WorkingAndNotWorkingWithLongCovid

All about #LongCovid paid work/not being in paid work #Benefits including energy limiting conditions: Dr Clare Rayner, Dr Jenny Ceolta-Smith and Pen Scribbler

[WorkingAndNotWorkingWithLongCovid @WorkingWithLC]

1/ We will add here links to resources for workers and stakeholders on #WorkingWithLongCovid some we were involved in.
These are mainly U.K. but some have transferability to other countries. Please share and tag us to other resources 🐝 #LongCovid

[David Joffe MB BS (Hons), PhD, FRACP 🇦🇺 @DavidJoffe64]

Best to stop reading after "Post Pandemic" @EricTopol

My ever growing cohort of Long Cövid patients couldn't earn a dime without WFH. Many acquired their new found disabilities in the workplace... They aren't rushing back

[Dr Jay Watts @Shrink_at_Large]

@hinchliffe1569 They are unbelievably bad! I went through their training programme once with a whistleblower and it was worse than the mental health first aid training! Ditto awful for chronic conditions esp long Covid, EDS, endo, fibromyalgia etc. a sympathetic 7 year old would do better x

[Disability News Service @johnpringdns]

Minister is asked why he expects disabled people to fund their own PIP review engagement events
#PIP #TimmsReview
https://t.co/Kh6niTxK6x

[PenScribbler @ScribblerPen]

They are not even waiting for the outcome of the #Timms review before handing #PIP assessments for tens of thousands of people over to non-clinical assessors. https://t.co/dDBNA5MuDu
DWP secretly exposes 150,000 PIP claimants to new assessment system that is ‘recipe for disaster’

[Dr Jay Watts @Shrink_at_Large]

The DWP is trialling an even worse assessment system on 150,000 PIP claimants. Af the moment, DWP employed healthcare professionals make the decisions on scoring - already a disaster rating conditions they often don’t understand. In this trial, it won’t even be professionals! 😱

[Cat in the Hat 🐈‍⬛ 🎩 🇬🇧 @_CatintheHat]

@SmartAirFilters It’s brilliant to see yet another study showing how effective air filters are at reducing student illness absence in schools.

Link to full paper for those interested:
https://t.co/8eBWtYLGk1

More studies in thread below ⬇️

[Bateman Horne Center @BatemanHorne]

Our most-viewed YouTube video last month is worth another look.

"What is ME/CFS?" breaks down the core symptoms of ME/CFS, including PEM, cognitive impairment, unrefreshing sleep, and orthostatic intolerance.

Watch now: https://t.co/aPinStIYpm

[PenScribbler @ScribblerPen]

Unpacking the Milburn interim report. Conditionality on steroids for disabled young people. Zero understanding of disability, needs or workplace realities. https://t.co/OvmkGUP7Ap

[WorkingAndNotWorkingWithLongCovid @WorkingWithLC]

@alitwy @LC_Physio @ScribblerPen @crr7310

[WorkingAndNotWorkingWithLongCovid @WorkingWithLC]

Why? Well, the photo you have selected speaks volumes. The two workers are NOT protected from airborne viruses with those surgical masks & risks of sickness absence remain. They need #FFP3/ 2 #CleanAir take a look at : @covidinquiryuk @_CatintheHat @1goodtern @SupportingHH_UK

[Policy Exchange @Policy_Exchange]

Sickness absence levels in the NHS (5.15%) are almost three times higher than in the private sector (1.8%) – and more than half as much again as staff in the rest of the public sector (2.9%)

Why?

Because of the NHS’s extraordinarily generous sick leave policies.

[Jess Plant @IAmJessPlant]

When @patmcfaddenmp wants to use PIP to ask "how do we help change your life", implies that disabled people are doing life wrong, and that all disabilities (including chronic illnesses can be "overcome") which just isn't true. Lots of people will need continuing support.

[Long Covid Advocacy 💙 @LongCovidAdvoc]

Excellent article by Todd Davenport on Alan Levinovitz & that WIRED article.

One to read! 👇

[@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 @JCeoltaSmith]

@Helen_Whately @Policy_Exchange Year seven of unsafe practices to mitigate against #Covid19 for so many #NHS workers and the cruel attacks continue .
@SupportingHH_UK
@LC_Physio @WorkingWithLC

[DPAC @Dis_PPL_Protest]

#PIP

DPAC’s Timms Review Submission

https://t.co/jZMXFy8OvC

[Disability Rights UK @DisRightsUK]

"I’m in the same job, I’ve got the same impairment, is it likely that my need for Access to Work support has changed? The answer is a definitive no."

DR UK's Head of Policy Fazilet Hadi speaks about her own frustrating experience with Access to Work 👇
https://t.co/yFl4ht0Umr

[WorkingAndNotWorkingWithLongCovid @WorkingWithLC]

@hannahspierMD We will park this here : https://t.co/46uLYUyu5n

[Todd Davenport @sunsopeningband]

I didn't have it on my calendar to do any writing this week. That...changed.

Unscheduled post on the Substack, up now. https://t.co/bpxMEnZgEK

[Putrino Lab @PutrinoLab]

Wonderful day for a new #LongCOVID paper! Thanks to an incredible collaboration with @VirusesImmunity and brilliant work done by @keylas3, we studied the effects of injecting antibodies taken from people with LC into mice compared with what happened

https://t.co/uotWM9LUEG

1/

[Disability Rights UK @DisRightsUK]

🚨NEWS 🚨

"One in four of us is Disabled. It’s time the UK government heard us"

Labour needs a new direction. Its first step must be to stop treating Disabled people as a problem to be managed - DR UK Head of Policy, Fazilet Hadi for @openDemocracy 👇https://t.co/8Mff6yQBe3

[Supporting Healthcare Heroes UK @SupportingHH_UK]

Returning to work with Long Covid? Managing work while unwell?

Join our Evening Peer Support Group on Thurs 4 June at 7pm. This month we’ll be talking about reasonable adjustments at work and sharing experiences.

Join via this link: https://t.co/bdhnDsYUtR

[Supporting Healthcare Heroes UK @SupportingHH_UK]

COVID didn't become less serious because we stopped talking about it. People are still catching it, still being reinfected and still developing Long Covid. This guide from the WH Network lays out exactly where we are in 2026 and what needs to change.

🔗 https://t.co/8DZwBuMwKC