SickleCellCouncil

[rob evans @robevansgdn]

Among the #spycops surveillance reports is one recording that the family was going to lay flowers at an event to commemorate his death. https://t.co/4kDOX2ZwQC

[rob evans @robevansgdn]

The #spycops surveillance took place while the grieving family was seeking to hold the Metropolitan police to account and uncover the truth of why officers had mistaken him for a suicide bomber when they shot him seven times in the head. https://t.co/4kDOX2ZwQC

[rob evans @robevansgdn]

Four undercover police officers spied on the justice campaign run by the family of Jean Charles de Menezes, the innocent man shot dead by police on the tube in 2005, the #spycops public inquiry has heard.
https://t.co/4kDOX2ZwQC

[Nicola Brook @NicolaBrook4]

1/2 Amazing closing submissions by Anna Morris KC on behalf of CBFFJ UK.  Anna took the opportunity to remind the Chair of a need for National Oversight mechanism that will ensure the recommendations from inquiries are implemented.

[Charl Hennessy @charlhennessy1]

#HillsboroughLaw
Where are we up to, and how did we get here?

#HillsboroughLawNow
#PublicAccountabilityBill #DutyOfCandour

https://t.co/e3NtkNBpkd

[SickleCellCouncil @SickleCouncil]

@BBCCiN Children In Need talks of the medical condition Sickle Cell Disorder. To learn all about it, get the best book written about it, the Lancet reviewed 'The Sickle Cell Guide'. #sickle ell #sicklecellwarriors Buy it at: https://t.co/CHfwQVUDkB

[SickleCellCouncil @SickleCouncil]

@BBCCountryfile features Daniel & @CiannasSmile discussing sickle cell disorder. Read all about the condition in the Lancet Medical Journal reviewed book the 'Sickle Cell Guide' an essential read and companion for life. #SickleCell #sicklecellwarriors
https://t.co/CHfwQVUDkB

[SickleCellCouncil @SickleCouncil]

Happy World Sickle Cell Day! Today is a United Nations dedicated day to raising awareness of sickle cell around the world.

In 2019, Evan Nathan Smith tragically died in hospital following a sickle cell crisis. He was just 21.
@GiveBloodNHS .

[SickleCellCouncil @SickleCouncil]

Starts at 6.30pm today in just over an hour.

*ACLT webinar - New
Sickle Cell Gene Editing Therapy*

https://t.co/8ekMSkjCik
#sicklecell #sicklecellwarriors
@acltcharity

[SickleCellCouncil @SickleCouncil]

BREAKING NEWS *The sickle cell cure arrives in England*

https://t.co/lruHlca2fW

It was hard work, but we did it 👏🏿 spread awareness

[Sickle Cell Chair @SickleCellChair]

Congratulations, the @MHRAgovuk approved gene therapy for people living with #SickleCell disorder has just been approved by NICE. It means the cure called CASGEVY, is now available on the NHS. It was hard work, but we did it 👏🏿
https://t.co/srQ45O0os3

[TAZ 👼🏽 🌺 @TruthAboutZane]

We march to ensure that the law is changed after our precious son died during the 2014 floods #ZanesLaw
#marchforwater
#CleanWater
#Floodthestreets
#pollutedwaters
#contaminatedland

[SickleCellCouncil @SickleCouncil]

Tackling Health Inequalities | Seven Priorities For The NHS | The King's Fund https://t.co/SaUOejn01C… #PatientEmpowerment #BlackHistoryMonth2024 #SickleCell #SickleCellWarrior

[SickleCellCouncil @SickleCouncil]

@NICEComms approved sickle cell (SC) treatment #Voxelotor having previously rejected it *To get it* , & its promise of life changing benefits, ask your Haematologist. Read about it, & all things SC in the Lancet acclaimed *The Sickle Cell Guide* get it at https://t.co/CHfwQVU5v3

[Sue Roberts @Sue14Roberts]

@IanByrneMP There’s so many lessons that should be learnt from this, I hope the inquiry gets immediate and full support!

[ANGELA WALKER REPORTS @AngieHWalker]

@IanByrneMP You can listen to Zane’s parents here.

"CHILD CYANIDE POISONING: One Family's Quest for Justice for 7-year-old Zane Gbangbola, Killed by Cyanide Gas While He Slept" at https://t.co/hqrrmjYbrP

[lan Byrne MP @IanByrneMP]

I & fellow MPs are calling for an independent panel inquiry into the death of 7-yr-old Zane Gbangbola, who died during floods in 2014 from hydrogen cyanide poisoning & whose family have been denied truth & justice. #HillsboroughLawNow #TheTruthAboutZane
https://t.co/iX2Z577X5q

[Sickle Cell Society @SickleCellUK]

We are disappointed by yesterday’s decision of the Medicines and Healthcare products Regulatory Agency (MHRA) to withdraw the marketing authorisation for Crizanlizumab (Adakveo), which was a new and promising treatment for people living with Sickle Cell.
https://t.co/V58fZc8sFi

[SickleCellCouncil @SickleCouncil]

We now have a vaccine for #Malaria , look out for it next year, it's a game changer.

[SickleCellCouncil @SickleCouncil]

Another #Christmas SOS and other #sicklecell patient desperately fighting for pain relief in hospital. Know your rights buy this book today and be an informed patient. It may just save a life. The Sickle Cell Guide https://t.co/IYhWFgW4Ha

[SickleCellCouncil @SickleCouncil]

The *gift* that keeps giving 🎅🏾. *Enjoy* , and *Share*

Available at:
https://t.co/lraQwsVJC1

THANK YOU. Kye #SickleCell