UniteNarcolepsy

Rallying people to share experiences about what it’s like to live with narcolepsy with FDA decision-makers who are ready to listen.

[Julie Flygare @RemRunner]

Can't wait for my presentation and book signing at the Kentucky Sleep Society's conference tomorrow! Raising #narcolepsy awareness.

[Wake Up Narcolepsy @wakenarcolepsy]

Researchers find new clue to cause of human narcolepsy: an excess of a brain cell type containing histamine. http://t.co/cdVghxlsZg

[Stephanie Fischer @RarePOV]

Please mark your calendar for a #RareDisease Tweetchat which I am hosting next Thursday, October 17th, at 4pm ET! #hcsm

[UniteNarcolepsy @UniteNarcolepsy]

@THEAdnAmA @wakenarcolepsy @RemRunner Thanks for participating, Amanda!

[UniteNarcolepsy @UniteNarcolepsy]

@sleepyfatguy Thanks for participating Jo!

[UniteNarcolepsy @UniteNarcolepsy]

@RedBradshaw @wakenarcolepsy @RemRunner Thanks for participating today!

[UniteNarcolepsy @UniteNarcolepsy]

Today we wrapped up our webinar series. Thx to all who participated! Watch today's program on-demand at http://t.co/ov1QcCemcV. #narcolepsy

[UniteNarcolepsy @UniteNarcolepsy]

@CVCinc @RemRunner Thanks for promo! The recording is available at http://t.co/ov1QcCemcV.

[Stephanie Fischer @RarePOV]

Join the Conversation: What are the priorities & challenges facing the #RareDisease community? http://t.co/sTqupyCX1B #HealthPOV

[UniteNarcolepsy @UniteNarcolepsy]

Join us Thurs at 2PM EDT for wrap-up webinar. We'll recap #FDA #narcolepsy mtg + share other updates. Free reg.: https://t.co/REm99RYOu1

[UniteNarcolepsy @UniteNarcolepsy]

@SDFatPhRMA Unfortunately, no. I was at #BIOPatientSummit. Too many good gatherings in D.C. area today! Catch you next time!

[UniteNarcolepsy @UniteNarcolepsy]

#Narcolepsy set a new "bar" for patient participation in drug development! Learn more on Thurs at 2 PM (Eastern): https://t.co/REm99RYOu1

[PhRMA @PhRMA]

Report: More Than 450 Innovative #MedsinDev for Rare Diseases http://t.co/3sGaFngmiY via @PhRMA Please Share

[Wake Up Narcolepsy @wakenarcolepsy]

FDA heard startling narcolepsy realities from patients and caregivers. Read a full recap of that remarkable day. http://t.co/ftnazx8GUU

[UniteNarcolepsy @UniteNarcolepsy]

Check out our detailed summary of last week's #patientfocused #FDA #narcolepsy meeting: http://t.co/b0jTQahFw7 Please RT & share!

[PhRMA @PhRMA]

Patient Focused Drug Development initiative incorporates #patient view in drug development says @NHCouncil http://t.co/LoV8DTyd69 #HealthPOV

[UniteNarcolepsy @UniteNarcolepsy]

Join us on 10/10 at 2 PM (Eastern) for 1-hr wrap-up webinar. Free registration: https://t.co/REm99RYOu1 #narcolepsy

[UniteNarcolepsy @UniteNarcolepsy]

Did you miss the #FDA #patientfocused meeting on #narcolepsy? Watch recordings, read transcript: http://t.co/uOqUrDTBHf

[UniteNarcolepsy @UniteNarcolepsy]

Recordings of last week's #FDA #patientfocused #narcolepsy mtg. Slides + transcript. http://t.co/uOqUrDTBHf

[Wake Up Narcolepsy @wakenarcolepsy]

News: Kim Grady, of Andover, MA, Boosts WUN http://t.co/dZsE2MUITg