The Advocate Is In

A non-traditional resource for anyone who is managing an #autoimmune condition or #chronicillness. #Advocacy from someone who's been there.

[The Advocate Is In @TheAdvocateIsIn]

We all have horror stories from clinicians who practice less than due diligence or may not be the best communicators. We need to do better to avoid negative #rippleeffects.
#patientexperience #patientsafety #mypatientlife

https://t.co/0jCpw3YucS

[The Advocate Is In @TheAdvocateIsIn]

It’s hard to recognize sometimes, but having a #chronicillness can change you in #positive ways, too.

#patientexperience #mypatientlife #silverlinings

https://t.co/ZXUaUbKB8A

[The Advocate Is In @TheAdvocateIsIn]

Election season is about to go into overdrive. Make sure you know what you are, or aren’t, voting for.

#healthpolicy #patientperspective #Vote

https://t.co/IiUq47RRAg

[The Advocate Is In @TheAdvocateIsIn]

Nobody likes to be controlled by their #chronicdisease. But episodes when it happens is a patient reality many of us face, while others, like our #clinicians, may not understand. Here's a glimpse into one of mine. #patientexperience #mypatientlife

https://t.co/XUIt9wjTgZ

[The Advocate Is In @TheAdvocateIsIn]

The 2024 Olympics has allowed us a forum to discuss #healthcare. But an ad has been bugging me. It's for a new TV show portrays #empathy for patients as extraordinary. It shouldn’t be. It should be normal, boring, and so common we take it for granted.

https://t.co/n6vnAbQ4Fi

[The Advocate Is In @TheAdvocateIsIn]

A survey fielded by @ChronicRights shows many of us feel and/or fear the bite of #discrimination because of our conditions, even those of us without a #diagnosis. Federal law (and state laws!) offer protection.

#ChronicDiseaseMonth #patientexperience

https://t.co/QJXAIcW34F

[The Advocate Is In @TheAdvocateIsIn]

#Clinicians aren’t the only #shortage we have. Even if we can get an appointment with the right clinician and a #regimen we can get behind, and it’s not a #budgetbuster, we still might not be able to actually get that treatment.

#mypatientlife

https://t.co/IByiDBX9mJ

[The Advocate Is In @TheAdvocateIsIn]

#Clinician #shortages right now are bad and getting worse. Lack of #access to any of the care you need is dangerous, but the lack of #primarycare options is even more so.

#patientexperience #mypatientlife

https://t.co/WmVMk4yOLd

[The Advocate Is In @TheAdvocateIsIn]

Calmness in a patient’s life is either temporary or an illusion. You may not be able to see it, but there is a lot of work that goes into maintaining even basic life activities.

#patientexperience #mypatientlife #dailygrind

https://t.co/HWYOnYkPU5

[The Advocate Is In @TheAdvocateIsIn]

My cataracts have weighed on my mind for decades. It was an inevitable result of the treatment for my meningitis, and I think it has ended with the best possible #outcome. I hope.
#patientexperience #mypatientlife #cataractsurgery #donefornow

https://t.co/Stc723bTOX

[The Advocate Is In @TheAdvocateIsIn]

People with medical conditions can feel #broken and, in a way, we are. But even broken things can be art.

#patientexperience #mychroniclife #MentalHealth

https://t.co/NFp8FCWUHA

[The Advocate Is In @TheAdvocateIsIn]

Time to put on my big girl pants and end my procrastination. I am not sure everyone is right that I will love the #outcome of this #surgery, but I can’t wait any longer as my vision #deteriorates. It’s go time.
#mypatientlife #patientexperience #cataract

https://t.co/X2n9GrtIR5

[The Advocate Is In @TheAdvocateIsIn]

I hate all the administrative crap that comes with managing #chronicconditions, but it is inescapable if you want to get anything done. And it is never smooth sailing.
#cataract #surgery #patientexperience #mypatientlife

https://t.co/k7ofe7CF4Z

[The Advocate Is In @TheAdvocateIsIn]

As my first #cataractsurgery nears, my #anxiety is rising. I have a history of #psyching myself out, so I know it’s going to be a bumpy ride.

https://t.co/aimIY9IcxC

[The Advocate Is In @TheAdvocateIsIn]

You never stop learning your #chronicconditions. Sometimes it’s the most basic information we miss when trying to grasp the more complicated stuff. #hydrate #mypatientlife #patientexperience

https://t.co/cSanMRNFFm

[The Advocate Is In @TheAdvocateIsIn]

My childhood #patientexperiences closed me down emotionally, but that’s no kind of life. I had to consciously pull myself out of that mindset while I could.
#mypatientlife #mentalhealth #supportsystem

https://t.co/1tQ6uTkCqJ

[The Advocate Is In @TheAdvocateIsIn]

I’m a shameless boundary pusher. But if you’re going to play that game, you have to know when to reel it in. After 30 years, I am finally folding on cataract surgery.

#patientexperience #cataractsurgery #shareddecisionmaking #mypatientlife

https://t.co/peRRFJ2hxm

[The Advocate Is In @TheAdvocateIsIn]

I’ve always thought of #healthinsurance as similar to a significant other – can’t live with ‘em, can’t live without ‘em. And sometimes the policies require just as much attention as the neediest partner. #patientexperience #fulltimejob

https://t.co/DsAtp8ZdzH

[The Advocate Is In @TheAdvocateIsIn]

#trust is the issue in #healthcare. A recent conversation illustrated one example in one hospital in one city in the United States. With the prevalence of incidents like this, it’s no wonder.
#patientexperience #mypatientlife

https://t.co/mCWoPKA5Pj

[The Advocate Is In @TheAdvocateIsIn]

Sometimes, in the midst of the worst things, you have to take a moment to recognize the extraordinary. When my friend died a few months ago, everything went exactly as planned.

#patientexperience #endoflife #Empowerment

https://t.co/EkvfrBK8c3