Tracy Milne

[Tracy Milne @TracyMilne50]

A recent publication: A targeted approach in the treatment of #complexlymphaticanomalies using #trametinib and #sirolimus @LGDAlliance @LGDA_EU

[GoPI3Ks (Genetic Overgrowth PI3K Support) @GoPI3Ks]

https://t.co/4DJn1xQPFG

[Tracy Milne @TracyMilne50]

@LGDA_EU Great to be part of this working group. #ComplexLymphaticAnomalies

[Miikka. Vikkula @MiikkaVikkula]

What a wonderful #VASCERN-VASCA meeting again. And we don’t have a problem of finding things to do. So happy to see the active participation of all in the various task forces. #vascapa #hevas #CMTC #eurordis #theralymph #revamp #deduveinstitute

[LGDAlliance @LGDAlliance]

CLA Educational Material Design Workshop & Oral Side Effects Survey

🌟 Get involved in #complexlymphaticanomalies research!
➡️ Design Workshop for CLA materials (US only)
➡️ Survey on Oral Side Effects

Your voice matters! Visit https://t.co/DbBeD4AtFX for more info.

[LGDAlliance @LGDAlliance]

New for doctors: an educational tool like no other! Shaped like a prescription pad, with a QR code for instant resource access. Perfect for patient handouts.

👉Support us in developing these tools further - https://t.co/1JcthC08nF

#InnovativeEducation #CLAawareness

[HEVAS @hevas_nl]

Professor Sahar Mansour about the Alpelisib trial in the UK: "Mild to moderate benefit for PROS. Alpelisib seems to be better tolerated than sirolimus, although similar side effects." @GoPI3Ks

[HEVAS @hevas_nl]

Dr. Manaasa Polubothu about improving the patient pathway for PROS. @GoPI3Ks

[HEVAS @hevas_nl]

GoPI3Ks Family Weekend in London.

Welcome by Mandy, one of the organizers @GoPI3Ks

[GoPI3Ks (Genetic Overgrowth PI3K Support) @GoPI3Ks]

Our third presentation of the day Zubyda from Rare Minds with mental health & living with PROS #GoPI3KsFamilyWeekend #DoctorsPresentations

[GoPI3Ks (Genetic Overgrowth PI3K Support) @GoPI3Ks]

Doctors discussion panel #GoPI3KsFamilyWeekend #DoctorsPresentations #AttendeeQuestions

[VASCERN @vascern]

🚨Great news! The deadline for applications to the VASCERN Summer School 2024 has been EXTENDED to November 26th! If you're a medical student or intern interested in rare vascular diseases, seize this opportunity! 🌐

Apply now👉 https://t.co/mANpF5u46n
#Rarediseases #summer

[GoPI3Ks (Genetic Overgrowth PI3K Support) @GoPI3Ks]

First presentation of the day Professor Rob Semple with an overview of PROS #GoPI3KsFamilyWeekend #DoctorsPresentations

[GoPI3Ks (Genetic Overgrowth PI3K Support) @GoPI3Ks]

Our second presentation of the afternoon Professor Pierre Vabres with the management of PROS #GoPI3KsFamilyWeekend #DoctorsPresentations

[HEVAS @hevas_nl]

A panel discussion addressing questions from the audience. @GoPI3Ks

[GoPI3Ks (Genetic Overgrowth PI3K Support) @GoPI3Ks]

Next presentation of the day Doctor Ralitsa Madsen with current research into PROS/PIK3CA #GoPI3KsFamilyWeekend #DoctorsPresentations

[GoPI3Ks (Genetic Overgrowth PI3K Support) @GoPI3Ks]

Next presentation of the afternoon Doctor Maanasa Polubothu with the Rare Disease Collaborative Network for Mosaic disorders #GoPI3KsFamilyWeekend #DoctorsPresentations

[GoPI3Ks (Genetic Overgrowth PI3K Support) @GoPI3Ks]

First afternoon presentation of the day Professor Sahar Mansour with details of one of the uk’s Alpelisib drug trials for those with PROS #GoPI3KsFamilyWeekend #DoctorsPresentations

[Lisa Chandler @AppsLisa]

@GoPI3Ks All the planning / fundraising & now its here🙌🏼..hope everyone has a top weekend..friendships formed knowledge & understand ings learned experiences shared 🥰xxx

[The Student Voice Prize @RDStudentVoice]

The Student Voice Prize 2023 is now closed! 📢

A huge thank you to everyone for participating this year, we look forward to reading your entries. 🤩

Stay tuned to hear updates from us!

#SVP23

[VASCERN @vascern]

⏰Don't miss out! The application deadline for the VASCERN Summer School is approaching. Medical students and interns, apply by November 19, 2023, for this extraordinary opportunity in rare vascular diseases.

More info: https://t.co/mANpF5u46n
#rarediseases #MedEd #MedTwitter

[LGDAlliance @LGDAlliance]

🚀 Big news! Our website is on fire with 8,145 visitors and 18,864 webpages explored! Thanks to our incredible community for making it happen. Stay tuned for more exciting content! #CLAawareness #LGDawareness #complexlymphaticanomalies #CommunityLove #ContentJourney 🔥🙌