@gregkochak#forgregg Shirts are $20. Quote on the back resonated with G during his ALS battle. “I triumphed in the face of adversity and became the man I never thought I would be.”
Your Fight-Our Fight….he fought so now it’s our turn.
https://t.co/NfL8uibzKT
This is SO Important now more than ever.....ACT for ALS was introduced yesterday....Tell your Representative and Senators to support the Bill!
#EndALS
Contact Your Representative and Senators About ACT for ALS - I AM ALS https://t.co/Uck02Tfd50
Tune in to the We Can’t Wait Action Meeting livestream tomorrow at 10am ET: https://t.co/JOvKKskfQK. The @US_FDA will be listening to the #ALS community’s calls for faster access to experimental drugs that have been proven safe and effective.
The Morris ALS Principles were developed by those most impacted by ALS as a social contract that will drive a path forward. They show how each of us can do better so that treatments and cures are a reality and not an empty promise. https://t.co/pvTlIim4OS
I can't emphasize this enough-the ALS Principles are the boundaries that people living with ALS have needed. 'What we allow will continue' and we must make sure we are building clear paths towards treatments for a horrendous disease, always working together so we get there faster
May's Family Connections meeting is on Sunday with special guest Dr. Bedlack from the Duke ALS Clinic.
To join the virtual meeting from your computer, tablet, or smartphone: Go to https://t.co/nGfRD2WY7L
To join by phone only dial: 312-757-3121
Access Code: 838-394-997
We have #ALS surrounded with four drugs in the #Ionis pipeline. By pioneering new markets and changing the standards of care with #antisense technology, Ionis works to provide those with all forms of ALS hope. https://t.co/5073icslHa #ALSAwarenessMonth
Are you ready to take action?!
@SenatorBraun introduced the Promising Pathway Act alongside @lisamurkowski, @SenKevinCramer and @SenatorWicker. Click below and help get your Senators on board to make pathways to treatments real.
https://t.co/Ps2lrt9UYr