Hi @DrPatrick ! I am following up trying to advocate for my husband. He was given a year to live 10 years ago, at age 40 with 2 young kids. He is currently recovering from brain surgery #5, walking 2-5 miles per day, doing well! However, because he has 2 different primary brain tumors - oligodendroglioma grade 3 (which is the highest grade for oligo), and AA3 anaplastic astrocytoma grade 3, we really think getting him into your clinical trial will help us help him avoid having other future brain surgeries.
I've been following up with the good folks in El Segundo - in person, by phone and email. Please help our family!
Attached is a picture of Aaron prepping for Surgery #5, 7 weeks ago.
Thank you,
Jennifer Robinson
#oligodendroglioma
#AA3
#braincancer
#teamaaronrobinson
#ANKTIVA
$ibrx
@ImmunityBio@LoriMills4CA42@POTUS@realDonaldTrump@SecKennedy@RobertKennedyJr@US_FDA@TeamAaronR@bullishbruk
๐๐ค Grateful for a God who is near and a community that shows up.
Thank you @christmasranchtf & @conejobluestarmoms for the Christmas tree. โจ
#TeamAaronRobinson
๐โค๏ธ Merry Christmas Team Aaron! I owe you an update on how heโs doing, but just wanted to tell you how thankful we are for you. We wouldnโt be able to celebrate another year with him if it werenโt for you. We love you!!! @TeamAaronR#beatbraincancer
๐ LAST DAY!!! Radiotherapy session #30 - โ He is tired, hair on almost 1/2 of his head is gone, but he is done!!! We are exhausted & spent.
Next steps is rest for a few weeks, then a baseline scan & follow ups.
We have much to be Thankful for!!! @TeamAaronR#beatbraincancer
๐ Half Way Done!!!
We are so thankful that this weekend marks the halfway point of Aaronโs Chemo & Radiation treatments - 3 weeks down, 3 to go! @TeamAaronR#teamaaronrobinson
Aaron & I today - had his Hickman Catheter replaced - this will be his 3rd since starting on the #Burzynski Treatments last year for #beatingbraincancer
Please Give - Thank you!
https://t.co/SnbAl1H1jZ
Venmo @Jennifer-Robinson-326
@teamaaronrobinson #beatbraincancer
He has been fighting one of the toughest battles, almost 6 years longer than โexpertsโ said heโd make it. He remains plugged into the Lord and HIS Wisdom and strength. I am so thankful to be married to this brave man. I love you, Aaron.
I am so thankful for this man - my best friend, husband, partner, father of my children, soul mate. A Small Business Owner, Navy Veteran, Entrepreneur, Employer, son, brother, nephew, father, friend. He is a warrior.
We need a big miracle quickly - to bring in over $10,000 to help pay for Aaronโs medical costs this month. Can you help & bring in 3 donors? Any amount helps - large or small!!!
https://t.co/SnbAl1H1jZ
or
Venmo @ Jennifer-Robinson-326
#TeamAaronRobinson#BeatBrainCancer
Weโre @ Cedars-Sinai Aaronโs 2nd Avastin. Thankful for the local oncologists here, as well as the guidance from Dr. Burzynski & team out of Houston. Please continue to pray for healing from stage 3/4 brain cancer, & wisdom for us in paying his continued expensive medical bills.