Tzipora Raphaella

Jewish, Disabled, Autistic, Femme, Lesbian, INFP, Booknerd, Bird nerd. Disability Pride & Rights. Neurodiversity. Middle East, Foreign Affairs & Politics.

[Tzipora Raphaella @Tzipity]

The last 2+ years have been the darkest and hardest of my life but there’s light ahead. Help my kitty & I get some real stability.

#MutualAidRequest #DisabilityCrowdFund #DisabilityMutualAid
#LGBTCrowdfund
#HelpFolksLive2024

Full story here #GoFundMe
https://t.co/Z0bhiHzeH0

[Tzipora Raphaella @Tzipity]

@ChaimTom @YoniFreedhoff Though this solidly and fully explains everything about cats.

[Tzipora Raphaella @Tzipity]

@ibdgirl76 Won’t even respect or listen to me when I try to share what has worked in the past and what I know help me get through that type of procedure. So definitely some huge systemic issues and a major lack of respect for patients knowing their own bodies and care needs.

[Tzipora Raphaella @Tzipity]

@ibdgirl76 The difference a caring provider who listens and believes patients and involves the patient in a plan up front can make in situations like this. With one fantastic IR PA I could’ve done even my now very complex replacements without meds if necessary. But most arent like her and

[Tzipora Raphaella @Tzipity]

@TheReginaHaley1 @linniefirst @ovalposedl36539 @CMerandi Like the Sackler’s could’ve never dreamed of having entire “OxyContin only” clinics. But Indivior has exactly that. It’s insane to me that they’re growing rich off of the very tactics they accused others of doing. So gross all around.

[Tzipora Raphaella @Tzipity]

@TheReginaHaley1 @linniefirst @ovalposedl36539 @CMerandi Absolutely. What’s wild about the bupe is that I’ve never seen a pain clinic I would’ve called a pill mill (even back before all the crackdowns) but the way each one of those no opiates but suboxone clinics function sure looks an awful lot like a pill mill pushing just one drug!

[Tzipora Raphaella @Tzipity]

@linniefirst @TheReginaHaley1 @ovalposedl36539 @CMerandi Exactly. Was gonna say the same thing though can’t argue they’re real quick and happy with the gabapentin. I’ve had it shoved at me, at elderly parents, at a terminally ill cat. I never saw opiates handed out that easily but gabapentin for all it seems.

[Tzipora Raphaella @Tzipity]

@smith_john96806 @CMerandi So many others have been fear mongered so hard over opiates that they don’t care. In fact I got to hear the doc who took over for her kind of criticize her prescribing and that’s also not at all appropriate. Felt like they threw my past doc and me under the bus. Good times.

[Tzipora Raphaella @Tzipity]

@smith_john96806 @CMerandi Had a wonderful PCP who was managing my meds and before she moved to another state I kept expressing my concern about who would take over. She promised me the doc coming after her would continue my meds. That’s not what ended up happening. So I think even when docs try…

[Tzipora Raphaella @Tzipity]

@EmjayClark Decide they somehow know best or it’s not autism because we don’t look like young boys with autism or whatever. I don’t think I’ve ever even been diagnosed with a PD by a real clinician though many years ago got a “possible cluster B symptoms” nod in a 10 min eval and yeah…

[Tzipora Raphaella @Tzipity]

@EmjayClark I debated trying to get my medical records emended recently after an anesthesiologist for a central line replacement decided this imagined PD was somehow pertinent to mention. Not the autism or adhd I was actively taking meds for. It’s so insidious the way random clinicians

[Tzipora Raphaella @Tzipity]

@ibdgirl76 Felt like he had a bias even though he didn’t technically use it against me. And I specifically called out the CSA thing because I think the true percentages are far higher. So doesn’t equate to me that oh you were raped as a kid, that’s why you’re sick. No no no.

[Tzipora Raphaella @Tzipity]

@ibdgirl76 I don’t know what the point of him asking those even was or how wonky it was to be told I was on the lower end (though I still have several). He was the one dr in the whole major med center who saw opiate dependent chronic pain patients too.

[Tzipora Raphaella @Tzipity]

@HerFlyingCar @ibdgirl76 Yiiikes. It still makes me sick in hindsight. Like why was I undressed for neck issues anyway? But I was all of about 20 at the time and just didn’t know better. Which is exactly how the pervy creep types prey on people.

[Tzipora Raphaella @Tzipity]

@PendleWitch_ @ibdgirl76 I actually had a lower score than his average patient which was equally bizarre to hear. They will find any reason they can to keep us from pain meds it seems.

[Tzipora Raphaella @Tzipity]

@PendleWitch_ @ibdgirl76 Wildly screwy to focus on just one or to shame someone for it and when I specifically called out my dr on even running me through those questions (personally I think CSA % is way higher than the commonly accepted 20-25% so an especially poor metric to judge anything on) he said