. Subhash kumar dhiman

🏥 Founder – Him Rare Care Foundation
🧬 Rare Disease Advocate
🌐 Policy | Health | Humanity
समाज सेवा | पॉलिसी | हेल्थ एडवोकेसी

[. Subhash kumar dhiman @Subhash44690696]

@OfficeOf_MM @mansukhmandviya Respected
sir @mansukhmandviya ji👏
today 2 children of spinal muscular atrophy are no more among us. Parents are unable to save their children due to expensive medicines, will the government save SMA children?
#SpinalMuscularAtrophy
#WHO75 #HealthForAll 🙏

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Meet Dr. Abhinand from Chennai — an SMA Type 2 warrior who turned challenges into milestones
From living with SMA to earning a PhD in Bioinformatics & becoming an Assistant Professor, his journey proves strength isn’t in steps, but in courage. 💪

#SMAAwarenessMonth #LifeWithSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

@IndiaCoastGuard You've truly demonstrated what it means 2 serve not only at sea but also on land — standing in solidarity with a cause that touches countless lives. You've gone far beyond a symbolic gesture 👍👏🙏

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Virtual #Run4SMA @curesmaindia extends its deepest gratitude 2 d @IndiaCoastGuard 4 deir remarkable commitment in championing d cause of Spinal Muscular Atrophy #SMAAwareness by holding Virtual #Run4SMA across LxB of India bustling cities 2 d most remote corners of our nation🙏.

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Many thanks Sir @abandopa for understanding the patients n parents situation n highlighting it. 🙏. @curesmaindia has demanded public apology from him n considering other options as well. @abhijitmajumder

[. Subhash kumar dhiman @Subhash44690696]

If some wrong messages have come in the tweet, I apologize for him

[. Subhash kumar dhiman @Subhash44690696]

I have been taking medicines for 1 month and my mental condition is still not well, so I want to take a break from social media. Due to some reason my condition is not well, I do not want to disclose my problem. As soon as my condition improves, I will come back on social media.

[. Subhash kumar dhiman @Subhash44690696]

As soon as I get well, I will start my work again. The fight for medicine and the fight for children.

[Alpana Sharma @alpanaS16]

Many thanks @vinodkumarmenon @mid_day 4 supportin rare disease community we @curesmaindia hv been writin to @nsitharaman @FinMinIndia 4 GST exemption on #Risdiplam lifesavin drug4 SMA in India @narendramodi @JPNadda @MoHFW_INDIA @PMOIndia #BattleAgainstSMA
https://t.co/NSlYrpy9oP

[Amitabha Bandyopadhy @abandopa]

@curesmaindia

[Dr. Ashwini Kumar 🇮🇳 @aktilaiyan]

For the first time, Spinal Muscular Atrophy treated in utero.

https://t.co/DnZUJM96u4

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Our #SMArtWarrior Mahima spoke at Google’s Awareness Session . She shared how crowdfunding gave her access to Risdiplam, halting disease progression & giving her strength to attend online classes. She urges us to raise awareness & support SMA warriors. #SMAAwareness #HopeForSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Yr efforts've brought visibility 2 SMA n ignited conversations dat lead 2 life changing action. @curesmaindia salutes d @IndiaCoastGuard 4 being true partners in dis mission. 2gether, v run, raise awareness, n move 2wards a future whre no child’s potential is limited by SMA👍🙏

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Meet Rudraunsh, a cheerful SMA warrior! 🌟 His parents are crowdfunding for Zolgensma, a life-changing treatment. Let's spread awareness & support this amazing family! 💕 #SMAAwareness #CrowdfundingForLife #SMAWarrior

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Akriti's journey with SMA Type 1 is truly inspiring! Diagnosed at 4 months,started Risdiplam at 7 months now sits without support, paints, sings rhymes & dreams big! Let's keep spreading awareness and hope! 💕 #CureSMAIndia #SMAAwareness #Risdiplam #HopeInMedicine #RareButStrong

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Meet Deeksha, 15 & full of dreams! 🌟 Pilot? Too risky. Doctor? Too many years! Soldier? Too dangerous. Model? Too many veggies! 😅 SMA hasn't stopped her from dreaming big. Let's amplify voices like hers this #SMAAwarenessMonth! 💜 #LifeWithSMA #SMAWarrior #DreamBig

[. Subhash kumar dhiman @Subhash44690696]

Request to establish a “Centre of Excellence” for Rare Diseases at AIIMS, Bilaspur, Himachal Pradesh

Registration Number DHLTH/E/2025/0021858

[. Subhash kumar dhiman @Subhash44690696]

Request to establish a “Centre of Excellence” for Rare Diseases at AIIMS, Bilaspur, Himachal Pradesh

Registration Number DHLTH/E/2025/0021858

[. Subhash kumar dhiman @Subhash44690696]

मा.श्री@visraneजी👏
यह जानकर बहुत खुशी हुई की गोवा की राज्य सरकार के द्वारा स्पाइनल मस्कुलर एट्रॉफी पीड़ित मरीजों को निशुल्क इलाज देने वाला पहला राज्य बना बहुत-बहुत शुभकामनाएं
मा.श्री@SukhuSukhvinderजी👏
हिमाचल के #SMA पीड़ितों को भी निशुल्क इलाज दिया जाए 🙏

[. Subhash kumar dhiman @Subhash44690696]

@curesmaindia @MoHFW_INDIA @Swasticharan @NITIAayog स्पाइनल मस्कुलर एट्रॉफी जानलेवा प्रगतिशील बीमारी का भारत में शोध शुरू होगा @PMOIndia @MoHFW_INDIA @ICMRDELHI , @IITKanpur कानपुर की शोध टीम को मेरी तरफ से शुभकामनाएं (आत्मनिर्भर भारत) @curesmaindia समस्त परिवार को शुभकामनाएं 🙏