Tess Ryan

Biripi, she/her. Chronically ill and partly immobile. MECFS/Dysautonomia survivor. Tired

[Tess Ryan @TessRyan1]

I'm here yet again reminding people that I have not been president of ACRAWSA for well over 18 months. Please stop contacting me. I resigned for a reason. @acrawsa please rectify this immediately. Thank you.

[Tess Ryan @TessRyan1]

Bye all. After today I've decided it's better not to really know how crappy the world really is. Elmo gets to play with his toys and abhorrent men that resemble rotting hot faeces get to destroy things. I'd rather just conserve what little energy I have. I'll disable tonight.

[Tess Ryan @TessRyan1]

Just leaving my neuro specialist where he injected a nerve block into my head but unfortunately it only numbed part of it so I'm still feeling my dystopian future as the US election rolls on.

[Tess Ryan @TessRyan1]

@SallyRCbra Good to know. I hope the eyes go well for the future.

[Tess Ryan @TessRyan1]

@SallyRCbra Awesome. I'm getting both done next year and it makes me nervous. It'll fix in one way but won't take away the retinopathy.

[Tess Ryan @TessRyan1]

@ninafunnell What scum the world is producing these days. Love that they are named and shamed in some reports as that should make it easier for record keeping in their future push into parliament.

[Adam @ABrokenBattery]

"For years and years I've been passed from doctor to doctor with me saying I'm so fatigued I've got all this pain... and noone could give me any answers."

Miranda Hart talking about her diagnosis of ME caused by Lyme Disease on the Graham Norton show. #MECFS

[Tess Ryan @TessRyan1]

True story - my sister once moved into a house in the Hunter valley where she felt weird energy. Later she discovered this was the house. She left soon after. https://t.co/mHDR8utVmZ

[Sister Helen Prejean @helenprejean]

What does it say about our legal system when the U.S. Supreme Court refuses to stop an execution even when the county prosecuting agency that handled the original trial files a brief in support of a stay and supports vacating the entire conviction? #MarcellusWilliams

[Tess Ryan @TessRyan1]

Bsl not checked and partner is bringing food on so I don't hypo. I can't move as I'm in a wheelchair and my BP was too unstable to get up. But I feel so sorry for the ppl working here. Remember when we all thanked them? They need real help now.

[Tess Ryan @TessRyan1]

We are really witnessing a health system at breaking point here in Australia. These poor fellas are overworked, underpaid, with no improvement on infrastructure with a growing population. I'm sitting here being extremely compliant, but no fluids or check in 4 hrs.

[Tess Ryan @TessRyan1]

I'm sitting in a hospital waiting room cos my BP is all over the place. I think I'm fine but still I have to wait. I get that 78/72 is bad but it's not that now. So can I go home please? #POTS #MECFS

[Tess Ryan @TessRyan1]

Being chronically disabled means having a BP of 73/36 & deciding whether to go to hospital just for an uncomfortable night with a drip, followed by a resting heart rate of 49, yet your heart is totally fine. Oh, and not being able to eat anything while having a T1 hypo.

[Tess Ryan @TessRyan1]

@thomas_violence It was THE meeting lace in the 80s

[Tess Ryan @TessRyan1]

@TizzyEnt "You don't know me" well we do now FKR

[Tess Ryan @TessRyan1]

Had a lovely outing today with my cuz and while out saw Channel nine filming at a High Tea - Tony Jones present....did all I could to stay quiet as I really felt like doing a WTC but not my country so an Acknowledgement woulda been lost on him.

[Tess Ryan @TessRyan1]

@nareenyoung Same!

[Tess Ryan @TessRyan1]

@elleisfor Reminds me of way too many.

[Tess Ryan @TessRyan1]

That builder Zak is everything wrong with men who can't handle communicating with a young woman. Hope he loses business in the future because of that. I was swearing at the TV. #TheBlock

[Tess Ryan @TessRyan1]

@sandyosullivan You said you were heading to the west - Kerry? Killarney is my town. But Galway is sooo wonderful. Travel safe Sandy.