Michelle

Cystic Fibrosis campaigner and mum to two children, military family, one is a cf warrior princess!!! precision medicine and fighting for a life unlimited!

[this place sucks @tiredpixies]

@educationgovuk Deeds Not Words!
You’ve hung us all out to dry, with NO protection, no safety measures and you think a 👍 will do? I’ll remember that when I’m being coughed at in the face. Thanks

If it wouldn’t get me a spin in Twitter jail, I’d tell you EXACTLY what I think of the DofE. 🤬🤬🤬

[Michelle @TheFrank1001]

@abihalstead @CFandUs @cftrust @CFAware We wouldn’t have precision meds without @cftrust getting behind the petition and campaign from CF community... there was so much I didn’t realise about the rust until they supported our cf community led fight for precision meds.

[Michelle @TheFrank1001]

@CFandUs @abihalstead @cftrust @CFAware There needs to be more push from local cf teams making sure families and those with cf know what is available and what the cf trust do too

[Michelle @TheFrank1001]

@CFandUs @abihalstead @cftrust @CFAware If you got in touch they’d be there for you!! I think you’ll find @cftrust are always in trouble with one group... new parents don’t want to see the horrors stories... and adults with cf want to see reality... damned if they do, damned if they don’t! I’m 100%behind the trust!

[Gayle Pledger @gayle_pledger]

Thank you UKCFMA & @cftrust for further confirmation that clinicians in England are free to prescribe Kaftrio “off-label” to ppl with one F508del mutation as needed w/o having to wait for EMA licence. Great to know that more CF patients will be treated 💙 @NHSEngland @strawfie

[Michelle @TheFrank1001]

3/3 throughout normal school day... teachers and children need quality social family time!! @GavinWilliamson @BorisJohnson

[Michelle @TheFrank1001]

COVID-19: Boris Johnson doesn't rule out extending school summer term to help pupils catch up
https://t.co/lFu4LLdkxo (1/2)

[Michelle @TheFrank1001]

2/3 a move I do not agree with as EY worker who has worked open to all children and a mum, my children don’t need to be catching up... by summer of Covid allows they need to visit grandparents, socialise with friends and get out and about and be a child... good quality teaching

[Michelle @TheFrank1001]

Inequality at its finest...

[Ali Dillon 💙 NHS @Alidilly]

For anyone wondering why I’m not happy with this mornings @NHSEngland letter it’s pretty simple (like my picture), why should access be dependent on how sick you are in England but not in rest of UK?

[Jen Willis @jenwillis1]

My children aren't part of a generation that need to catch up. They need to reconnect. It's laughing with friends, exercise and activities, messing around on the beach and cuddles with their grandparents that they are missing and now need.

[Michelle @TheFrank1001]

@sbattrawden Yes Christmas Day was open to mix ... but we were advised that just because we can, doesn’t mean you should!! We all could see the data rising... we chose not to mix to protect our family... not everyone made that decision unfortunately

[Holly @HollyBaloo94]

Thank you @ChrisMRiches for getting back in the ring and fighting for us again!
@NHSuk @MattHancock

[Michelle @TheFrank1001]

@cftrust do parents of children(under16) with CF be entitled to #COVIDVaccination as we are classed as carers?? We usually get offered flu jab as carers.

[Emma Ward @emmagadie2009]

https://t.co/ceQvwsyzC3

#cysticfibrosis #KaftrioEqualityUK #kaftrio #MPS #NHS

[my CF Hero 💙 @myCFHero]

@VertexPharma Great to see this for those in Portugal 👏 Can you share plans for a submission for license extension for 6-11yr olds #Kaftrio in the UK?

UK Reimbursement is already in place, & submission now made to #FDA for US kids -#prevention is better than treatment. #LifeSaving $vtrx

[Michelle @TheFrank1001]

@CaitTeachesKind @ShuaibKhan26 Be interesting to know if child was classed as extremely clinically vulnerable

[Cystic Fibrosis Trust @cftrust]

It is vital that everyone with #cysticfibrosis who can benefit from #Kaftrio does so. We will not stop our fight for access to life-saving medicine until everybody with cystic fibrosis across the UK can access the best possible treatment available to them.

[UK Prime Minister @10DowningStreet]

Tonight at 6pm we will clap to honour the life of Sir @CaptainTomMoore and all those health workers who he recognised with his fundraising.

#ClapForCaptainTom

[Sky News @SkyNews]

#COVID19: Drugs giant GlaxoSmithKline and German biotech firm CureVac have struck a €150m (£130m) deal to develop next-generation COVID vaccines that target several variants of the virus in one product https://t.co/Pulw1RVFzL

[Michelle @TheFrank1001]

Exactly how I feel! @GOVUK @GavinWilliamson we have been left hung out to dry at risk in early years during Covid #undervalued #noprotection #disregarded

[Early Years Alliance @EYAlliance]

“This is a sector at breaking point.”

70% of early years practitioners have experienced anxiety related to the impact of the pandemic on their job role in the last 6 months.

See the results of our latest survey in @ObserverUK today.

https://t.co/Nz4KhFfXon