@cineworld@IMAX We were so excited to come see it in your York IMAX today. Unfortunately after 45 minutes sitting in darkness we were told it was broken :( any info on when it will be fixed?
@cloudypositions@CFAware I've been on it since October too. My leg pain was like being kicked in the shins every time I was sat down for too long. Keeping my legs propped up helped and moving more. Might be different pain to yours though?
@MerandaCF@CFAware Waking up in the morning and being able to start my day without having to spend 2 hours coughing/bring sick.
I've been lucky with long term side effects so far. I get a sore throat every day, which is weird. But the main thing difficulty has been the change in diet
@MaisieRB_x@Natasha24462980@CFAware@MattHancock That's very frustrating. I've learnt from the past couple days that the gp is the way to get it unfortunately. You just need to be very persistent to the point of annoying!
@MaisieRB_x@Natasha24462980@CFAware@MattHancock After a few persistent calls we finally got him an appointment. He was listed as group 6 but it was just the fact that paid carers were getting it first that frustrated me as it felt unfair
@julie_askins@CFAware@MattHancock Thanks, I just looked and it doesn't say that on my letter. But luckily after a few phonecalls we managed to get an appointment
@CFandUs@CFAware@MattHancock We did that, but he still wasn't allowed to book on the nhs website. Luckily after a few persistent phone calls we managed to book him an appointment
@KidderBuzzard @CFAware@MattHancock Thanks, we did this and they said he was catergo 6, but was still not being offered it like he should have. After a few persistent phone calls we finally got him booked in