UnPiCK Study

Understanding Presentation in childhood Chronic Kidney Disease: Research exploring how and when children are detected and diagnosed with CKD. Led by @ledicmucy

[Lisa Darwin @LisaDarwinHGCT]

What a week...my beautiful, brave daughter Beth has had her 🌎turned upside down, diagnosed with renal failure & now has to have #dialysis 3 days a week & hasn’t complained once! THANK YOU to all the staff at @CHFTNHS, & ICU children’s ward at @LeedsHospitals for your support💗

[UnPiCK Study @Unpickstudy]

@docdrewm @louise_oni (She says having woefully not looked at the literature in some time...)

[RCPCH @RCPCHtweets]

In England, only 40% of babies are breastfed at 6-8 weeks of age, giving us one of the lowest breastfeeding rates in Europe. This #WBW2018, we are joining forces to protect, promote and support breastfeeding. Read the RCPCH Position Statement here: https://t.co/oVvTDQa2CV

[Harry Kane @HKane]

Hi Ben, I've seen your video and you are an inspiration. Carry on fighting and we'll do everything we can on Saturday to keep a smile on your face! #BensWorldCup https://t.co/2Hgo3IC2lb

[Jyoti Baharani @renalpages]

Rare disease is common @RenalRadar #imed2018

[Lucy Plumb @Ledicmucy]

Husband @benjaminplumb (ITU registrar) received a thank you this week from @NHSBT for facilitating discussions around organ donation. So wonderful to hear of those who have benefited from his work and that of the MDT! 👍 #myhero #organdonation #transplantation

[UnPiCK Study @Unpickstudy]

New recruits! #whywedoresearch

[UnPiCK Study @Unpickstudy]

@UKRenalRegistry data suggests late presenters experience impairments in access to transplant for up to 12 months post-transplant: scope to improve a modifiable risk for graft loss if we can improve #detection of #CKD https://t.co/obmJRJuSSr

[Lucy Plumb @Ledicmucy]

Matko Marlais highlights 12% increased risk of graft loss for each year of dialysis pre-transplant using @NHSBT data #BAPN2018

[Lucy Plumb @Ledicmucy]

Dr Marks presenting pilot survey data from #ATTOMic suggesting 31% paediatric population presenting late in end-stage renal disease - massive barrier to timely #transplantation for #children - @Unpickstudy seeking to understand why! @OfficialNIHR @BAPNnephrology #BAPN2018

[UnPiCK Study @Unpickstudy]

Similar (but much smaller scale!) challenges with opening #qualitative #research @Unpickstudy study as bigger clinical trial #ecustec - thanks @docsallyj for highlighting challenges facing @BAPNnephrology members! #BAPN2018

[UnPiCK Study @Unpickstudy]

@RLWczyk So unbelievably jealous! 🎿 🎿 🎿

[UnPiCK Study @Unpickstudy]

In awe of and full of respect for patients and families who agree to take time out of their busy lives to participate or get involved in #research

#grateful #thankyou 😊😊😊

[Rare Disease UK @rarediseaseuk]

Patients tell us that one of the hardest things about having a #rare condition is that often their doctor may not have much information about the condition. Find our page on how to find information and support on conditions, and knowing if it's reliable https://t.co/hwLjYAblGf

[Lucy Plumb @Ledicmucy]

My attempt at infographic styling for #NIHRTM2017 #CKD #paedsrocks @OfficialNIHR @NIHR_trainees

[UnPiCK Study @Unpickstudy]

Great start for @Unpickstudy 🙌🙌 https://t.co/jvDOVZWfmz

[Lucy Plumb @Ledicmucy]

Super chuffed to have won poster prize at #NIHRTM2017 - couldn’t have done it without @FionaMacKichan @fjcaskey @UKRenalRegistry @BristolUni @OfficialNIHR 😀😀😀

[Lucy Plumb @Ledicmucy]

En route to @NIHR_trainees meeting 2017 (poster in tow) 😀 #paediatrics #nephrology #latepresentation #CKD @OfficialNIHR @BristolUni @UKRenalRegistry

[UnPiCK Study @Unpickstudy]

Wouldn’t be anywhere without #patient and #parent support 😀😀😀 #PPI #research

[UnPiCK Study @Unpickstudy]

Let’s get this show on the road! @Unpickstudy is on Twitter! HRA sorted, just the small matter of multi-site approvals before we are up and 🏃 🏃 🏃