Stop ALD Foundation

The Stop ALD Foundation: Adrenoleukodystrophy (ALD) therapy development, awareness, & prevention. ALD was the disease highlighted in the film "Lorenzo

[ULF @UlfUnited]

Attention ALD Families: A Stanford Research Study on Vitamin D needs the input of parents or guardians of boys with ALD. This survey is essential to design a vitamin D study that is in line with the values and interests of ALD families. Survey: https://t.co/j93vT1qRvv

[Stop ALD Foundation @StopALD]

The @alexTLCsupport Weekend, 20-21 November -- Bringing together those affected by genetic leukodystrophy for a weekend of talk, support & fun! https://t.co/jNfpMlMI2u

[Dreamit Ventures @dreamit]

Is your startup's solution 10x better than the current alternative? Watch our latest #DreamitDose from @sbarsh for 5 ways to separate from the pack and beat the competition.👇 https://t.co/5MDGBkOJTB

[Stop ALD Foundation @StopALD]

@StephanKempNL @LDNBSAction @aidanslaw @ALDConnect @UlfUnited Thank you for making sure this important information was corrected @StephanKempNL!

[Stephan Kemp @StephanKempNL]

@LDNBSAction @StopALD @aidanslaw @ALDConnect @UlfUnited This is incorrect. >80% of women with ALD develop symptoms. They are not just carriers! For more, #OpenAccess publications: https://t.co/QLXEiDVAq8 (2019) and https://t.co/oBNtCnIVIh (2014) and/or visit: https://t.co/s76aRVZjPT

[Emily Williams @EmDashily]

Brian shares what life is like #becauseofgenetherapy @ALDConnect @StopALD #savetheboys

[Boston Children's @BostonChildrens]

Matthew, the ‘wee marvel’: One of the first #ALD gene therapy recipients: https://t.co/WYyRJ1hcjg #BecauseofGeneTherapy @StopALD

[Stop ALD Foundation @StopALD]

https://t.co/YeS63hcsYl

[Stop ALD Foundation @StopALD]

Learn more about the ALD Family Weekend taking place March 19-21, 2021! https://t.co/Gg0KRtW8Jq

[Stop ALD Foundation @StopALD]

Exciting topline results from a Phase 2/3 trial on a new treatment for adrenomyeloneuropathy (AMN) https://t.co/oBN8SjlNzr

[CheckRare @CheckRare]

Dr. Jörn-Sven Kühl, Department of Pediatric Oncology, Hematology and Hemostaseology at University Hospital Leipzig, discusses long-term results from Phase 2/3 Starbeam study and data from Phase 3 ALD-104 study
@StopALD
@bluebirdbio
Bluebird Bio
https://t.co/x6FTIF60Cl

[Brians Hope CT @BriansHopeCT]

@ALDConnect @StopALD @AldFamily @remember_girls @HuntersHopeFDN @aidanslaw @ALD_Raremark @RunforALD @EmDashily @alexTLCsupport It was a great day, lots of information and I felt a wonderful sense of community. What we all need in these times. Thank you @ALDConnect

[Stop ALD Foundation @StopALD]

Agreed. That’s why we helped drive this forward on a national level.

[Corey Lubkiwski @TicalCorey]

@StopALD @UtahDepOfHealth You need newborn screening! You need it. I know more than anybody else.

[CheckRare @CheckRare]

Dr. Jörn-Sven Kühl, Department of Pediatric Oncology, Hematology and Hemostaseology at University Hospital Leipzig, discusses long-term results from Phase 2/3 Starbeam study and data from Phase 3 ALD-104 study
@StopALD
@bluebirdbio
Bluebird Bio
https://t.co/x6FTIF60Cl

[ALDConnect @ALDConnect]

Register now to be part of the largest international conference focused solely on #adrenoleukodystrophy: https://t.co/B46QjoFAXE

FREE for Patients, Caregivers, Advocates, Physicians/Providers, Scientists, and Researchers. ($75 for Industry). Retweet to help us spread the word!

[Stop ALD Foundation @StopALD]

Great to see @UtahDepOfHealth now doing newborn screening for #adrenoleukodystropy #ald! https://t.co/6jftg5uIDE

[Grey Genetics @GreyGenetics]

#FactFriday – September is Newborn Screening Awareness Month. In 2016 X-linked Adrenoleukodystrophy was added to the recommended uniform screening panel for newborns. To learn more about this condition, check out these organizations: @StopALD @ALD_Raremark #gcchat #medtwitter

[P. Kenneth Burns @PKBNews]

If you happen to be on the boardwalk, I’ll be the guy in the blue shirt and New Jersey flag facemask. I am the South Jersey Repoeter after all; gotta rep the brand. @WHYYNews

[Stop ALD Foundation @StopALD]

Deadline extended to Aug 3, 2020!

[Stop ALD Foundation @StopALD]

Are you a patient or caregiver for someone with a rare disease? Take this survey by July 19 from
@EveryLifeOrg so they can help raise visibility of the cost of rare diseases. https://t.co/9VQeIv67Vi

[Stop ALD Foundation @StopALD]

Are you a patient or caregiver for someone with a rare disease? Take this survey by July 19 from
@EveryLifeOrg so they can help raise visibility of the cost of rare diseases. https://t.co/9VQeIv67Vi