Good at promoting Shared Decison Making. Crap at walking and breathing (well, you can’t have everything). Pro CYP rights & Anti ablism. PGR student (yay!)
As a disabled person, I experience #ablism and #hatecrime too often. I'm going to post some on this thread to help people understand. Please do add your own experiences to it. This thread isn't a moan or a pity party, it's just the truth.
Some of you know I’m poorly rn. I have a ridiculous plan to take part in a triathlon as part of my recovery. Please donate if you can and want to, know that it’s fine if you can’t or don’t, and question my life choices either way…
https://t.co/i1f7jr7VPD
@timboxall My selfish question: are they going to consider MSers in the group that doesn’t need reassessment? It’s a hard line when they’re calling it ‘people who can never work’ which seems a high bar, but MS gets worse not better. Thoughts? #DisabilityBenefits#pip
I’m in hospital and a kind, generous lovely stranger donated the plasma going through this line and helping my body heal. Please be the stranger for another sick person #giveblood
p.s I’m assuming they were kind and lovely but I don’t really care. I’m just a vampire after blood
@ShannonAnNead@Shrink_at_Large Wheelchair user with MS/ other physical disabilities here. I have a hope of qualifying but I’m appalled by the idea that some groups will not. I will absolutely stand with my differently disabled and ND friends. We can’t exclude any person from the support they need. Solidarity
And please, stop the rhetoric that disabled people are 'taking the micky' or using up too much public money. You're making us feel like our existence is a problem. We are worth more than that
@munirawilson please stand up for your disabled constituents. If you can cure my degenerative and painful condition I'd be delighted to hand the money back.
Being disabled isn't a choice. Not working isn't a choice. Extra costs PIP helps with aren't a choice. It's shit I can't work, but don't let Keir take away my safety net.
@_mullally_el_ The number of children with autism isn’t trebling. The number of children getting the appropriate diagnosis and support is trebling. Serious questions need to be asked as to why we let so many children down by missing their autism in the past.
When people ask what it feels like to live with an incurable degenerative illness. This. It feels like this. Thanks @hopefullizzy for finding the words #multiplesclerosis#shift.ms
Please click on the image for the full poem. Bit of a raw one, but I know many will relate.
I wrote it for/of my mum really.
#MECFS#poetry#chronicillness
Had my car window smashed and blue badge stolen. Whatever, crime is a societal issue and we have clearly let someone down. Had to go to have IV antibiotics. Fab that I’m in a country with free healthcare and access to antibiotics. But really world? All in one day?
So good to meet Katie Acheson who is on a Churchill Fellowship from Australia. Talked all things young people’s participation and health. Amazing new perspectives for my PhD @StMarysPsy
@hopefullizzy This isn’t inspiration porn btw, I just know that when you’re not being heard and your body is suffering in a way a doctor can easily avoid, it can be hard to remember your value
@hopefullizzy This is awful Lizzy. I have nothing useful to add, but sending love and empathy. Please remember what a positive influence you have on the world and how much you change it for people with ME (you support me to support my disabled employee for one thing!). We appreciate you