Next Wednesday, Vanessa Vogel-Farley, @RARE_X_ R&D Strategy Lead, will be speaking on the panel “Building a Foundation for Success in Clinical Research" at 1:20-2:00pm ET at the Global Genes 2021 RARE Drug Development Symposium. Sign-up today! #RDDS https://t.co/hx2vQDQcal
We’re committed to uniting patient communities in their quest for #RareDisease cures. That’s why we’re expanding the #RareAsOne Network with a new call for applications.
Apply now: https://t.co/lq0dg9I2R8
The @broadinstitute has a successful track record of partnering with non-profit patient advocacy organizations through both research and open-source technology development initiatives. This partnership with @RARE_X_ will accelerate #raredisease research. https://t.co/sy6uUUeQEu
Join @ChanZuckerberg’s #RareAsOne Network with us!
New @CZIScience RFA will support patient-led #RareDisease organizations, with a key focus on improving diagnosis and diversity within their disease areas. Apply now! https://t.co/ytfUG3lhgH
Software engineer bets on technology to help speed rare disease treatments. @RARE_X_ is proud to collaborate with @OpenTreatments to decentralize gene therapy for rare genetic diseases by empowering patient foundations: https://t.co/r8o4fnmFsf #rRareDisease#PatientData
Patients and their loved ones are leading the fight against #RareDisease. 💪🏽💪🏾💪🏻🦾
@CZIScience is expanding the #RareAsOne Network to support patient-driven organizations that are improving diagnosis and diversity within their disease areas. Apply now! https://t.co/ytfUG3lhgH
Excited to speak with @eperlste and @TeneaWashington about race and rare disease in 3 hours! If you’ve been meaning to join Clubhouse, DM me for an invite.
Travere Therapeutics recognizes Rare Disease Day 2021 and the importance of working together to innovate and address healthcare disparities in rare disease. Read the press release: https://t.co/vOOmTjpjw2 #RareDiseaseDay#InRareForLife
Sen. Mitch McConnell: "We have a criminal justice system in this country. We have civil litigation and former presidents are not immune from being accountable by either one."
Proposals are being accepted for virtual community-based micro-grant programs that promotes community engagement efforts with individuals with disabilities in Birmingham, AL. This program will award grants up to $20,000. Learn more and apply at https://t.co/lXmFJLXgXc
Happy to discuss community engagement and public health topics with @munchydaplug, @WhitneyJHNoel, and others at the 2020 Research in Communities of Color Virtual Summit on Oct. 19th-21st hosted by @PublicHealthRC. Save your spot today by registering at https://t.co/70zTvMObNJ.
UAB has set an enrollment record for the fifth consecutive year, and reached a new milestone in retention rates for first-time, full-time students. https://t.co/R64eZNkDP8
Thanks @RenataSNYC for inviting me to participate in the first @HlthEquityInit Community Leader's Forum-COVID-19: Emerging Community Needs and Policy Solution facilitated by @TLewisLee. Find the full report and call to action here: https://t.co/50zph7TYDg
Every time I walk in my class, I'm reminded of how important it is to have Black professors. It makes a difference for students of color & the overall student experience. I remember having one Black professor. Thankful to God for the privilege to change lives. It's personal 4 me!