TYA Cancer Research PSP

A research priority setting exercise with professionals, young people, and the public. What are the unknown research questions for young people with cancer?

[Lorna A Fern @LornaAFern]

Great to see this @hamboandlimbo . The reduction of late effects was No.2 in the Top 10 research priorities for TYA @TYAPSP @ProfFaithG @AldissSusie @drbobphillips @TeenageCancer #AYAcancer

[TYA Cancer Research PSP @TYAPSP]

@SarahBrand21 @GPriday @nuhpatientgroup @RCNResearchSoc @jmenzies1 Ping @rgfeltbower

[Dr Sarah Brand RN PhD @SarahBrand21]

Anyone have a teenage & young adult research group running at the moment? Would love to hear about it if you do!! @GPriday @nuhpatientgroup @RCNResearchSoc @jmenzies1

[Susie Aldiss @AldissSusie]

Out today! Report on young peoples experiences of being @LindAlliance @TYAPSP Steering Group members @KristinaStaley2
Key finding: positive impact of involvement on mental health #MentalHealthAwarenessWeek
With recommendations for PSPs involving young ppl
https://t.co/1aucGeV6Cq

[Teenagers and Young Adults with Cancer @TYACancerPro]

Our next abstract is being presented by @AldissSusie and is about analysing 'out of scope' questions identified in the @LindAlliance TYA Research Priority Setting Partnerships in order to tell the whole story of TYA experience #TYAC2019

[Lorna A Fern @LornaAFern]

representation of the @tyapsp original question bank! @drbobphillips you can read sorting and final questions https://t.co/RRMnOAjp8m @ProfFaithG @AldissSusie #SIOP2019

[Amy Callaghan @AmyCallaghanSNP]

Had an amazing day presenting our paper on teenage & young adult cancer research priorities to potential funders w/ @LornaAFern & @DemiMcgeachy - so much enthusiasm for the research going forward.

So proud of this work & hopeful of the progress that can be made in teenage cancer

[Susie Aldiss @AldissSusie]

Timely that this new report on what happens after @LindAlliance priority setting exercises is out just as we bring together funders today to discuss taking forward the @TYAPSP priorities #MoreThanATop10

@ProfFaithG @LornaAFern @drbobphillips @NCRI_partners

[Lorna A Fern @LornaAFern]

Fabulous to hear it has been useful for you as a funder @skohlhaas we are bringing together relevant @NCRI_partners tomorrow to discuss our @TYAPSP priorities and mobilising our TYA Top 10 @drbobphillips @ProfFaithG @AldissSusie @AmyCallaghanSNP

[Lorna A Fern @LornaAFern]

First day back and off to @GermCell2019 excited to be presenting patient views on replacing CT Scans with new circulating MicroRNA blood Test @tyapsp No. 7 #LWBC No.1 @Michelle_Barts @shiv_smith @CRUKCamPaeds #GCT19

[Dr Angela Polanco @angelapolanco16]

TYA James Lind out of scope questions presented by @AldissSusie shows survivors need good communication, information and honest discussions about long term effects and fertility impact #CCC19

[Ashley Ball-Gamble @ashleysgamble]

Great talk from @AldissSusie about the ‘out of scope’ questions from @TYAPSP - great to hear nothing from this study ‘wasted’ but some important issues identified taken forward outside of the PSP

[Susie Aldiss @AldissSusie]

Looking forward to speaking at the @ChildCancerConf on Friday, sharing the important issues raised in the 'out of scope' questions from our research priority setting exercise for young people's cancer
@LindAlliance @TYAPSP @CCLG_UK @AngelbethanyP

[TYA Cancer Research PSP @TYAPSP]

At the RCN International Nursing Research Conference today? #Research2019
Come & hear @ProfFaithG presenting our @LindAlliance research priority setting exercise for young people's cancer
3.55-4.20pm, Room 3001
@drbobphillips @LornaAFern @AldissSusie @theRCN @RCNResearchSoc

[TYA Cancer Research PSP @TYAPSP]

Front page of @clydebankpost! @AmyCallaghanSNP from our @TYAPSP steering group shares why our top @LindAlliance priority - psychological support for young people during & after treatment is so important.
Read it here: https://t.co/ErQg6NMcxh
@TeenageCancer @CLIC_Sargent @CwC_UK

[Teenage Cancer Trust @TeenageCancer]

We're proud to have partnered with @LindAlliance, @CLIC_Sargent and @CwC_UK on this brand new report which identifies where research is urgently needed to improve experiences for young people with cancer.

Find out more: https://t.co/21sYOrhbQK

[Amy Callaghan @AmyCallaghanSNP]

Delighted @ScotNational have covered our paper and in particular our upmost research priority of psychological support for teenage cancer patients both during & after treatment 👏🏼

@TYAPSP

https://t.co/00P4FVdWv4

[Young Lives vs Cancer @YLvsCancer]

We are proud to support @LindAlliance and the paper on research priorities for young cancer patients, published in the @bmj_latest today. Top priorities include psychological support and reducing the effects of treatment. Read more: https://t.co/KvX5x1EG5x

[TYA Cancer Research PSP @TYAPSP]

Out today - our paper on @LindAlliance priorities for young people's cancer. What research questions do young people, carers and professionals want answered?
Top priorities: psychological support, reducing effects of treatment & trials access.
Read it here https://t.co/8S7jLXEedO

[Lorna A Fern @LornaAFern]

The @tyapsp Top 10 research priorities don’t seem to be unique to UK. International data highlighting need for psychological interventions to support young people during and after treatment @ProfFaithG @drbobphillips @AldissSusie