The Pennsylvania Rare Disease Advisory Council looks to provide resources, support, education, and more to those who are #raredisease patients, caregivers, and all advocates.
Please follow our website https://t.co/K7iMny6JxP for more information
#PARare#raredisease
Former @SCSpikes @Larsnootbaarstl in the @WBCBaseball#StlCards
https://t.co/zxcYyGYbKf
Most Japanese couldn't recognize Lars Nootbaar a few weeks ago, before the World Baseball Classic opened. The impromptu song lyrics have anointed Nootbaar as ...
It's #RareDiseaseDay! Our ๐ hearts go out to everyone living with a #RareDisease, including those born with Homozygous FH. We continue to fight for early diagnosis and treatment to give hope and support to every member of our HoFH community! #KnowFH#KnowHoFH
Today is #RareDiseaseDay where advocates from for ALL Rare Diseases gather in Washington DC to advocate for goals that will benefit the entire Rare Disease Community.
I am missing this year, but I know my friends are there working hard for all of us.
@Hertz you failed me miserably today.
When you try to charge a $500 Security Deposit on my Credit Card without disclosing this policy ANYWHERE in the numerous emails I got before the day came
Bottom Line: YOU SUCK
Happy Valentine's Day! Celebrate today by showing love to the patients of rare diseases, the doctors & staff that work alongside rare disease patients, and all your family and friends!
Spread the #LOVE
Follow our website https://t.co/vZUYLCWKMN for more information.
#PARare
I used to Lโฅ๏ธVE #BoomBoom Sauce...but when I Am spending almost $7.00 for an appetizer...then you charge almost an extra dollar for a Sauce....it cause me a ๐
Disappointed in you @sheetz