Mike Heil

Rare disease and Narcolepsy advocate. Moderator and creator of #Nchat and Co-owner of @bigbearfaceandhair

[Mike Heil @SleepyistMike]

That's me!

[Narcolepsy Network @NarcolepsyNtwrk]

Please join us in welcoming Mike Heil to the Narcolepsy Network Board of Directors!

A longtime advocate for the narcolepsy community, Mike brings years of experience in writing, podcasting, support groups, and Rare Disease Week advocacy. We are thrilled to have him on board!

[Narcolepsy Network @NarcolepsyNtwrk]

Today we’re proud to spotlight Taya, who is helping raise awareness by sharing her proclamation and her story.

#SuddenlySleepySaturday #NarcolepsyAwareness #IdiopathicHypersomnia

[Narcolepsy Network @NarcolepsyNtwrk]

Today is #SuddenlySleepySaturday! Let others know what it's like living with Excessive Daytime Sleepiness... There’s never enough sleep SHARE our Narcolepsy FAST FACTS today!

Want to share how EDS impacts YOU? Let us know in the comments!

🔗https://t.co/IsQbsftBeY

[Narcolepsy Network @NarcolepsyNtwrk]

Help raise awareness about what it’s like to live with cataplexy 💫

Download our Fast Facts and share them on social media this Saturday for #SuddenlySleepySaturday. Every post helps spark conversation and understanding.

🔗 https://t.co/IsQbsftBeY

[Mike Heil @SleepyistMike]

Expect to see me a lot more on here.

[Narcolepsy Network @NarcolepsyNtwrk]

#SuddenlySleepySaturday is almost here! 💙

All week we’re sharing FAST FACTS to raise awareness for narcolepsy, an invisible illness.
Download graphics & join us in spreading the word: https://t.co/IsQbsftBeY

[Narcolepsy Network @NarcolepsyNtwrk]

This Saturday is #SuddenlySleepySaturday! We’re raising awareness for narcolepsy and idiopathic hypersomnia and amplifying voices across our community.

👏 Congrats to Kim on receiving a New Hampshire Suddenly Sleepy Saturday proclamation!

[Mike Heil @SleepyistMike]

@CohhCarnage @factoriogame

[Narcolepsy Network @NarcolepsyNtwrk]

Does media portrayal of narcolepsy discourage you?

President Keith Harper shares why support, advocacy, and accurate info matter. Shows like Stumble can spread misconceptions, but we help our community advocate for themselves and correct misinformation with real tools/support

[Mike Heil @SleepyistMike]

@CyYuVtuber XOXO

[Mike Heil @SleepyistMike]

@Strippin Same brother

[Mike Heil @SleepyistMike]

#sleepersupport fix this shit

[Mike Heil @SleepyistMike]

@SleeperHQ bro we had to lock our adds and drops because your silly app couldn't handle waiver wire adds right after a draft. Now rosters are locked for 24 hours. Fix your shit assholes. #dumb

[Mike Heil @SleepyistMike]

@SleeperHQ bro we had to lock our adds and drops because your silly app couldn't handle waiver wire adds right after a draft. Now rosters are locked for 24 hours. Fix your shit assholes. #dumb

[Mike Heil @SleepyistMike]

@LudwigAhgren @loltyler1 Killed it

[Mike Heil @SleepyistMike]

@markiplier I'm sure you are fully aware but, TOP 9 baby! #smashjudgejudy

[Project Sleep @project_sleep]

🌎✨ Thank you to #RisingVoices speaker Jayden Rowland, who organized a table on their college campus to raise awareness for #WorldNarcolepsyDay! Jayden is an art major at Oklahoma City Community College who was diagnosed with type 1 #narcolepsy with #cataplexy at age fifteen.

[Mike Heil @SleepyistMike]

The pain for mediocrity is unbearable.

[Mike Heil @SleepyistMike]

Yeah we did a thing

[Matthew Horsnell @matthorsnell]

This collaboration has been a long time in the making.

When I first started sharing about life with #narcolepsy there were fewer advocates…and almost no fellas. @SleepyistMike was there.

Proud to share alongside Mike for #KnowNarcolepsy!

#SleepPeeps
#WorldNarcolepsyDay

[Project Sleep @project_sleep]

🎙️ On 5/23, Project Sleep President & CEO Julie Flygare (@RemRunner) shared about her #narcolepsy experience and legislative advocacy for #sleepdisorders on @1a, a show distributed by #NPR. Please listen and share to raise awareness! Listen now: https://t.co/3avD5QJKsw

[Mike Heil @SleepyistMike]

I had the opportunity to record some videos some years back for @AvadelPharma to encourage folks to join a drug trial for LUMRYZ. I'm glad it made a difference and I can't wait to find out more.

[Julie Flygare @RemRunner]

⚡️FDA approval of a new #narcolepsy treatment today! For people living with narcolepsy, and for all of us who advocate for this community, the approval of LUMRYZ is an important step forward. @AvadelPharma Let's keep the innovation going! https://t.co/mhSwJcXutU