We Are ALS

We Are ALS is driven to cure #ALS NOW, not 20 years from now. Come join our fight. #WeAreALS #EndALS One day Google will say: ALS was a disease...

[elsie johnson @elsiejo22955940]

@bsw5020 I get being positive....but the simplicity of this statement is fitting for a coffee mug, not a devastatingly deadly and IGNORED disease. Focusing on what we have is why we've gotten nowhere in 80 years. An approved treatment , now that would be AMAZING-sorry

[We Are ALS @WeAreALSorg]

We’re praying 🙏🏻 for Rex & his family.

[ALS TX DAD @AlsDads]

Sadly I must report that we have lost my partner in crime the other dad in ALS Dads. Rex passed yesterday. I will continue to fight for him.
Rex, until we meet again. Please pray for his family especially his children.
#EndALS #fuckALS

[Alejandro Ruelas @Ruelas30606]

Here's the issue: ALS can strike anyone...ANYONE at any time. Ignoring this reality could cost you your life or that of a loved one. It cost our family our amazing mother. And this disease has killed three other people I knew personally and is affecting one more. Rare? Hardly.

[We Are ALS @WeAreALSorg]

One day soon Google will say, “ALS was an incurable disease....”
#EndALS #ALS #WeAreALS #WarOnALS
@bsw5020 @TeamGleason @SteveGleason

[We Are ALS @WeAreALSorg]

@bsw5020 @SteveGleason @AdyBarkan @PeteFrates3 @PQuinnfortheWin @AugieNieto Curing ALS & Associated diseases will never be thought of as crazy ever. Not curing it will be considered crazy. Polio was cured in 7 years with the backing of the American Government & Jonas Salk. We need billionaires, The U.S.A. Gov & a new Jonas Salk. #EndALS #ALS #WarOnALS

[We Are ALS @WeAreALSorg]

Did you know the neurotoxin BMAA is found heavily in shellfish like oysters & muscles, Fish that eat crustaceans like flounder & Sea bass, Crustacean (by far the worse) like blue crabs is the most toxic & shrimp a close second. Know what you eat. #ALS #EndALS #Alzheimers #googeit

[We Are ALS @WeAreALSorg]

@patfan59 Most Definitely Lyme can cause ALS mimic symptoms. CNS infections alter DNA.

[We Are ALS @WeAreALSorg]

If the environmental causes of ALS were known then we could prevent ALS. Very simple. There isn’t enough focus on studying environmental causes because big business wouldn’t like the answers. Huge industries would be destroyed & open to class action law suits. #EndALS #ALS

[We Are ALS @WeAreALSorg]

ALS Environmental causes:
• Trauma or injury to the brain
• Methyl Bromide
• BMAA
• Smoking
• Heavy Metal Toxicity
• Tainted Drinking Water
• Viral Infection of CNS
• High Fat & Cholesterol rich diet
#ALS #EndALS #WeAreALS

Any others?

[We Are ALS @WeAreALSorg]

Cortisol modifies the body’s response to inflammation. Could chronic Cortisol In-sufficiency actually cause Neurodegenerative diseases as inflammation is a hallmark in ALS? How do we test this theory and why aren’t we testing it? #ALS #EndALS #WeAreALS
We’re at war people.

[Tim McDaniel @TimTMcDaniel]

@bsw5020 @iamalsorg Hey Biotech executive or Private Equity Group - Do you want @JeffBezos to wonder who you are and who surpassed him as one of wealthiest American? There are over 50 million worldwide suffering from neurodegenerative disease. Trillion $ market. Join the fight -be a hero

[We Are ALS @WeAreALSorg]

@adamfwilson426 @LetsKickSomeALS @bsw5020 @iamalsorg @SteveGleason @ALSFlorida Seeing they use it on every imported wood into America they would knowingly be telling you they’re poisoning you. Who funds scientific studies? Lawsuits aren’t something they want to admit. Like roundup in wine, not good for business. #EndALS #Facts #ALS #BusinessOverHealth

[We Are ALS @WeAreALSorg]

Methyl Bromide causes ALS. All imported wood is treated with Methyl Bromide. You might have been exposed & not know it or chronically exposed to even small amounts which leads to Neuro Degeneration. #ALS #EndALS #WeAreALS #WarOnALS @bsw5020 @iamalsorg @SteveGleason

[We Are ALS @WeAreALSorg]

@momwithwheels @LetsKickSomeALS @bsw5020 @iamalsorg @SteveGleason @ALSFlorida Nope. Capitalism doesn’t product Jonas Salks anymore.

[We Are ALS @WeAreALSorg]

Salk campaigned for mandatory vaccination, claiming that public health should be considered a moral commitment. Salk claimed that his sole focus had been to develop a safe & effective vaccine as rapidly as possible, with no interest in personal profit #CureOverProfit #EndALS #ALS

[We Are ALS @WeAreALSorg]

@alsadvocacy @TimTMcDaniel Jonas Salk’s approach would be the best approach right now. History should be repeated here. #CureALS #EndALS #ALS

[We Are ALS @WeAreALSorg]

Yes, yes it would. 100% accurate. #JonasSalk approach. #EndALS #ALS

[Tim McDaniel @TimTMcDaniel]

@alsadvocacy ALSA taking a shotgun approach with over 200 grants to many organizations. Would it be better to take rifle approach with fewer larger grants to existing promising treatments (NurOwn - CuATSM)? Had $13 million deficit spending in F/Y 2018 but still $90 million available.

[We Are ALS @WeAreALSorg]

@adamfwilson426 @LetsKickSomeALS @bsw5020 @iamalsorg @SteveGleason @ALSFlorida In New Zealand a “cluster” of six port workers in the Nelson area developed #ALS within a 10-year reporting period (1995–2005), five of them within a 4-year period (2002–2005).
The cause: methyl bromide gas
still used in the U.S. even though it’s been banned since 2005.

[We Are ALS @WeAreALSorg]

@ALSwarriorLeeG In New Zealand a “cluster” of six port workers in the Nelson area developed #ALS within a 10-year reporting period (1995–2005), five of them within a 4-year period (2002–2005).
The cause: methyl bromide gas
still used in the U.S. even though it’s been banned since 2005.

[We Are ALS @WeAreALSorg]

Countries that use the most Methyl Bromide have the most cases of ALS. Uruguay & New Zealand both heavily export wood. Imported wood has to be treated with Methyl Bromide according to U.S. law.
#ALS #EndALS #WeAreALS #Bromomethane
Knowledge is power.
Common Sense.