St Mark's IBD Patient Panel

Patient forum for individuals with Inflammatory Bowel Disease #crohns #colitis at the UK's National Bowel Hospital, the ground-breaking @StMarksHospital

[St Mark's IBD Patient Panel @StMarksIBDPP]

The 2023 IBD Patient Survey is now open. Have your say and help improve care standards for all 🙏🏼👍🏼🌟

[Lisa Younge @LisaYounge2]

@StMarksHospital @BowelsOfStMarks @StMarksIBDPP @LNWH_NHS please help to spread the word. We need to hear from as many patients as possible - help us understand the good, and the not so good to ensure our services are meeting the needs of patients

[St Mark's IBD Patient Panel @StMarksIBDPP]

St Mark’s are hosting an IBD Open Day and we’re so excited! 🌟🙏🏼

Click on the link below to register!

Excited to see you there ❤️ Come talk to us to find out more about the Patient Panel’s work. To get on our mailing list, email [email protected].

[St Mark's Hospital Foundation @BowelsOfStMarks]

This year we are delighted to be hosting an IBD Patient day on Saturday 13th May celebrating World IBD day! This event is in partnership with our amazing clinical colleagues & we would love to see you there. The event is free & registration is now live: https://t.co/5Nc55Sppgn

[St Mark's IBD Patient Panel @StMarksIBDPP]

@LisaYounge2 @PouchRed @jasonbacon @BowelsOfStMarks @jadio76 Thanks so much for your unstinting support Lisa! And @MadhoorRamdeen, @annikatowell and @jasonbacon. SO APPRECIATED 🙏🏼🌟

[St Mark's IBD Patient Panel @StMarksIBDPP]

Look forward to seeing all those who can make tonight’s meeting 👍🏼
If you’d like to join us and don’t have details, please be in touch!

[Crohn's & Colitis UK @CrohnsColitisUK]

Are you living with active Crohn's Disease? You might be interested in the ADDapt trial.

Researchers at King's College have designed a low food additive diet, and they're looking for volunteers to try it for 8 weeks to see if it lowers gut inflammation.

[St Mark's IBD Patient Panel @StMarksIBDPP]

@AliJawad12 #legend #inspiration Happy 2023 Ali 🌟👍🏼🙏🏼

[St Mark's IBD Patient Panel @StMarksIBDPP]

@MargaretVbcsp May her memory be for a blessing 🙏🏼

[St Mark's IBD Patient Panel @StMarksIBDPP]

Sending love and strength to all the AMAZING nurses at St Mark’s and the LNWH Trust. We’re very lucky to know you and very grateful for your wonderful care 🙏🏼🥰😘

[Lisa Younge @LisaYounge2]

Meeting your heroes.. an amazing evening at the @BowelsOfStMarks Supporters Event listening to these phenomenal people tell their stories #stmarksfrontiers @NatsWoodward @jasonbacon @OmarFaiz_SETOC

[St Mark's IBD Patient Panel @StMarksIBDPP]

So well deserved 🌟🌟🌟 Big congrats!

[St Mark's Hospital @StMarksHospital]

Congratulations to our St Mark's Hospital Stoma & Pouch Care Team for winning Highly Commended Association of Stoma Care Nurse (ASCN) UK Stoma Nurse of the Year 2022 Award! #WeAreStMarks @iasupport @colostomyuk @StMarksHospital @PouchRed @StMarksHospital @uoaa @wocnsociety

[St Mark's Hospital @StMarksHospital]

Join our Stoma & Pouch Care team on social media this Saturday 01/10/2022 to celebrate this year's Ostomy Awareness Day! @bowelsofstmarks @StMarksHospital @LNWH_NHS @ColostomyUK @iasupport @UOAA @PouchRed @WOCNSociety @TheWCET #ostomy #ileostomy #colostomy #urostomy #pouch

[St Mark's IBD Patient Panel @StMarksIBDPP]

Another chance to help St Marks with their ground-breaking research 💡🩺🤞🏼
If you can spare 10 mins, please contact Lillian!
Thank you 👍🏼

[Lillian Reza @LillianReza]

📣 Call out to patients to join the Pouch fistula QoL study📝. Please get in touch via Twitter or email [email protected] if you can spare 10 minutes to complete an online questionnaire @PouchRed @iasupport @StMarksIBDPP @CrohnsColitisUK @ACPGBI_PLG @pavfcos @philtozer1

