Simpi Kumari

I'm a mother of two SMA children's .

[Alpana Sharma @alpanaS16]

We @curesmaindia r requestin @MoHFW_INDIA @FinMinIndia @nsitharaman @PMOIndia 4 GSTexemption Thank @vinodkumarmenon @mid_day 4highlight d urgentneed #raredisease
https://t.co/sIzZDKzBYS mumbai-news/article/budget-2025-why-no-gst-relief-for-rare-disease-drugs-ask-parents-23477119

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

SMArtCon2024: A Resounding Success! 🎉
Thrilled to announce that our event exceeded expectations! Dynamic discussions, empowering sessions & unforgettable connections made. Heartfelt thanks to esteemed guests & panelists 🙏
Let's keep the momentum going 💪 & make a difference !

[Sanjay Singh AAP @SanjayAzadSln]

SMA बीमारी को खत्म करने तक मेरा अभियान जारी रहेगा। आज संसद के शून्यकाल में SMA के बेहतर इलाज की मांग रखी। 16 करोड़ से ज्यादा का इलाज कराना इस देश के लोगों के लिए संभव नही ��ै। सरकार को जिम्मेदारी और मानवीयता दिखाते हुए इस बीमारी के खात्मे के लिए गर्भावस्था के समय ही मुफ्त जांच और सस्ता इलाज उपलब्ध कराना चाहिए। इस गंभीर बीमारी से पीड़ित बच्चों के इलाज के लिए सरकार को CSR फंड की एक निश्चित मात्रा भी तय करनी चाहिए।

[Indian Doctor🇮🇳 @Indian__doctor]

रावण भी विश्व विजेता था ,लेकिन उसके अहंकार ने पुरी लंका जलवा दी।

शिक्षा मंत्री जी,
विपक्ष के साथ ये 24 लाख परिवार की हार है ।
ये आने वाले 24 लाख युवा वोटर की हार है ।।
और आप अहंकार मे चूर होकर सभी का मजाक उड़ा रहे।!

सोचिये आप जीते भी तो क्या जीते?
#NEET #neet_scam

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Today, on #RareDiseaseDay, CureSMA India stands with all those affected by rare diseases like #SMA . Together, let's raise awareness, promote research, and support one another in our journey towards a cure. Every voice matters in the fight against rare diseases! #BattleAgainstSMA

[Archana Vashist Panda @PandaVashist]

Thx @KolanuSailesh @VenkyMama @vboyanapalli @Nawazuddin_S @arya_offl @ShraddhaSrinath 4 highlighting #SpinalMuscularAtrophy in yr movie #Saindhav. U fulfilled yr promise 2 #SMA community during #Run4SMA Marathon in Aug 23'. V hope it'll help spread #SMA Awareness 🤞.

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

On this #InternationaldayofPwD our #SMArtWarriors on ♿demand the society 2 look beyond what they see n accept the warriors as people n not liabilities! @narendramodi @MoHFW_INDIA @MinistryWCD @EduMinOfIndia @MSJEGOI @Roche @Novartis @NovartisGene @biogen @ScholarRock @biohaven

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Sharing the poignant #SMAjourney of 8.5-year-old Omprakash ,a Type 2 warrior from Tamilnadu. His battle highlights the urgent need for life-saving medication. Let's hope Omprakash gains access to the medicine he requires soon. 🙏 #SMAAwareness #MedicalAccess
#Risdiplam #Spinraza
@rocheindia
@biogen

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

https://t.co/hLqcslIleN

Expressing gratitude for the remarkable initiatives by the Kerala government @iprdkerala @KeralaHealth in aiding SMA-affected individuals. From establishing an SMA clinic at Kerala's COE, offering free scoliosis surgery, and providing free #Risdiplam treatment for children under 7, their dedication is commendable. The latest comprehensive program and crowdfunding effort to support clinical and palliative requirements for SMA and other rare disease patients is indeed heartening news and shows how the government cares for the rare disease community. A bright future lies ahead, and their approach sets an inspiring example for all Indian states. 🙏 #KeralaModel
@MoHFW_INDIA
@CMOKerala @VeenaGeorge03 @Arogyakeralam @drrahulur

