Retired Alberta business owner who now spends time-fighting for everyone suffering with Long Covid and doing all I can to rid Alberta of the corrupt UCP gov.
People who represent Long Covid in policy meetings should represent all of Long Covid, not just the experience of Long Covid they have.
Usually it’s those who are more able who attend these meetings. I’m not sure the full spectrum of LC health issues is being communicated.
These are the words of #pwLC. #LongCovid patients and caregivers telling their stories in their own voices. Testimony provided bravely, generously, and honestly.
Share yours in text, audio, or video format at https://t.co/nXMrtU1vll
Kristi Noem is an untrustworthy psychopath. Keep her out of Canada. Keep the MAGA trash south of the Canadian border. @NovaRedMining What the hell are you thinking?
Retweet if you stand by Italian Prime Minister Giorgia Meloni against Trump. Her Quote ‘Italy And I Never Beg’ 🇮🇹
Canada and Greenland never beg either. 🇨🇦🇬🇱
Quite so, Dale.
Also, the MECFS Mafia's @patientled@LisaAMcCorkell@MichaelPelusoMD LONG COVID MOONSHOT wasn't a Long Covid research bill, it was a blatant attempt to institute a permanent, legalized theft of Long Covid resources.
Moonshot was created by mECfS astroturfs who -as usual (and as they do w/every "long covid" budget appropriation attempt) write it so that *they can legally misdirect (steal) funds from everyone with Long Covid >forever, passed as Congressionally-directed legal policy< and grant it to themselves via "other illnesses". They wrote it so they could abscond with *all LONG COVID resources (like they already have for years), bc naturally, they did not stipulate any limit on the fund diversions away from LC.
Moonshot research funds also weren't restricted to biomedical science. So nothing would stop them from wasting another $2.5B (or any amount) on symptom surveys and other rigged, mecfs propagandic nonsense.
Despite tft that NIH RECOVER already has the most comprehensive LC registry on earth, Moonshot required a separate registry be created and maintained BY ORGS bc several of these despicable orgs, incl @PlzSolveCFS + @OpenMedF, already have some. They want to get paid AGAIN off of the backs of the pwLC that they are burying, this time adding #LongCovidKids into their perverse data-mining schemes.
That's the short list of aggressive malfeasance against pwLC in the "Long Covid" Moonshot legislation. Once this legalized theft is passed, it would take Congressional action to undo it (good luck w/that). So, yes, it's a damn good thing the Long Covid Moonshot failed. pwLC had better wake up if they ever hope to receive proper treatments and supports instead of endlessly suffering only to enrich predators.
Every single "advocate", researcher, and org who was involved in Long Covid Moonshot and who supported it's raptorial attempts to LEGALIZE THE PERMANENT THEFT OF LONG COVID FUNDING needs to be excised and banned from all things Long Covid.
@DebHolloway@GreeneWendy They refuse to even think about harming others. “There’s always been viruses and everyone’s going to get Covid anyway,” says a retired disability advocate who has spread Covid to countless people, including her two children.
I have lost all faith in humanity.
@trishorwen@DebHolloway I heard from a relative regarding masking “is a life lived in fear really worth living?”. I was disabled prior to the pandemic and I’m able to “live my life” wearing a mask when I need to be in public, but apparently I’m not doing it right unless everyone can “see my smile” 🙄
“The headline is elsewhere. Autoreactivity - the immune system's tendency to target the body itself - was elevated across every group.” This is happening to the KIDS! 😡😭
By taking ZERO shit from the most repulsive misogynist, bully, and pedophile on the planet — Italian prime minister Giorgia Meloni just become a heroine around the world.
Unless you are a Separatist…
You may wish to join me in a heartfelt Thanks to our Indigenous Leaders
They have never backed down and continue to fight for us❤️🙏
When I had an extraction due to #LongCovid, my concern was being reinfected. It’s an appropriate concern.
We also had to make sure the dentist did not use the epinephrine containing numbing agent because it sets off my arrhythmia from Covid. It’s one of the more unsettling but not disabling issues I have.
Unfortunately the dentist ended up having to use it because of so much trauma to the tissue from repeated injections with the less effective agent. He was worried that might happen.
As expected I ended up having SVT and an adrenergic attack while my tooth was being pulled out.
It wasn’t a pleasant experience, I assure you that.
And I can also tell you that did not hang my head out the window like a dopey dog for social media to show the world how joyful I was to experience the effects of that drug.
I find it interesting that others with other disease clam they have the same problem I do, when their disease actually looks nothing like mine.
But hey, I’m also not a benzo addict. So maybe there is that too.
What $2.5B blown on propaganda & grift, instead of on biomedical Long Covid research, renders.
Clowns like Spier & Haltigan (and WIRED. and the world.) get to use the distinct lack of quality research as evidence that Long Covid is NOTHING NEW. They confidently conclude that it's impossible to distinguish Long Covid from other illnesses.
Also, you heard it, right? "Just bc you MIGHT have had Covid...". When you cannot prove it bc you cannot PCR test, or bc RATs are so out of date that they're worthless, ppl like this (and your family, friends, and doctors) get to gaslight and undermine you even on that basic premise, too. If you can't prove that you had Covid, it can't be Long Covid!
We've already seen c's like Carmen Scheibenbogen & similar astroturfing mECfS orgs stating the same. #LCGrift
My sorrow has only deepened today.
But my own post yesterday pushed me to take my own advice. I took stock, assessed my environment, and made a decision. I HAVE to adapt and change yet again so I am donating my books. All of them. A lifetime of beloved books that I must accept I will never read again but that might bring joy to or enlighten others. We've been clearing out other "stuff" but my books, well, they have been my friends.
I need to do it while there is still time. And now is the time.
@DebHolloway I just wish someone cared about finding a cure for LC, developing better vaccines that don't sicken people and that people would see the light. Every week there's a new 20s, 30s on dropping dead- sepsis, pneumonia, collapsing, etc. etc. and no one thinks about it. Remarkable.