@EM_RESUS Even more unpopular: #MECFS triggered by Covid is same as ME/CFS triggered by anything else and studying #LongCovid without studying ME/CFS will result in failure to find therapies for half of the LongCovid patients, some of which are the most severe.
5 years ago today my life changed dramatically overnight, 27.3.2020 I started to feel symptoms of sarscov2. Words can't express the devastation this virus has caused for myself and so many others, the daily suffering is immense, dreams gone, life gone, friends gone 💔 #LongCovid
@NeurologistMom PEM is the main symptom of my Long Covid and a requirement for ME/CFS diagnosis. I can feel just fine on one day, but, if I do just a little bit more than usuall, I get a hyperadenergic crash with a latency of 24+ hours: intense OI, malaise, loss of ability to do anything.
Imagine being horribly ill every day, year after year, and never being able to talk to a doctor about it because they don't know anything about it or don't believe you. This is the reality for as many as 1.2m people with #MyalgicEncephalomyelitis across the UK. #FundThePlan
@jonathanstea Apparently no medical training is required when they give oppinions on other peoples complex medical conditions. They have a right to their opinion! Funnily enough, those people are the first in line to see an actual doctor when they have a sore troat.
@subversivepsych Maybe you get two couches and call it your novel therspy☺️. The selling point is that both therapist and patients are rekaxed so they can acces their subconscious more easilly.