Campaign For My Brain

Not for profit company. Making changes for those with complex neurological conditions. views are my own

[Campaign For My Brain @Terranova_CFMB]

@MariaWAST Mate. 100:100….. you’re a amaizng!!

[Campaign For My Brain @Terranova_CFMB]

@MariaWAST 99/100!!! Wow!!!! Well done mate xx

[Campaign For My Brain @Terranova_CFMB]

@MariaWAST I’ve been audited before it’s really easy ! If you want a hand let me know! You’d be fine with your masters alone mate x

[Campaign For My Brain @Terranova_CFMB]

@HDA_tweeting I will write to my MP this weekend regarding NICE, it’s something I’ve been pushing for a long time as a paramedic who relies on guidelines to practice effectively. HD is a complex debilitating disease, patients need equality in treatment. @AlexChalkChelt

[Campaign For My Brain @Terranova_CFMB]

@AlexChalkChelt I’m going to write for your support for NICE guidelines for Huntingtons. HD patients have such variability in access to services and often end up in crisis point which costs the NHS and social care more to unpick… I’m local and will get in touch!

[Huntington's Disease Association @HDA_tweeting]

We're delighted to have the Mindful Of Huntington's campaign featured in todays Independent. Thank you to Daniel for telling his story! You can read more here: https://t.co/VbQRUYkN4c

[Campaign For My Brain @Terranova_CFMB]

@HDA_tweeting I’d be happy to! I’m gene negative but care for my mum who is in advanced stages

[Campaign For My Brain @Terranova_CFMB]

@HowlettGemma And have the beautiful boys 😍

[Campaign For My Brain @Terranova_CFMB]

Most of us probably function better with routine. For a person with HD, it’s essential, and can make daily life easier

[Huntington's Disease Association @HDA_tweeting]

This week, you asked to hear about how a routine can help people with Huntington's disease?

Firstly, it can help reassure someone who is struggling by providing a framework of predictability. A person may be more comfortable if they know what to expect on a day-to-day basis.

[Campaign For My Brain @Terranova_CFMB]

Incredible work, the dedication to do a marathon! Well done

[J Dobbie @DobbieJoanne]

Well done to the first #TeamHDA runners to cross the finish line @LondonMarathon

[Campaign For My Brain @Terranova_CFMB]

Integrated working is essential to personalised care! It’s important for a person’s care to be coordinated with all the right people contributing to get the best outcome ! Proud to be part of IMPACT multi disciplinary meetings.

[South Cotswold Frailty Service (SCFS) @FrailtyScfs]

South Cotswold Frailty Service NEW IMPACT MDT
Bringing services together to work collectively and effectively.
@One_Glos
@NHSGlos
@GlosHealthNHS
#workingtogether #samegoals

[Charlie Nye @charlie_nye]

Yesterday at work. Scenes I never saw 5 years ago. Now business as usual. The NHS is under huge pressure. Please @SteveBarclay Sort out social care #carersnotcuts, retain staff #FullPayRestoration for all, and focus on Prevention. Patients deserve better.

[Campaign For My Brain @Terranova_CFMB]

I love the work @One_Glos is doing for personalised care. If everyone had one of these, they would be seen and treated for who they are not what their illness brings! This would be incredible for the Huntingtons community

[MND Association @mndassoc]

Today, with @MNDoddie5 and @MNDScotland, we've launched a petition asking @GOVUK to invest £50 million over 5 years into research for motor neurone disease (#MND).

Please add your name 👇 https://t.co/jjeXwCbJkf

Together, we're #United2EndMND!

[Denbighshire Leisure Active Communities @DLLActive]

Grŵp C / Group C

Ysgol Betws GG vs Ysgol Pant Pastynog

@Ysgolbetwsgg @pantpastynog

#HamddenSirDdinbych #DenbighshireLeisure #BOTS

[Faye Hatcher @fayehatcher]

Saturday Brunch at 10am @BBCGlos - Cheltenham paramedic Emma Terranova Davis @CampaignForMyB1 talks about writing books for kids during Covid 🌈 From the makers of @chalfest a new food & drink filled festival for Stroud 🥘 and we continue our series with @NthCotsFoodBank 🍏

[Lisa Smart’s Huntington’s Support Trust @lisasmarthst]

📚 NEW CHILDREN’S BOOK ALERT from @CampaignForMyB1 launching on 24th August on Amazon and it’s all about HD.... we cannot wait for this 💓
.
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#childrensbooks #childrensbook #hd #huntingtonsdisease… https://t.co/468Q5C3t6P

[Huntington's Disease Association @HDA_tweeting]

We're delighted to share @CampaignForMyB1's new book that aims to help children understand #HuntingtonsDisease in a simple & sensitive way. Discover 'Harry needs a hug: A story for children learning to deal with Huntington’s Disease' below! https://t.co/QVCj51YS42

[Mik Scarlet @MikScarlet]

A key issue around Disability is a lack of cultural historic knowledge. I was born disabled in 1965 & have seen society change, for the better & worse.
The Blue Badge renewal is a perfect example of worse. Too often as provision is expanded, accessing it is made harder.

[Campaign For My Brain @Terranova_CFMB]

@valtech_public

[Campaign For My Brain @Terranova_CFMB]

Do you have a #bluebadge OR care for someone who does FILL OUT THE SURVEY from this link:
https://t.co/jEy1F7J0tC We have been contacted by a company assisting the government in making changes.Permanent incurable disabilities shouldn’t need a renewal #DisabilityRight

[Campaign For My Brain @Terranova_CFMB]

@MikScarlet here you go 😀