Tim McDaniel

Like Lou Gehrig I am the luckiest man alive with great family and friends - enjoy my career - Christ follower - Suffering Cleveland fan and now an ALS Warrior.

[Tim McDaniel @TimTMcDaniel]

@mdipan116 Be happy. - joe burrows

[Tim McDaniel @TimTMcDaniel]

@coachbrian6262 Also when visitors come over I try to get into their lives and not focus on my ALS. I also dive deeper into my Christain belief listening to podcasts and reading books and discuss what I am learning with others. Hang in there Brian and hope today is better

[Tim McDaniel @TimTMcDaniel]

@coachbrian6262 Hey Brian - ALS sucks but what has helped me is focusing on others. First on my adult kids and wife future. I made videos for each of them, writing an autobiography that includes lessons from my mistakes and future advice and organizing family movies and photos.

[Tim McDaniel @TimTMcDaniel]

It was such a wonderful day and I’m so grateful that I was able to walk (wheel) my beautiful daughter down the isle with my amazing sons escorting us. Thank you Rea for all the support during my ALS journey. #LoveWins

[Rea & Associates @ReaCPA]

Congratulations to Tim as he got to walk his beautiful daughter down the aisle!

To learn more about Tim's journey with #ALS and what you can do to help find a cure visit: https://t.co/sdijvcgwS8

#Trekking4Tim

[Tim McDaniel @TimTMcDaniel]

@kylemace22 @ArrestALSNow Here is a good link to read. You can take it out without the 10% penalty if disabled.
https://t.co/KCzeeUaaKn

[Tim McDaniel @TimTMcDaniel]

@CoreyPolen @adamfwilson426 @CathyStandish @alsassociation @LATimeskraft @alsadvocacy @iamalsorg @HuffPost @AP @ALSUntangled @patientslikeme @1963GP @mcsquar86988114 Adam - in our Chapter you can get a annual $750 reimbursement for equipment purchases. I got reimbursed for a ramp from my house. Form was easy and reimbursement was quick. DM me if you need email of our chapter contact.

[Tim McDaniel @TimTMcDaniel]

@adamfwilson426 @CoreyPolen @CathyStandish @alsassociation @LATimeskraft @alsadvocacy @iamalsorg @HuffPost @AP @ALSUntangled @patientslikeme @1963GP @mcsquar86988114 Your heirs will pay taxes when they withdraw your retirement funds. Say it’s $100k. Heirs will net around $70k. Charity will get full $100k. If want to give to charity from estate - retirement funds are good gifts verse other assets. Could of explained it better.

[Tim McDaniel @TimTMcDaniel]

@gregkochak @alsadvocacy @Yuehan218 @US_FDA What is really interesting is Corestem is also having a meeting in September. Have not looked at their data on effectiveness. But 2 leading stem cell co for ALS meeting with FDA in Sept. and advocacy groups in continue dialogue with FDA. Hopefully timeline changes.

[Tim McDaniel @TimTMcDaniel]

@mpabull Sorry for your loss and praying for peace for you and your kids. Thank you for being such a great and loving man to a wonderful woman.

[Tim McDaniel @TimTMcDaniel]

@adamfwilson426 @alsadvocacy He indicated they had enough resources to fund last half of 2019 but will need a capital raise to continue biz beyond. They have a tool to do that but are waiting on the stock price to rise to obtain more funds in secondary market.

[Tim McDaniel @TimTMcDaniel]

@alsadvocacy I love the courage of management team to answers the tough questions the best they could....bad news under current pace will not be available for couple years. Will not do an interim analysis. More discussions with FDA in September and continue discussions with ALSA

[Tim McDaniel @TimTMcDaniel]

@H_Grove @Cooper7r @obj @bakermayfield @God_Son80 - thank you so much for being kind to a fellow ALS Warrior. I am also a huge Browns fan with ALS and your kindness means a lot to me. Hope to see you soon with my boys.

[Tim McDaniel @TimTMcDaniel]

The FDA is under US Dept of Health and Human Services. Maybe @SecAzar could look into why repeated request for ALS guidance documents have been ignored and how disrespected many suffering patients feel in FDA interactions. Let Mr. Azar know details.

[Tim McDaniel @TimTMcDaniel]

@marksberardi Just coming home from Hilton Head. I rented one of these and it was nice to go on the beach I had a couple strong boys with me that could push it and get me out and throw me in the ocean. It was worth the $200 weekly cost.

[Tim McDaniel @TimTMcDaniel]

@YaChristle John Paine’s book “The Luckiest Man” speaks to this. He has had ALS for 17 years
https://t.co/pQxcBxc7ih

[Tim McDaniel @TimTMcDaniel]

@marksberardi Great video

[Tim McDaniel @TimTMcDaniel]

@marksberardi As an investor and a pALS I hope it’s approved soon. My question if it was approved tomorrow, how long would it take before it would be commercially available and how much funds do they need to raise to bring it to market.

[Tim McDaniel @TimTMcDaniel]

@marksberardi It’s up 20% this past month without any meaningful PR. Large volume increase in shares trading today. News coming soon?

[Tim McDaniel @TimTMcDaniel]

@dbellina3 Quote at end of video from FDA “patients w ALS want access to investigative projects and FDA is here to help...to gain access to unapproved products outside clinical trial the FDA must approve and we do it the majority of the cases”. NurOwn? Why not?