Lisa ⚠️ Haus of Zips

Living life 2 the fullest #Chiari #IH #Hydro #EDS #TBI #TN 🤯 Fueled by #Faith 🙏🏼 #Brobee 💚 #Cupcakes 🧁 #Dance 💃🏻 #PureBlood 🩸#GodWon 🐸

[Lisa ⚠️ Haus of Zips @ZipperheadLisa]

It was an absolute honor to be the first patient on the European Society for Magnetic Resonance in Medicine and Biology’s podcast. Big thanks to @mosszhaodphil and the #ESMRMB for kicking off #ChiariMalformation awareness month in such an amazing way! #PartOneOutNow 🎉🧠🎉

[Moss Zhao, DPhil @mosszhaodphil]

In honor of #ChiariMalformation Awareness Month, Dr. Moss Zhao speaks with Lisa Reuter-Clarke about her diagnosis journey, MRI experiences, and decompression surgery.
🔗 Listen now: https://t.co/ddCEqVHnVk
#ESMRMBPodcast #ChiariAwareness #MRI

[Lisa ⚠️ Haus of Zips @ZipperheadLisa]

Today at 8pm EST is the last chance to donate to Stanford’s Day of Giving, and designate your donation to Dr. Moss Zhao’s Chiari Research. Please see the link in the post below and follow the instructions to designate your donation to the funding I am promoting as an Ambassador during this event. Thanks in advance for any amount that you can give to help move Chiari Malformation research through groundbreaking imaging techniques and research. (((((Grateful for y’all HUGS))))) 😘🧠❤️🧠😘 Thanks to @mosszhaodphil for all that he and his team are doing for Chiari!

[Lisa ⚠️ Haus of Zips @ZipperheadLisa]

I’m proud to be a Stanford Day of Giving Ambassador! 🌟 Join me May 13–14, and donate to the Stanford Medical Fund and choose “other” as designee and input “Moss Zhao’s Chiari Research” when prompted. https://t.co/WVM5YThp9b #StanfordDayofGiving #StanfordMedicine #StanfordNeurosurgeryResearch #StanfordChiariMalformationResearch

[Lisa ⚠️ Haus of Zips @ZipperheadLisa]

I’m proud to be a Stanford Day of Giving Ambassador! 🌟 Join me May 13–14, and donate to the Stanford Medical Fund and choose “other” as designee and input “Moss Zhao’s Chiari Research” when prompted. https://t.co/WVM5YThp9b #StanfordDayofGiving #StanfordMedicine #StanfordNeurosurgeryResearch #StanfordChiariMalformationResearch

[Moss Zhao, DPhil @mosszhaodphil]

The brain’s story begins long before we realize it. Mapping brain health at the very beginning of life — because understanding the brain should start from day one. 🧠✨
Our Team: @brainpaparazzo @yevap_mri
Research Support: @StanfordMCHRI @AHAScience

[Moss Zhao, DPhil @mosszhaodphil]

Listen to our latest episode featuring a brain AVM patient
@TAAF @AHAScience #RareDiseaseDay

[Lisa ⚠️ Haus of Zips @ZipperheadLisa]

Today is Rare Disease Day.

Dr. Moss Zhao @mosszhaodphil and The European Society for Magnetic Resonance in Medicine and Biology @ESMRMB have an amazing podcast. They recorded a special episode for Rare Disease Day, where we get to hear from a patient who is living with Arteriovenous Malformation (AVM).

Please listen to this episode of the podcast, and check out the other fascinating episodes as well.

Visit @rarediseaseday to learn more about Rare Disease Day. #rarediseaseday #raredisease #esmrmb #arteriovenousmalformation #avm 🎙️🧠🦓

[Moss Zhao, DPhil @mosszhaodphil]

Check out our first Live Podcast recorded during ESMRMB 2025.
Please share/retweet

[Lisa ⚠️ Haus of Zips @ZipperheadLisa]

@mosszhaodphil This is absolutely amazing and game changing! Wouldn’t expect anything else from your work, @mosszhaodphil 🎉🧠🙏🏼🎉

[Moss Zhao, DPhil @mosszhaodphil]

🚀5 minutes. No needles. No radiation.
We developed a pediatric MRI technique that’s not only safer for kids but also reduces medical waste and carbon footprint.
Grateful to collaborate with incredible colleagues and patients—our research is meaningful because of them

[Moss Zhao, DPhil @mosszhaodphil]

(Another) New publication!
From late-night Emails to cross-continental Zooms, our new paper traveled further than any blood flow it measured.
Join us to better understand, and protect, the developing brain.👶🧠
https://t.co/6C69873i5k
@StanfordNsurg @yevap_mri @AHAScience

[Lisa ⚠️ Haus of Zips @ZipperheadLisa]

Great job, @mosszhaodphil excited to see where this leads, and how it could be used in neonatal diagnostics of the brain blood flow issues found with hypoplastic posterior fossa/Chiari. #Bravo #InnovationInAction @stanfordneuroi1 @StanfordMCHRI @StanfordNsurg @StanfordPeds @AHAScience

