My daughter Emilia is 1 of just 1,014 known people worldwide with #FOXP1 syndrome.
We're raising money to fund medical research
Would you consider donating or sharing this post? Every dollar makes a difference. 💙
https://t.co/NGBeqGwkzG
#RareDisease#MedicalResearch
My girls. My world. ❤️
Watching these two grow up together is one of the greatest gifts of my life.
Sisters, best friends, partners in crime… and probably each other’s biggest headaches someday 😂
I hope they always have each other’s backs. ❤️
#GirlDad#Sisters#Family
A huge thank you to Joe Gannascoli for helping us spread awareness for our daughter Emilia and FOXP1 syndrome. 🧡
If you’re a Sopranos fan, please watch, share & help us get Emilia’s story out there. Even one share can make a difference!
#FOXP1#TheSopranos#RareDisease
My girls. 🧡
Giuliana and Emilia — two sisters, two personalities, and one incredible bond.
The simple moments like this are the ones I’ll treasure forever.
Being their dad is my greatest blessing. 🧡
#GirlDad#Sisters#Family
There’s something special about meeting another parent of a child with a disability who just gets it.
No long explanations. No judgment. They understand the challenges, the advocacy, the worry and the little victories.
To those parents: you’re not alone. 🧡
#SpecialNeedsParenting
🧡 Thank you to my friend Joe Gannascoli, known for playing Vito Spatafore on The Sopranos, for helping share Emilia’s Fox P1 story.
Joe didn’t hesitate to use his voice to spread awareness for this rare disease. Grateful for friends who make a difference.
#FoxP1#RareDisease
While I was working and Emilia was at karate, Giuliana had a great time with friends at National Night Out. 😊🎈
Her smile says it all! ❤️ #NationalNightOut#MakingMemories
Two months ago, Emilia started karate with other amazing kids with special needs… and she absolutely loves it! 🥋🧡
Seeing her put on her uniform, smile, and build confidence is everything.
So proud of you, Emilia. Keep showing the world your strength!
#FOXP1#InclusionMatters
These two are my "why." 💙
Every therapy, meeting, and advocacy effort is so they can enjoy moments like this.
Every child deserves the chance to simply be a kid. 🏖️
#FOXP1Awareness#GirlDad
New chapter in our FOXP1 awareness journey 💙
I created an Instagram: @GirlDadAdvocate
Awareness creates conversations. Conversations create support. Support helps fund research. Research gives families hope for better treatments and a brighter future.
Follow along #FoxP1
As we head back to school, remember: if your child needs an IEP, there's nothing to be ashamed of. Early support can make a lifelong difference. Every child deserves the tools they need to succeed. ❤️📚 #IEP#SpecialEducation#Autism#BackToSchool#Inclusion
New York City will require IDs to prove you live in the city in order to shop in the city owned grocery stores. So you need an ID to shop in the city’s stores, but it would be racist to require an ID to vote. Perfection.
🎉 We hit $1,000 raised through our FOXP1 bracelet fundraiser!
💙 $500 donated to the Fox P1 Medical Research Foundation 🧡 $500 donated to the International Fox P1 Foundation
Thank you to everyone supporting awareness & research. Together we're making a difference. 🦊💙
#FOXP1
Calling all FOXP1 families & supporters! 🦊💙 Join us for a FOXP1 Run/Walk to raise awareness, support research, and bring our community together. If you’re nearby, we’d love to see you there! 💙
#FOXP1#RareDisease#RareDiseaseAwareness
What is FOXP1 Syndrome? 🧬
FOXP1 Syndrome is a rare genetic condition caused by changes in the FOXP1 gene. It can affect speech, development, learning, and more. Every share helps raise awareness and brings hope to families like ours. 💙
#FOXP1#RareDisease#Genetics
Some moments say more than words ever could. 💙
Emilia has FOXP1 Syndrome & autism. Moments like this with her big sister remind us why awareness and research matter. Please help us share her story.
#FOXP1#RareDisease#Autism#SiblingLove#ResearchHope