t.co/fhVX73w5Su

[Sickle Cell Association of Ontario @SickleCellON]

This is a sad truth that our community can no longer accept. The Improve Access to Healthcare Act is how we ensure it all ends.

[CityNews Toronto @CityNewsTO]

“Shamefully, many with sickle cell are mistreated when they most need help – from being callously and racially profiled as drug-seeking to being subjected to incredibly long wait times, while still in pain," says NDP MPP Jill Andrews. https://t.co/sCTBLngeEc

[Sickle Cell Association of Ontario @SickleCellON]

We are super excited to work with the @OntarioNDP @JILLSLASTWORD @NickelBelt and all elected officials to make this bill a reality! Today was the start but we know there is much more work to be done.

[Ontario NDP @OntarioNDP]

NDP MPPs @JILLSLASTWORD and @NickelBelt have introduced a new bill – the Improve Access to Health Care Act – that would implement a universal protocol to ensure a high standard of care for people living with sickle cell disease province-wide. https://t.co/0QfjceRZGA

[Sickle Cell Association of Ontario @SickleCellON]

One of our amazing health partners is looking for RN's to work with them in Hamilton. Please reply using info below and feel free to share with interested parties.

[Madeleine Verhovsek, MD FRCPC @MVerhovsek]

Do you know any RNs who would be interested in working at the combined pediatric-adult sickle cell disease & thalassemia clinic at McMaster? Needs to be organized, skilled communicator with health equity focus.

Spread the word!! DM me if questions or leads

[Sickle Cell Association of Ontario @SickleCellON]

The Improve Access Healthcare Act media event begins NOW!!

[France Gélinas @NickelBelt]

LIVE — NDP MPPs @JILLSLASTWORD and @NickelBelt discuss the bill they are tabling to create a universal protocol and standard of care for Ontarians living with sickle cell anemia. https://t.co/T0gLy8eH5G

[Sickle Cell Association of Ontario @SickleCellON]

#Cannabis, #marijuana, #CBD, #THC. What are the differences and do they help those living with Sickle Cell Disease? Join our #SupportGroup in partnership with @TAIBU_CHC on Oct. 24th at 2:00 PM (EST) as we discuss this with Dr. Joel Moody.

Register at https://t.co/gVlhxkTRPk

[Sickle Cell Association of Ontario @SickleCellON]

STARTING SOON: Join our VP & Director, Programs as she discusses ethics and patient involvement in research on #TRTalks brought to you by the Translational Research Program at the University of Toronto. Zoom Meeting ID: 924 2285 8749. #SCAO #SickleCell #utoronto #research

[Sickle Cell Association of Ontario @SickleCellON]

Our Adult Sickle Cell Support Group is BACK & BETTER than EVER!

Join us this Sat Apr 18 at 1:30 PM for our 1st ONLINE support group via ZOOM.

Register TODAY by emailing [email protected]

#StayHomeSaveLives #stayhealthy

[Alexander Glaros @AlexanderGlaros]

Got a call from ER doc at 3am for a 6mo #sicklecellwarrior with dactylitis and pneumonia. Said it was “one of those families” that are ****ing unreasonable & refusing everything after 1 dose of iv antibiotics, cbc clotting, & iv going bad. Clearly thought I was going to agree...