[St Mark's IBD Patient Panel @StMarksIBDPP]

Another opportunity to contribute to IBD research 💡🩺🤞🏼

[Richard Brady (researchactive.bsky.social) @researchactive]

✍️Can you help one of our @NCBDresearch research programme partners with a survey ? Whether you have an ileostomy or colostomy, had one or are due to have one , the team @Ostiqueltd would love to hear about your thoughts, experiences & lifestyle.✅ https://t.co/iaPbr52n1d

[St Mark's IBD Patient Panel @StMarksIBDPP]

King’s College are recruiting for a new patient study relating to the effect of certain foods on Crohn’s. If it’s of interest, sign up! 💡🩺🥗💩

[Crohn's & Colitis UK @CrohnsColitisUK]

Researchers at King’s College London are looking for people with mildly active Crohn’s Disease to take part in a study researching how diet can be used to manage active flares and reduce gut inflammation. To take part, go to:
https://t.co/MWGKmvNXAb

[St Mark's IBD Patient Panel @StMarksIBDPP]

Some tips from the amazing St Mark’s Stoma and Pouch Care team for navigating this hot weather 🥵💦🙏🏼

[St Mark's Hospital Foundation @BowelsOfStMarks]

With temperatures set to reach record highs, St Mark's Stoma & Pouch Care team share tips for anyone with a stoma or pouch to help you stay hydrated during the hot weather🌞https://t.co/YBmL7PZOtj
#WeAreStMarks #stayhydrated💧
@iasupport @StMarksHospital @PouchRed @colostomyuk

[St Mark's IBD Patient Panel @StMarksIBDPP]

🌟🌟🌟🌟🌟🌟🌟
🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼
🥳🥳🥳🥳🥳🥳🥳
#THANKYOU

[Lisa Younge @LisaYounge2]

Massive congratulations to Team IBD and in particular the IBD Biologic Team who went above and beyond last year and thoroughly deserve this recognition! Teamwork makes the dream work eh!! @BowelsOfStMarks @StMarksIBDPP @LNWH_NHS

[St Mark's IBD Patient Panel @StMarksIBDPP]

Wooohoooo! 🥳
Huge thanks for your invaluable work.
We’re so grateful for your passion, dedication and kindness, that helps carry us through stormy waters 🙏🏼🌟

[Lisa Younge @LisaYounge2]

What a team! They totally deserve this award!🎉 ⁦@StMarksHospital⁩ ⁦@LNWH_NHS⁩ ⁦⁦@tillotts_pharma⁩

[St Mark's IBD Patient Panel @StMarksIBDPP]

Huge congrats to @mlcervantesRN.
So well-deserved 🌟🌟🌟
As St Mark’s patients, we’re so grateful for the amazing wraparound care our specialist IBD nurses provide. Thank you 🙏🏼😘

[Lisa Younge @LisaYounge2]

Congratulations @mlcervantesRN - this years recipient of the Richard Driscoll award for IBD nurse excellence! Judged by peers, it’s an endorsement to be proud of. Congrats also to @joseph_babitha and the rest of #TeamIBD at @StMarksHospital - teamwork at its best! 🎉@LNWH_NHS

[St Mark's IBD Patient Panel @StMarksIBDPP]

Rest In Peace @bowelbabe.
Such gratitude for all you did to raise awareness of bowel cancer and all your legacy will continue to do @bowelbabeF
May your memory be for a blessing 🙏🏼😇

Know the signs: https://t.co/q8Wji4vrbS

[St Mark's IBD Patient Panel @StMarksIBDPP]

@LisaYounge2 @BowelsOfStMarks Huge thanks for your input and enthusiasm, as always. Already counting down till our next one. Date to follow ASAP 👍🏼

[St Mark's IBD Patient Panel @StMarksIBDPP]

Looking forward to tonight’s Panel meeting 😊 For the link, email us at [email protected].

[St Mark's Hospital Foundation @BowelsOfStMarks]

Join the IBD Patient Panel for their next meeting: 22/06/22, 6-7.30pm
Topics to be covered include
🔸An update on the move to Central Middlesex
🔸Discussion of a new surgical project
🔸The Patient Carers Participation Group
e: [email protected] for the link!
#WeAreStMarks