@bsw5020 I get being positive....but the simplicity of this statement is fitting for a coffee mug, not a devastatingly deadly and IGNORED disease. Focusing on what we have is why we've gotten nowhere in 80 years. An approved treatment , now that would be AMAZING-sorry
Sadly I must report that we have lost my partner in crime the other dad in ALS Dads. Rex passed yesterday. I will continue to fight for him.
Rex, until we meet again. Please pray for his family especially his children.
#EndALS#fuckALS
Here's the issue: ALS can strike anyone...ANYONE at any time. Ignoring this reality could cost you your life or that of a loved one. It cost our family our amazing mother. And this disease has killed three other people I knew personally and is affecting one more. Rare? Hardly.
Did you know the neurotoxin BMAA is found heavily in shellfish like oysters & muscles, Fish that eat crustaceans like flounder & Sea bass, Crustacean (by far the worse) like blue crabs is the most toxic & shrimp a close second. Know what you eat. #ALS#EndALS#Alzheimers#googeit
If the environmental causes of ALS were known then we could prevent ALS. Very simple. There isn’t enough focus on studying environmental causes because big business wouldn’t like the answers. Huge industries would be destroyed & open to class action law suits. #EndALS#ALS
ALS Environmental causes:
• Trauma or injury to the brain
• Methyl Bromide
• BMAA
• Smoking
• Heavy Metal Toxicity
• Tainted Drinking Water
• Viral Infection of CNS
• High Fat & Cholesterol rich diet
#ALS#EndALS#WeAreALS
Any others?
Cortisol modifies the body’s response to inflammation. Could chronic Cortisol In-sufficiency actually cause Neurodegenerative diseases as inflammation is a hallmark in ALS? How do we test this theory and why aren’t we testing it? #ALS#EndALS#WeAreALS
We’re at war people.
@bsw5020@iamalsorg Hey Biotech executive or Private Equity Group - Do you want @JeffBezos to wonder who you are and who surpassed him as one of wealthiest American? There are over 50 million worldwide suffering from neurodegenerative disease. Trillion $ market. Join the fight -be a hero
Methyl Bromide causes ALS. All imported wood is treated with Methyl Bromide. You might have been exposed & not know it or chronically exposed to even small amounts which leads to Neuro Degeneration. #ALS#EndALS#WeAreALS#WarOnALS@bsw5020@iamalsorg@SteveGleason
Salk campaigned for mandatory vaccination, claiming that public health should be considered a moral commitment. Salk claimed that his sole focus had been to develop a safe & effective vaccine as rapidly as possible, with no interest in personal profit #CureOverProfit#EndALS#ALS
@alsadvocacy ALSA taking a shotgun approach with over 200 grants to many organizations. Would it be better to take rifle approach with fewer larger grants to existing promising treatments (NurOwn - CuATSM)? Had $13 million deficit spending in F/Y 2018 but still $90 million available.
@adamfwilson426@LetsKickSomeALS@bsw5020@iamalsorg@SteveGleason @ALSFlorida In New Zealand a “cluster” of six port workers in the Nelson area developed #ALS within a 10-year reporting period (1995–2005), five of them within a 4-year period (2002–2005).
The cause: methyl bromide gas
still used in the U.S. even though it’s been banned since 2005.
@ALSwarriorLeeG In New Zealand a “cluster” of six port workers in the Nelson area developed #ALS within a 10-year reporting period (1995–2005), five of them within a 4-year period (2002–2005).
The cause: methyl bromide gas
still used in the U.S. even though it’s been banned since 2005.
Countries that use the most Methyl Bromide have the most cases of ALS. Uruguay & New Zealand both heavily export wood. Imported wood has to be treated with Methyl Bromide according to U.S. law.
#ALS#EndALS#WeAreALS#Bromomethane
Knowledge is power.
Common Sense.