[Moss Zhao, DPhil @mosszhaodphil]

New publication alert!
How do you measure brain blood flow in preterm infants 🍼—without causing harm?
https://t.co/ZwMS4xFJsM
Please share/retweet
@StanfordNsurg @StanfordMCHRI @stanfordneuroi1 @StanfordPeds @AHAScience @brainpaparazzo @yevap_mri

[Lisa ⚠️ Haus of Zips @ZipperheadLisa]

@mosszhaodphil @SantaLuciaIRCCS @NeuroVale Love the title of your presentation! 🧠

[Moss Zhao, DPhil @mosszhaodphil]

New publication alert!
How do you measure brain blood flow in preterm infants 🍼—without causing harm?
https://t.co/ZwMS4xFJsM
Please share/retweet
@StanfordNsurg @StanfordMCHRI @stanfordneuroi1 @StanfordPeds @AHAScience @brainpaparazzo @yevap_mri

[Moss Zhao, DPhil @mosszhaodphil]

How do we monitor fragile brains without radiation?
Our new @_JCBFM study shows how non-invasive MRI can track cerebral perfusion + autoregulation in children with #moyamoya
Now featured by @StanfordNsurg
@AHAScience @StCrossCollege
Please share/repost
https://t.co/HMwa19xRFb

[Lisa ⚠️ Haus of Zips @ZipperheadLisa]

Congrats @mosszhaodphil 🎉🎉🎉🎉🎉 @ESMRMB #ESMRMB2025 #ESMRMBpodcast #poster

[Moss Zhao, DPhil @mosszhaodphil]

Come to PG369 to check our poster at #ESMRMB2025 @ESMRMB

[Lisa ⚠️ Haus of Zips @ZipperheadLisa]

@mosszhaodphil @ESMRMB Safe travels!!! #ESMRMB

[Stanford Neurosurgery @StanfordNsurg]

Today is Trigeminal Neuralgia Day!

This is a condition that manifests as severe chronic facial pain. Here at Stanford, our multi-disciplinary team offers a range of services from diagnosis, pain management, physical therapy, and in some cases neurosurgical therapy. #TN

[Lisa ⚠️ Haus of Zips @ZipperheadLisa]

October is Dysautonomia Awareness Month.

My 10+ year journey to get a correct diagnosis after my cerebellar stroke included dysautonomia. Before my Chiari diagnosis, I would pass out at work, load up on salt/fluids, continue working and then go to the ER. This was something that happened often, and I was never properly diagnosed with dysautonomia until I met with the cardiologist who worked with my neurosurgeon to help diagnose patients with Chiari and related conditions.

The first doctor I saw before my neurosurgeon appointment was a cardiologist who worked closely with my neurosurgeon. I was told that I would have a cardiac tilt table test, and that many of my neurosurgeon’s patients had dysautonomia issues. I remember getting an IV (used to inject a stimulant during phase 2 of the test), and being strapped onto what looked like a Frankenstein slab.

It seemed silly to me at first, and I was told that the usually fidgeting/moving I did whenever I had a dizzy spell or pre-syncope episode would be restrained. I was strapped in the supine (horizontal/flat) position, and was told that I would be raised up (tilted) to a semi-standing position. I would be unable to move my feet, legs, torso, arms, etc. during the test, and should become symptomatic if I have a positive response to being brought upright. I prepared to feel nothing, and was told that there was no stimulant given at this stage of the test.

I was raised upright, and immediately had extreme dizziness (pre-syncope) profuse sweating and nausea. My blood pressure immediately dropped to 50/20 and I had a tachycardic episode…this prompted an all-knowing smile from the cardiologist as he very quickly lowered me back to supine/flat. He stood over me and held my hands and said “he (my neurosurgeon) can help you!”

He explained that I had Neurally Mediated Hypotension (now called Neurocardiogenic Syncope), and my neurosurgeon would be able to help me due to the brain connection with the type of dysautomonia that I had. This was the first definitive diagnosis that pointed to compression of my brainstem and Chiari Malformation. I remember happy tears flowing with my Mom…you either pass or fail a tilt table test, and my failing it miserably was a HUGE piece of my diagnostic puzzle.

Interestingly enough, dizziness/pre-syncope/passing out was not in my top complaints. It ended up that I had become a pro at getting down to the ground/flat and/or fidgeting/moving to prevent passing out. Since no one had figured it out before the tilt table test, I had just learned to exist with it.

After my Chiari diagnosis, and miracle of healing from my decompression surgery, I realized quickly that after 10+ years of living with Neurally Mediated Hypotension, it was completely gone! I had a repeat cardiac tilt table test at my one year post-op checkup. I made it through all phases of the test and passed it! The test was also repeated a year after my car accident, and I also passed the test after all phases!

Here is an amazing presentation on dysautonomia from a Chiari Conference that I attended last year. Dr. Jaradeh is one of THE best in this field of study.

https://t.co/nOc0Q6sECY