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

True independence and freedom thrive in doing what's right. On this auspicious #IndependenceDay2023 let's pledge to strive for freedom from #SMA disease working together to enrich our lives and the lives of our cherished ones. Thanks Akshat , our #SMArtwarrior for making this video. 🙏🏼

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Day 16: As we continue our efforts to raise awareness about #SMA, focusing on gastric complications is vital. Did you know that gastric issues are the second most common reason for hospitalization among SMA patients? Often, we face symptoms without understanding their origins or how to manage them. We encourage you to read and share this valuable information. #BattleAgainstSMA
#GastricIssues

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Day 17: Discover today's factsheet, which delves into managing swallowing difficulties through dietary adjustments and adaptive feeding techniques. These practical insights are tailored for home care, offering valuable assistance. Your daily read brings you closer to effective #SMA management. 📖💙 #SMAcare #KnowledgeSharing
#SMAawareness

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAJourney
🥗 Nurturing with Love: Meet the incredible parents who are going above and beyond to ensure their SMA child's health through a carefully crafted diet. Their dedication to providing the best nutrition is truly inspiring! 💙🍎 #SMAcare #ParentingHeroes #BattleAgainstSMA
#SMAawareness

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAjourney
Meet Maheswar, a 3-year-old #SMA type 1 fighter from Kerala. Despite battling recurrent pneumonia post #Zolgensma treatment, his resilience shone through. Fundoplication and gastrotomy procedures brought relief, transforming his life. This underscores the importance of understanding pneumonia's triggers and taking proactive steps to prevent recurrence.
#SMACommunity.
#SMAAwareness #InspiringJourney

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Day 19: Understanding the connection between #SMA & Constipation.
Have you ever wondered about the link between SMA and the common occurrence of constipation? 🤔 Delve into our post to uncover insights and discover effective strategies to alleviate this concern. Let's spread awareness and knowledge far and wide!
#SMAawareness
#BattleAgainstSMA
#HealthInsights #LearningTogether #SpreadKnowledge

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Day 20: Unveiling our latest factsheet focusing on the repercussions of extended fasting in #SMA. 🚫 Don't miss out on this essential read, as prolonged fasting is linked to weight loss and diminished muscle mass in SMA. Knowledge is power! 💡 #SMAFacts
#BattleAgainstSMA #WeightAndMuscleHealth

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAJourney
🌟 Witness the incredible journey of 3-year-old #SMA Type 2 warrior, Rajveer Rana from Odisha! 🏆 Discover his inspiring milestones powered by #Risdiplam and dedicated physiotherapy. Let's raise awareness that early administration of SMA medicine yields the most promising outcomes. 💪 #SMAAwareness
#RemarkableProgressWithRisdiplam
@Roche
@rocheindia

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Day 21: Discover the pivotal role of physical medicine and rehabilitation in managing #SMA. From enhancing mobility to optimizing quality of life, physical medicine and rehabilitation play a crucial role in the SMA journey !
#LongTermCare
#SMAawareness
#BattleAgainstSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Witness the remarkable #SMAjourney of Dr. Krishnakumar, 46, living with SMA type 3 from Puducherry. Overcoming challenges, he graduated in Engineering, earned a doctorate, and now imparts knowledge as a polytechnic educator. His family's dedication in providing care and support shines bright! 🙌 #SMAawareness
#BattleAgainstSMA
#Inspiration #RemarkableJourney

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Day 22: Today's factsheet focuses on a few good exercises empowering #SMA individuals on rehabilitative care goals include enhancing mobility, improving quality of life, managing muscle strength, and fostering independence. These exercises are to be followed only after taking advice from your doctor. Join us in this journey of empowerment! 💪🌟 #SMAawareness
#BattleAgainstSMA #RehabilitationGoals