Marianne H

Emergency Department, inner City ED. Best team. One big ED family.

[Marianne H @SnoozleH]

@drkeithsiau Discoid eczema

[Charlotte's Battle Against Glioblastoma (BAG) @alexeades1]

Not in a million years did I imagine having an account dedicated to my daughter Charlotte who lost her life at 19 to a brain tumour.

Charlotte never stood a chance.
Her tumour was on her brain stem.
Original diagnosis: Grade 3 Anaplastic Astrocytoma with spinal diffusion at 16.
Her tumour was inoperable.

She received the standard 6 weeks of radiotherapy.
She received the standard chemotherapy—Temozolomide (first licensed in 1999, no advancements since).

On 28.7.2015, at just 18, her tumour mutated to grade 4 glioblastoma.

211 days later, on 24.2.2016 at 1:03 pm, Charlotte took her last breath.

She was 19 years & 5 days old.

Brain tumour research is desperately underfunded.

The big difference with our charity is that we self-fund. 100% of donations go directly to research at Charlotte's Lab, King's College Hospital, London.

We have no salaries, overheads, advertising, or merchandise, just the story of a brave and wonderful young woman shared through her YouTube channel.

We pay our own expenses, including PayPal & PO Box fees, so your donations really make a difference.
If you’re thinking of donating to a charity, please consider us.  If you can't donate a RT would help us so much.

https://t.co/Ox60Th4Z4V

[Marianne H @SnoozleH]

@Jennife10651535 It’s frustrating (and marginalising) when manufacturers don’t consider
that their packaging excludes groups of people from certain nutrition choices… My mother had similar issues. There’s a space in the food industry to change that with a range of easy access products, surely!

[Marianne H @SnoozleH]

@Jennife10651535 At this time? 🤩

[Marianne H @SnoozleH]

@Jennife10651535 If you started running the shower, would the sound of running water help prompt him when you suggest it whilst handing him a folded towel? I suspect you have tried this and everything else…

[Marianne H @SnoozleH]

@Joseph_Fasano_ This ❤️

[Marianne H @SnoozleH]

@ReddCinema Rachel McAdams and Jennifer Garner

[Marianne H @SnoozleH]

@harryhhutch @NickLovesSpain I say por desgracia instead for same reason 😂

[Marianne H @SnoozleH]

@ashleyrich .

[Marianne H @SnoozleH]

@NEJM Important to consider adverse reaction to PPI (long term use of PPI-induced severe intractable hypomagnesaemia)

[Marianne H @SnoozleH]

@joannekarma @KateCushing2 @itvnews @RishiSunak @Keir_Starmer Was honestly expecting more from Starmer… 😢

[Marianne H @SnoozleH]

@ATRightMovies Oliver Reed

[Marianne H @SnoozleH]

@PaulineHMasters @DrHFRyan No - only a repeat prescription

[Marianne H @SnoozleH]

@TheCinesthetic Oliver Reed

[Marianne H @SnoozleH]

@Jennife10651535 Have you ever been to Jordan? I have a hankering to go there - Wadi Rum/Petra…
Too little time and too many places on this Earth to choose from 😂

[Marianne H @SnoozleH]

@Jennife10651535 Mine too really. Lots of fragility fractures so missed the boat perhaps. But I am more fortunate than you in that I could get away to travel with no caring responsibilities at present. I do think of your situation and how devoted you are and how constantly exhausted you must be

[Marianne H @SnoozleH]

@Jennife10651535

[Marianne H @SnoozleH]

@Jennife10651535 Oh I so agree! This is my dream destination - the sheer beauty and vastness of the landscape. The glacier field. I have a feeling it would be a sensation of awe. Alas, my hiking abilities are on hold - perhaps forever - due to an ongoing confounding injury…
Perchance to dream..