Nico’s Mama

Mama to an amazing little boy with x linked myotubular myopathy

[Nico’s Mama @TeamNico2018]

Hey @UPS one of your drivers tried to steal some packages off my front porch. I’m trying to get through to your customer service, but I’m getting no where.

[President Biden Archived @POTUS46Archive]

The time to move forward is now.

[President Biden Archived @POTUS46Archive]

Wearing masks isn't a partisan issue — it's a patriotic act that can save countless lives. That's why I signed an executive order today issuing a mask mandate on federal property. It's time to mask up, America.

[Nico’s Mama @TeamNico2018]

While I can’t find the words to explain why, The littlest angel 💙 #GarthandTrishaLIVE

[Nico’s Mama @TeamNico2018]

@NHPubHealth My husband and I are primary caregivers for our severely disabled, ventilator dependent two year old. As his caregivers, what group would we, and families like ours, fall in the NH vaccination plan for COVID-19?

[Nico’s Mama @TeamNico2018]

@GovChrisSununu My husband and I are primary caregivers for our severely disabled, ventilator dependent two year old. As his caregivers, what group would we, and families like ours, fall in the NH vaccination plan for COVID-19?

[Joshua Frase Fnd. @TheJoshuaCause]

A story of perseverance and teamwork ! It was an honor and a privilege to work with the Tanner Pharma Group and ZNM-Zusammen Stark, to allow this family in Equator the ability to bring Wilson home and spare him the life in an institution. https://t.co/I5tjwVUdf2 |*

[Red Sox @RedSox]

Today and every day, we honor and thank the brave men and women who have served our country.

#VeteransDay

[Nico’s Mama @TeamNico2018]

There are moments from my life I associate with certain people, like for 9/11 it’s Peter Jennings, well for the 2020 elections it’s @JohnKingCNN and his analysis that kept me calm, informed, and hopeful. But also, I miss the #magicwall #imadatageek

[Nico’s Mama @TeamNico2018]

Suddenly the world feels so much more inclusive. 💙 #hesaiddisability #hope #potential #BidenHarris2020

[Nico’s Mama @TeamNico2018]

When your severely disabled toddler starts clapping when he hears the cheers on tv from NYC and DC for @KamalaHarris @JoeBiden it just makes this moment all that much sweeter. #hope

[Joe Biden @JoeBiden]

America, I’m honored that you have chosen me to lead our great country.

The work ahead of us will be hard, but I promise you this: I will be a President for all Americans — whether you voted for me or not.

I will keep the faith that you have placed in me.

[John King @JohnKingCNN]

#Biden wins

[Nico’s Mama @TeamNico2018]

We are authorized to have 16 hours of coverage a day, and have had none since Nico came home two years ago. We actually have zero help at all and it is just Nico’s daddy and myself. NH really needs to do better for these children with critical conditions. #xlmtm #nhlacksservices

[Nico’s Mama @TeamNico2018]

As @GovChrisSununu and @SenatorShaheen make the mad dash to the election, I hope they both take a moment to reflect on the families with special needs who are hurting in NH and what you can do, if re-elected, by policy changes, awareness, or other acts, to help close the gap.

[Nico’s Mama @TeamNico2018]

My 2 yo son has a rare genetic disorder, he lives on a ventilator with a tracheostomy and requires 24/7 critical care. Unfortunately, we have been continuously let down by the lack of services in NH. Mainly the lack of available qualified home care nurses. #xlmtm