RECOVER CF Study

Real World Clinical Outcomes with Novel Modulator Therapy in People with CF (RECOVER)

[my CF Hero 💙 @myCFHero]

Great to see more real world data being collected for those with #cysticfibrosis - if your young person with CF is about to start #Kaftrio - consider signing up for ‘RECOVER’ @StudyCf - https://t.co/d1JASwXzWm

[RECOVER CF Study @StudyCf]

As part of his PhD @PhysiologyChris presented some fascinating results of a novel LCI manoeuvre which is being used as part of the #RECOVER study. #ECFS2022

[RECOVER CF Study @StudyCf]

Friday 9th June 2022 saw two more presentations by some of those involved in #RECOVER. The adherence sub study preliminary data was presented at a fantastic afternoon poster session. Check out the poster at https://t.co/GMFw8ee7gf.

[RECOVER CF Study @StudyCf]

Some of the #RECOVER team from @CHIatCrumlin @TempleStreetHos and @CHIatTallaght took a breather during sessions to review the posters that were on show at the conference. Some fantastic research coming out of all areas in the field of CF. #ECFS2022 @ECFSConference

[RECOVER CF Study @StudyCf]

On Thurs 8th June, Prof Paul McNally presented an update of data coming from the #RECOVER study- focusing on the first year of data from the 12 and over participants. We're excited to see what comes next. #ECFS2022

[RECOVER CF Study @StudyCf]

On Wed 8th June, some of our #RECOVER team attended the ECFS-CTN clinical coordinator training programme and workshop. A special thank you to the ECFS-CTN team for having us and for creating such an engaging workshop.

[RECOVER CF Study @StudyCf]

A number of the RECOVER study team descended on Rotterdam last week to attend #ECFS2022. It was a fantastic showcase of research that is ongoing in the world of CF and a wonderful opportunity to meet face to face once again.

[RECOVER CF Study @StudyCf]

The RECOVER team would like to take a moment to acknowledge the incredible work being carried out at many of the RECOVER clinical sites rolling out the #COVID19vaccine to hospital staff. We continue to work together to keep our team and our participants safe. #RECOVERCF

[RECOVER CF Study @StudyCf]

RECOVER Update: We're following the guidelines set down by our local sites and will continue to do what is best for our RECOVER participants. We hope we get to see you all in person soon and look forward to continuing following your #Kaftrio journey #RECOVERCF

[RECOVER CF Study @StudyCf]

All of the team @StudyCf would like to wish you all a joyous and Merry Christmas. We look forward to seeing you all soon for upcoming visits! #MerryChristmas #RECOVERCF #Healthresearchmatters

[RECOVER CF Study @StudyCf]

*Fun Fact!* Many paediatric patients refer to their MBW test as the “Netflix test” as the study team allow them to watch their favourite programmes while measuring their spontaneous breathing. This helps relax the patient!

[RECOVER CF Study @StudyCf]

Some of the RECOVER team are getting in the spirit for #ChristmasJumperDay4CF. Have you dontated yet? Head over to @cf_ireland to see how you can help!🎄🎅

[RECOVER CF Study @StudyCf]

Patient reported health related quality of life indices are a vital tool in developing new tests and treatments for #CF. At @StudyCf, we use the Cystic Fibrosis Questionnaire Revised(#CFQ-R) that when completed by the participant measures respiratory symptoms and treatment burden

[RECOVER CF Study @StudyCf]

RECOVER samples will be used in research across the world to identify the effects of #KAFTRIO on gut microbiome, inflammation CFLD and more. https://t.co/C6RkCNscPD. #RECOVERCF #healthresearchmatters

[RECOVER CF Study @StudyCf]

*ROLL CALL* Did you know RECOVER is an international study with collaborators all over the world? RECOVER wouldn’t be able to happen without our diverse collaborators that are spread far and wide. https://t.co/C6RkCNscPD

[RECOVER CF Study @StudyCf]

Meet the #RBH team here, https://t.co/dqDiPJ95zm. #RECOVERCF #healthresearchmatters

[RECOVER CF Study @StudyCf]

*ROLL CALL* Have you had your #MBW test yet? The fantastic team at The Royal Brompton, London @RBandH are not only recruiting their own #RECOVER participants but are collaborating on the study and overreading all LCI results for @RECOVERCF. https://t.co/dqDiPJ95zm

[RECOVER CF Study @StudyCf]

*ROLL CALL* #RECOVER is a real world study running across Ireland and the UK. We’re delighted to introduce you all to our team in Belfast at #BelfastCityHospital and #RoyalBelfastHospitalforSickChildren. https://t.co/cXAAolTE5E. #RECOVERCF #healthresearchmatters

[RECOVER CF Study @StudyCf]

*ROLL CALL* Next Up! Our fantastic team at University Hospital Limerick @ULHospitals Our UL site saw the first RECOVER participants recruited in early September, https://t.co/COB8Yav44I. #RECOVERCF #healthresearchmatters

[RECOVER CF Study @StudyCf]

*ROLL CALL* RECOVER will follow both children and adults as they start on #Kaftrio. Our wonderful team at St Vincents University Hospital #SVUH are working with our adult participants in Dublin. Meet them here, https://t.co/lIBw95buCG. #RECOVERCF #healthresearchmatters