Susan (Soozi) Sinclair

Scottish Londoner. Seasoned ex-bookseller & multi-site retail manager. Purveyor of wine (WSET L3). Taking a punt at writing a novel. #longcovid for 3+ years

[Susan (Soozi) Sinclair @Soozilix]

I'm so chuffed and happy! Thanks so much to @felicityblunt and @cbcreative. You've given me some more momentum to finish editing my first novel.

[Curtis Brown Creative @cbcreative]

Our #WriteCBC winner is @Soozilix, congratulations Susan! Head on over to our blog to read the winning mini-scene and find our why we picked it: https://t.co/BijqlLX1qF

[Susan (Soozi) Sinclair @Soozilix]

@Philippa_Perry But absolute respect and joy to those who can look past and enjoy and celebrate this sports team for their skills!

[Susan (Soozi) Sinclair @Soozilix]

@Philippa_Perry Love how hopeful this attitude is & strive for inclusiveness/warmth. But ‘never mind’ is woefully weak for those who had to withstand football violence & sectarianism for decades & live through that. It was hard work on the daily. I’d rather avoid than interact with the prejudice

[Susan (Soozi) Sinclair @Soozilix]

@nationalexpress hi, I don’t see any sign for the 12.30 from Victoria coach station to Oxford - supposed to be at stop 10? Can you help?

[Susan (Soozi) Sinclair @Soozilix]

@CamplightTents hi! We’re booked with you for Shambala. Is there a checkout process with you? (We’re Just trying to sort return train times). Thanks!

[Susan (Soozi) Sinclair @Soozilix]

@ShambalaFest Thanks! 😊🎉

[Susan (Soozi) Sinclair @Soozilix]

@ShambalaFest hi! What time do you open on the Thursday, please? (We’re travelling by rail and shuttle)

[Susan (Soozi) Sinclair @Soozilix]

@TfL hi there, is the Elizabeth line running from Farringdon to slough today? National Rail says this is cancelled today but tfl says good…?

[Susan (Soozi) Sinclair @Soozilix]

@emmalken @nairnbookshop @GurnNurn @BAbooksellers @NairnBID @Gardners @RuthLovesBooks So tempting! It’s legit a plan to buy/start-up a bookshop business once I’ve recovered 🤞💪😊

[Susan (Soozi) Sinclair @Soozilix]

@dog_rates 🤣🥰

[Shaney Wright @ShaneyWright]

#LongCovid clinics discharging patients after a phone call or 2 because there's no treatment & nothing they say they can do, & those same patients, having been discharged, then being assumed on that basis to no longer have Long Covid... That's called cooking the books folks!

[Susan (Soozi) Sinclair @Soozilix]

@emmalken @LisaMMcGee I have regular deep dives with my 2 bfs. Fraser’s latest theory: “extravagant role play between a dastardly passionate couple who love the chase. Once caught Columbo then frees his husband and sets him up with a new identity and onto the next film.

[Susan (Soozi) Sinclair @Soozilix]

@Daltmann10 Thanks for your reply - and your work!

[Susan (Soozi) Sinclair @Soozilix]

@Daltmann10 Do you still have space for volunteers from 1st wave who still have LC (I got covid 11/3/20)?

[Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳#pwLC @doctorasadkhan]

What nonsense is this? #PACE for #LongCovid? @NIHRresearch⁩ you should be ashamed. 2 day CPET shows deterioration in performance in #LongCovid on physical exertion. This needs to be stopped. Patients- do not enrol. If you have, withdraw #MECFS https://t.co/BgyZ8us3FY

[Lucy Bailey @LucyBaileyUK]

One of the cruelest things about #LongCovid and #MECFS is that it makes people so exhausted we can’t even advocate for ourselves. This movement needs allies like no other. Please take a tiny action today & RT #ResearchLongCovid tweets to help amplify our voices ❤️

[Lucy Bailey @LucyBaileyUK]

Chronic illness after a virus is nothing new. But it has been ignored & stigmatised for decades. Now is the time to #ResearchLongCovid #ResearchMEcfs & treat all those who have been ill & suffering for DECADES, as well as the 1M+ people with #LongCovid. Pls give us our lives back

[Susan (Soozi) Sinclair @Soozilix]

I’ve had #LongCovid for 2 years. Before, I had a job, was writing a novel and was healthy - running 5-10k a few times a wk. 2 yrs on I have such limited life: can’t work, can’t exercise, can’t socialise without relapse - with no health or financial support. #ResearchLongCovid

[Shaney Wright @ShaneyWright]

The shortcomings of & lack of effective treatments offered by #LovidCovid clinics is not an inherent feature of them but a result, in part, of a lack of biomedical research into the condition. It's putting the cart before the horse. To #TreatLongCovid you must #ResearchLongCovid

[Shaney Wright @ShaneyWright]

Things that should've happened but didn't...

2020: Biopsies of #LongCovid pts' tissues.
❌Didn't happen!

Early 2021: mAbs trialled on LC pts.
❌Didn't happen!

Late 2021: Antivirals trialled on LC pts.
❌Didn't happen!

#researchlongcovid.
STOP the inaction, apathy and delay

[Long Covid Patient Action Group UK @LC_UK_Action]

🚨 #researchlongcovid #researchMEcfs 🚨 TWEET LIKE CRAZY TODAY! @sajidjavid @HumzaYousaf @NIHRresearch @OxfordBRC @CSO_Scotland @UKRI_News @CMO_England @UKParliament @ScotParl @DrGregorSmith @CMOWales @TheBMA @rcgp @RCGPScotland @niassembly @UKGovWales
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