Patient Advocate

#SharingSharonsStory #PatientAdvocacy #sacroplasty #medicaltransparency #patientfamilyengagement #medicalcomplication #patientfirst #deathwithdignity

[Patient Advocate @Stand4Patient]

When I first started posting on this page, it was about my mom, figuring out how to speak up for her. Now 3 1/2 years later, I have two children with medical needs. And patient advocacy seems like it’s a part of my every day life. #cancerstillsucks #PHACE #celiac

[Patient Advocate @Stand4Patient]

@fox4kc Thanks for your story on Harcros Chemicals and toxic air exposure in KCK. Both of my parents died from cancers listed in your article. My mom grew up and lived at S. 47th St. My dad worked on Speaker Rd.
#Harcros must be held accountable.

[Patient Advocate @Stand4Patient]

She deserved more. She deserves change in #patienttransparency. I still question, what went so horribly wrong?! What was suppose to be a life changing procedure, turned into a nightmare. #sacroplasty

[Elara Caring @ElaraCaring]

A great way to #AddressYourStress is to connect with your community. Volunteer, take a class, grab coffee with a pal. Every social connection is a step toward better health and mental wellbeing.

#HintForHealth

[Patient Advocate @Stand4Patient]

This is WRONG: https://t.co/YLLQIyzUJW

[Patient Advocate @Stand4Patient]

@ImagingDoctor @benwhitemd @linemonkeymd @IR_Doctor @ChengaziMD @drochohan @dougbeall @JacobFlemingMD @Watts_IR @drmcumming @Flendovasc @OEISociety @_backtable @Aetna https://t.co/YLLQIyzUJW

[Patient Advocate @Stand4Patient]

@ImagingDoctor @benwhitemd @linemonkeymd @IR_Doctor @ChengaziMD @drochohan @dougbeall @JacobFlemingMD @Watts_IR @drmcumming @Flendovasc @OEISociety @_backtable Let’s add MOST insurance companies! And this doesn’t even begin to talk about how claims are processed under Medicare advantage. @Aetna

[Patient Advocate @Stand4Patient]

While this study is very promising. As a daughter of a #patient who had an adverse event due to a #sacroplasty. I would proceed with caution and ask #questions prior to having a sacroplasty. #FlatSharon would be alive without having this procedure.

[Douglas Beall @dougbeall]

Important milestone for #sacroplasty with the interim analysis of the 1st 102 pts in the registry showing dramatic improvements in pain and function. Thanks to @SIRspecialists for their support
@SeanTutton @WayneOlan @neuroradiology @ImagingDoctor
https://t.co/6lFzYVVDcX

[Patient Advocate @Stand4Patient]

Proud of these states! @LauraKellyKS when is Kansas going to get on board?

[Death with Dignity @DeathwDignity]

This year, Oregon and Vermont passed legislation to remove residency requirements from their #DeathwithDignity laws, and we could not be more excited. As a result, more terminally-ill Americans will have the option to die with dignity. Spread the word by sharing this post!

[Patient Advocate @Stand4Patient]

One more case of a #Sacroplasty going wrong due to not having standing films. #SameStory #DifferentPatient

[Gavin Nixon D.O. @gavinnixon7]

@atmghn We had a case here is Seattle where a sacroplasty was done in a similar fracture without standing films to reveal dynamic instability which resulted in cement extravasation into both lumbar and sacral foramen and subsequent open lumbosacral fixation.

[Wendell Potter @wendellpotter]

One of the deadliest practices of Big Insurance is requiring doctors to get approval in advance in many cases before proceeding with treating their patients. It’s called prior authorization.

Here are 3 examples of how lethal prior authorization can be:
https://t.co/LWTpBr7qBh

[Patient Advocate @Stand4Patient]

Nearly 1 in 4 U.S. hospitalized patients experience a harmful event, study finds https://t.co/8H5v2rnMG5 via @nbcnews

[Patient Advocate @Stand4Patient]

#FlatSharon should have had her 65th #birthday on Dec. 7. We miss her a ton. She gave us a #birthdaypresent this year, hoping it goes somewhere ❤️ #continue to push for #answers, #accountability and #change.

[Patient Advocate @Stand4Patient]

@thechaosmethod Unfortunately too many children lose their parents too young for reasons that could be avoided!

[Patient Advocate @Stand4Patient]

A hospital’s #PalliativeCare and Home #HospiceCare are not comparable. 1 is revenue for a “#business”. 1 is 100% covered under #Medicare. 1 provides NO #socialservices and 1 provides EVERYTHING at #home. THEY ARE NOT THE SAME! #FlatSharon received a bill for 1 and not the other.

[Patient Advocate @Stand4Patient]

@dougbeall The chart you are using as a reference point does not include the sacrum with amounts. Do you have the same philosophy there? Also is extravasation always an option?

[Patient Advocate @Stand4Patient]

The spiritual meaning of seeing a #bluejay and #cardinal together is #optimistic, and you can expect good luck and prosperity when you are there for their golden encounter. ❤️ while we miss #FlatSharon and our dad, we know they are around.

[Patient Advocate @Stand4Patient]

My biggest #takeaway from #FlatSharon’s 21 day hospital stay (10 more in rehab), find out your #patient’s #why. Offer to print a #picture of family so they can have that reminder. So a patient can continue to share their why. #PFAC #PatientFamilyEngagement #wortha1000words

[Patient Advocate @Stand4Patient]

The bottom post is how I want to #feel about where I am with my #grief journey. The top post is truly where I am. I #miss #flatSharon. It’s not #easy, grief isn’t a linear line of improvement.

[Patient Advocate @Stand4Patient]

I do not take for granted the #healthcare providers who invested in our family and you #flatSharon. They made the difference. The ones who #touched our hearts. They made this hell bearable. #bethedifference