Don Sladek has terminal Corticobasal Syndrome(CBS), & took Biogen's drug BIIB092 in a clinical trial. It was efficacious. After 10 months, he’s resumed BIIB092.
Had a goodbye call with a patient on hospice today. You wouldn’t guess it, but these calls are filled with both tears and laughter. It reminds me what a gift it is to be invited so intimately into other peoples’ lives.
@mikejwhelan #7 I see you Michael and I hear you. We read your updates daily, bought 12 Bella books, and donate to your GoFundMe monthly. Thank you for sharing your journey!