Tight Lipped

A storytelling and advocacy org by and for by people with vulvovaginal/pelvic pain conditions.

[Marlene Berke @MarleneBerke]

.@Cornell still refuses to hire even one M.D. gynecologist to serve its 13,000 female students.

@cornellsun published my encounters with excruciating pain and sexism while seeking healthcare at Cornell Health for chronic vaginal pain.

https://t.co/BU5BZex4u8

[Netana Markovitz, MD @NetanaMarkovitz]

My latest for the Washington Post https://t.co/sVvNL5zvHC

thank you @drrachelrubin @TightLippedOrg and so many others for the incredible interviews!

cc @AshleyGWinter @DrJenGunter

[Tight Lipped @TightLippedOrg]

we're coming to new orleans!! come thru!!

[Tight Lipped @TightLippedOrg]

join us for an online community event october 24th from 3-4:30pm! sign up here: https://t.co/qxTjHxMbLB

[@WeAreDisabled @WeAreDisabled]

Invisible illnesses often make it difficult for us to say we're disabled. No matter how we present or what we face every day, we need to remember it's okay to accept this aspect of our lives and ask for help.

[Tight Lipped @TightLippedOrg]

Our latest pod episode tells the story of the first study that looked at how prevalent vulvodynia is in the general population. And it turned out, it’s really common!

Art by relstein on IG, audiogram by @humansofhummus !

[Tight Lipped @TightLippedOrg]

@lovethispodcast Thanks for giving us the shoutout! We're so happy to hear that you have such lovely things to say about our work 🌺

[Tight Lipped @TightLippedOrg]

“So I concluded that what I needed to do—as part of my treatment (I swear!)— was to book a night at a nearby Sheraton and hire a high-class male escort for two hours.”

To find out what happens next, head over to our digital zine!

https://t.co/nuivQGlt2y

[Tight Lipped @TightLippedOrg]

Our zine is digitized now! Here’s a snippet from @beckles212 and her piece “thank you for your awesomeness” (1/3)

[Tight Lipped @TightLippedOrg]

“I was convinced my pelvic pain was my body telling me I was frigid… so I started getting treatment for vaginismus and vestibulodynia. Shortly after sex therapy, I began to have this panicked feeling.” (2/3)

[Tight Lipped @TightLippedOrg]

Might come as a surprise, but the correct answer is actually the Institute of Child Health and Human Development 🤔

[Tight Lipped @TightLippedOrg]

❓Which of these institutions do you think supports vulvovaginal pain research?

[Tight Lipped @TightLippedOrg]

❓Which of these institutions do you think supports vulvovaginal pain research?

[Marissa 💃🏾 @marissaaevans]

Really wild after all of these years writing and reading about maternal health that it’s considered a health innovation to save Black mothers from dying of childbirth.

Just save Black mothers. Just listen to Black mothers when they say something is wrong.

[Shereen Marisol Meraji @RadioMirage]

I have a chronic disease: endometriosis. I've had to have surgeries, I've been on and off hormones to suppress my periods - it has caused me so much pain and infertility which I've been battling for years and YEARS.

[Tight Lipped @TightLippedOrg]

Another bump on filling out our community survey so we can keep improving Tight Lipped for everyone!
https://t.co/YUeHYzQxEK

[Tight Lipped @TightLippedOrg]

Now that we’ve wrapped up S1, subscribe to our newsletter/Spotify/Apple Podcasts to get notifications for our S2 eps!

https://t.co/xD08fEoBMk

[Tight Lipped @TightLippedOrg]

We also wanted to share our first 8 episodes + there’s more to come! DM us if you have any ideas or things you want us to share in the future. Thanks for listening everyone 💋💗

https://t.co/JynEhiVK4u

[Tight Lipped @TightLippedOrg]

🧵:In our last episode, we shared that there’s only 33 cents for research funding per vulvodynia patient. We know that #vulvovaginal and #chronicpain are SO underfunded and overlooked, which is why we started this. Tight Lipped is for YOU! (1/3)

[Tight Lipped @TightLippedOrg]

You are not alone, and as we wrap up our first season, we want to get a sense of our listeners and their needs, so we’re asking you to fill out our listener survey here: https://t.co/YUeHYzyWNc (2/3)