Wreckedfromlongcovid

[Wreckedfromlongcovid @WreckedfromLC]

#LongCovid #LongCovidKids
#PEM #CFS #ME

[BBC News (UK) @BBCNews]

Woman died after begging GP for help - inquest https://t.co/DrmXoNpV7B

[Tom Kindlon @TomKindlon]

Functional neurological disorder is not an appropriate diagnosis for people with long Covid - by David Tuller @davidtuller1 , Mady Hornig @mhornig , and David Putrino @PutrinoLab

https://t.co/gYKS0I16EY

#LongCovid #PwLC

1/

[Long Covid SOS @longcovidsos.bsky.social @LongCovidSOS]

"Covid attacked my central nervous system, and I’ve had long Covid since"

Another athlete's career hangs in the balance due to #LongCovid

Lauren still hopes to take part in the Paris Olympics but as yet "doesn't feel ready"

We wish her all the best ❤️

https://t.co/CnntpQV1ce

[Oonagh Cousins @oonagh_cousins]

My Unite to Fight presentation is up on YouTube!

Structured in three parts:
1. My illness timeline
2. Why GET/CBT is useless and harmful
3. The Oxford research project I am currently part of.

[Putrino Lab @PutrinoLab]

Absolute dream team. Finally, a disclaimer: all mice were offered CBT to address their misguided illness beliefs and “functional” disabilities but it didn’t work because they are mice and this is real science. 🙏🏻🫢💪🏼🐁
/end

[Long Covid Advocacy Ireland @LCAIreland]

"Toby got Covid in January 2022 and hasn’t been well since"

"They said he would get better, although it might take a few months. No one says that anymore"

"Toby was improving last year, getting into school for a lesson a day. But then he got Covid again"
https://t.co/XYQ9RYS59D

[Long Covid SOS @longcovidsos.bsky.social @LongCovidSOS]

Another great article highlighting how challenging life with #LongCovid is, and how huge the loss of a previously active life can feel

Thanks to @samwollaston and Natacha

The article also covers frustration with the lack of medical & social support…

https://t.co/0Ue9tuYmLW

[Putrino Lab @PutrinoLab]

Thank you @ChrisCuomo for having me on to discuss the effects of #covid19 and #longcovid on the immune system and general health. Remember: we have no evidence to suggest that even mild #COVID infections are “harmless”, but we do have evidence to the contrary. Prevention is key.

[dr jack lambert @jlamber55605930]

@vicmidnightsun @HSELive Most of cases I am seeing are those catching Covid after being in hospital for a week
Why are healthcare workers not wearing masks?

[MIRAME ARTS @MIRAME_ARTS]

We have produced a short film about #MECFS patients' prejudices. The film shows artistically how the disease isolates patients by breaking even their closest bonds through a lack of understanding from friends, partners, and relatives.

Director: Béla Baptiste
#WorldMEDay

[Liam Quaide TD @LiamQuaide]

Utterly lacking basic decency & fairness towards healthcare workers who contracted Covid in high risk settings & who continue to pay an enormous price with their health & quality-of-life.

What modest sum would this have cost the exchequer & how much stress and hardship averted?

[Oonagh Cousins @oonagh_cousins]

Brilliant documentary on the ME scandal. "The history of ME remains one of the worst examples of unacknowledged institutional abuse in modern times.” Valerie Eliot Smith 2019

[dr jack lambert @jlamber55605930]

@bobbie_cal @YouTube @MichealMartinTD The money for long covid has been given to the wrong specialists who are advising the wrong approach to treatment. And not even running clinics to support patients. Ldn is covered in the west but not east. Melatonin advised per uk guidelines but Ireland refuses. No accountability

[Katharina 🦋🍀 @katha1970]

"We know an awful lot of what happens with Long Sars and ME/CFS. If we don't act now, LC sufferers will experience the same and have no hope on the horizon for the next 20 years. As a civilized society, as medics, we can't let that happen."
Prof. Danny Altmann
#unitetofight2024

[Long Covid Support @long_covid]

“Rowan was the fittest he had been, running 15km a day & preparing to take a fire service exam…
doctors were like ‘There’s nothing wrong with you’…it was medical gaslighting…
why would I quit my job…It just didn’t make any sense”

#LongCovid
#MECFS

https://t.co/gwW2aCJYnY

[Wreckedfromlongcovid @WreckedfromLC]

Many other professions very badly affected by #LongCovid also. Best wishes and hopefully @DonnellyStephen
will finally do right by you.
The healthcare workers with long Covid: ‘I’m living with the consequences of a ‘meaningful Christmas’’ https://t.co/JloKJ7lPyk

[Long Covid Support @long_covid]

At #UniteToFight2024 our Ambassador @oonagh_cousins is knocking it out the park!

“PEM is nothing like the feeling of deconditioning… Rowers train for 25 hours a week, 49 weeks a year. I was sick NOT deconditioned.”

#LongCovid

[Sinead O'Brien @sinebrien]

If only the @HSELive put the same resources into a public health media campaign to raise awareness of the risks of death and disability after getting a Covid infection. The fact that covid can impair brain function is also something we should be concerned about on our roads.