Together for HIE (T4HIE)

We are dedicated to raising awareness, strengthening health systems, and advancing support, research, and education for neonatal and pediatric acquired HIE.

[Together for HIE (T4HIE) @T4HIE]

Hypoxic-Ischemic Encephalopathy (HIE) is a type of brain injury caused by a reduction in supply of oxygen or blood flow to the brain.

Learn more at https://t.co/TJs5eYqD8M

#HIEAwareness #TogetherForHIE #HypoxicIschemicEncephalopathy #EmpoweredSupportedConnected

[Together for HIE (T4HIE) @T4HIE]

The #NICU journey can leave parents carrying emotions they never expected: guilt, fear, exhaustion, uncertainty, and grief.

To every parent and caregiver navigating life in the NICU, these notes are for you.

#HIE #TogetherforHIE #NICUAwareness #NICU

[Together for HIE (T4HIE) @T4HIE]

Today, we highlight some myths and facts around Hypoxic-Ischemic Encephalopathy (HIE). If your organization would like to partner with us on research, awareness creation, health system strengthening and family support, we'd like to hear from you.

#HIEAwareness #TogetherforHIE

[Together for HIE (T4HIE) @T4HIE]

Sub-Saharan Africa bears the highest global burden of #HIE, affecting 14.9 per 1,000 live births. In Kenya, HIE accounts for over 30% of all neonatal deaths.

@T4HIE we advocate for health systems strengthening to ensure every child receives the care they deserve.

[Together for HIE (T4HIE) @T4HIE]

At Together for HIE, our approach focuses on three areas to ensure families affected by Hypoxic Ischemic Encephalopathy (#HIE) are supported:

🔹 Health Systems Strengthening
🔹 Family & Caregiver Support
🔹 Awareness Creation

Learn more: https://t.co/TJs5eYraYk

[Together for HIE (T4HIE) @T4HIE]

Did you know? In Kenya, birth asphyxia is a leading cause of NICU admissions. It happens when a baby lacks sufficient oxygen around birth, which can lead to Hypoxic-Ischemic Encephalopathy (#HIE).

#HIE #NICU #NICUAwareness #TogetherforHIE

[Together for HIE (T4HIE) @T4HIE]

When your baby is in the NICU with a diagnosis of #HIE, seeing monitors and wires attached to your baby’s head can be scary.

One of the monitoring tools used in HIE care is an EEG (Electroencephalogram). Swipe through to learn more.

#EEG #NICU

[Hope for HIE ☀️ @HopeforHIE]

September is #NICUawarenessmonth!

Read the blog post ⬇️
🔗 https://t.co/D23L3UHYMQ

#HopeforHIE #NICU #NewbornBrains #HypoxicIschemicEncephalopathy #FullTermNICU #NICUawareness #Neonatology #NewbornBrains #NICUsupport #NewbornBrainCooling

[Together for HIE (T4HIE) @T4HIE]

Navigating a NICU stay after a Hypoxic-Ischemic Encephalopathy (HIE) diagnosis can feel completely overwhelming. Swipe to learn more on what you can ask the NICU care team as you advocate for your child.

#NICUAwareness #NICU #NICUJourney #HIE #TogetherForHIE #HIEAwareness

[Together for HIE (T4HIE) @T4HIE]

Children who experience Hypoxic-Ischemic Encephalopathy (HIE) may develop secondary microcephaly, where head growth slows down after birth due to brain injury.

Swipe to learn more.

#HIE #HIEAwareness #TogetherforHIE

[Together for HIE (T4HIE) @T4HIE]

Hearing "wait and see" after an HIE diagnosis can be hard for parents. @HopeforHIE breaks down actionable ways healthcare teams can communicate to families with clarity and compassion.

Read the primer for clinicians here: https://t.co/rRId1fDBoU
#TogetherforHIE #HopeforHIE

[Together for HIE (T4HIE) @T4HIE]

@EpilepsyASU: https://t.co/xJaVrOwpws
@PerkinsVision: https://t.co/PC5RIe2TqP
Little Bear Sees (CVI initial diagnosis information): https://t.co/rRyk1NraWF
Hands and Voices (Deaf and Hard-of-Hearing): https://t.co/IbhWYX4BuB
@RareEpilepsy (IS, LGS, ESES): https://t.co/kCO9zxEdPQ

[Together for HIE (T4HIE) @T4HIE]

Families facing #HIE need trusted resources to navigate their unique journey. Explore resources on:
@HopeforHIE: https://t.co/KrDRICcfGP
@CourageousCPN: https://t.co/bx48GukzYe
@Child_Neurology: https://t.co/godeWH4sKS
@CPRN_org: https://t.co/UlBgmcgcuh

[Together for HIE (T4HIE) @T4HIE]

Children with Hypoxic Ischemic Encephalopathy (HIE) may experience developmental delays, learning difficulties and emotional struggles. Early intervention programs, therapy, and mental health support can improve their outcomes.

#TogetherforHIE #HIEMentalhealth #Moregooddays

[Together for HIE (T4HIE) @T4HIE]

🌸Today we hold space for the mother who feels alone, the child fighting to take their next step, the family wondering if anyone understands.

You are seen, you are valued, and you are never alone.

#TogetherForHIE #HIEAwareness #HIEMentalHeath #moregooddays

[Together for HIE (T4HIE) @T4HIE]

Happy Mother’s Day to all incredible mums raising children with Hypoxic Ischemic Encephalopathy (HIE). Your strength, grace and resilience are unmatched and we celebrate you today and always.

#TogetherforHIE #Mothersday #HIE #Resilience

[Together for HIE (T4HIE) @T4HIE]

Today is another day to demystify Hypoxic Ischemic Encephalopathy (HIE) myths and share the facts. Together, we spread awareness, empower families, and inspire hope.

#TogetherforHIE #HIEAwareness #HIEMythsvsFacts

[Together for HIE (T4HIE) @T4HIE]

"Hope is being able to see that there is light despite all of the darkness." – Desmond Tutu. For families affected by Hypoxic Ischemic Encephalopathy (HIE), hope is celebrating every milestone and finding joy in the journey despite the challenges.

#TogetherforHIE #HIE

[Together for HIE (T4HIE) @T4HIE]

Thank you for joining us for the #HIEAwarenessMonth. Together, we have shared stories, learned facts, and held onto hope. Let us keep moving forward and advocating for better outcomes.

#HIEAwarenessMonth #HoldontoHope #TogetherforHIE #HopeforHIE

[Together for HIE (T4HIE) @T4HIE]

Hypoxic Ischemic Encephalopathy (HIE) advocacy does not have to be loud to be powerful. Start small by sharing your story with a friend or speak up for your child's needs in the hospital. Your voice matters.
#HIEAwarenessMonth #HoldontoHope #TogetherforHIE #HopeforHIE