Danielle McGlynn

Proud PKU Mum and #NSPKU / rare diseases supporter! Dementia carer! Loves our planet! Mad cat lady!

[Danielle McGlynn @_Danielle_Ross_]

@DefraGovUK have your say on the Gov Consultation on sewage discharge into our waterways. Closes 12th May 2022. https://t.co/NhGrr7vST2

[GoLADACAN @GoLadacan]

“... this proposal would create noise blight across north Hertfordshire, with flights increasingly starting at 5 in the morning and running on into the early hours, keeping thousands more people awake at night. The harms outweigh any possible benefits.”

https://t.co/t8EcjM2YHM

[GoLADACAN @GoLadacan]

Planning inspectors have now visited our local communities to see and hear Luton Airport's impacts... noise levels in rural areas. Please tell them by 23rd June whether you want 70% more flights, more traffic, more air pollution. Register via the link

https://t.co/xPW3SppuCS

[GoLADACAN @GoLadacan]

Support @BimAfolami campaign for your community
https://t.co/bPKXDI3oZc

[Feargal Sharkey @Feargal_Sharkey]

A huge well done to all the staff at @EnvAgency & @NaturalEngland.

John Price sentenced to 12 months in prison, pay £600,000 in costs, disqualified from being a director for 3 years and subject to a Restoration Order.

Fantastic outcome. Tip of the hat.

https://t.co/y8HfZfZlwx

[GoLADACAN @GoLadacan]

Write to @BimAfolami who is fighting for residents' rights. #individualrights #ClimateAction

https://t.co/bPKXDI3oZc

[Feargal Sharkey @Feargal_Sharkey]

BLUSH!

[GoLADACAN @GoLadacan]

Time for Government to step up and protect individual rights. @BimAfolami

Hitchin MP Bim Afolami launches bid to stop new plans to expand Luton Airport to 32 million passengers https://t.co/agvPkhUj7j

[GoLADACAN @GoLadacan]

Despite the latest #IPCCReport informing us no new #fossilfuel expansions can be allowed, #LutonAirport application to expand to 32 mil passengers a year was approved. Follow us for updates on how to object here and our website:
https://t.co/fgNcDKJfWs
#climatechange #ukairports

[GoLADACAN @GoLadacan]

Breaking News: Documentation submitted by Luton Rising for expansion of the Airport to 32 million passengers has passed the Planning Inspectorate quality test. Now the Examination stage begins.

Visit Ladacan's website to find out more.
https://t.co/EX0Jb0PZ8H

[GoLADACAN @GoLadacan]

Luton Airport: Expansion plans reckless, irresponsible and unsustainable says campaigners with 5am flights over Hitchin proposed https://t.co/nawjW6EIxK

[Chris Riches @ChrisMRiches]

This is the time when not just #cysticfibrosis but other #chronic conditions are finally added to list of those qualifying for free #prescriptions such as #pku. Come on @DHSCgovuk @DHSCmedia @SteveBarclay. To add all p/w CF would only cost under £300k a year!! @Daily_Express

[Kate Learoyd @PKUFamily]

It’s so interesting 🤔 to see that expensive medical interventions are being used for people who are healthy (but overweight) while people with the rare disease #pku only get the option of an extreme diet to treat their rare disease. The dietary interventions are very different.

[GoLADACAN @GoLadacan]

Excellent update from Andrew Lambourne of Ladacan on @BBC3CR this morning. Also more here https://t.co/viZdBEvCbm

[GoLADACAN @GoLadacan]

Despite strong public opposition, #LutonAirport are officially submitting their DCO to expand to 32 million passengers a year.
If permitted, this will destroy Wigmore Park and #carbon emissions will contribute massively to the #ClimateEmergency. Read more: https://t.co/viZdBEvCbm

[Chris Riches @ChrisMRiches]

Happy faces of children one year after starting #cysticfibrosis drug #kaftrio as @Daily_Express highlights how #covid vaccine mRNA tech is now helping scientists look at ways to treat #genetic conditions like CF and #pku @cftrust @PKUFamily @NSPKU @NHSEngland @NHSEnglandMedia

[Kate Learoyd @PKUFamily]

The @RoyalMail is part of the care pathway for people with pku. Newborn screening diagnosis time depends on the mail delivery to labs, and ongoing pku blood monitoring too… critically important especially for health of pregnant women and young babies. @NSPKU

[Danielle McGlynn @_Danielle_Ross_]

@RoyalNavy @PoppyLegion @BBC_HaveYourSay Happy 103rd birthday to
ex-naval officer & senior civil servant, Norman McGlynn MBE, who served on HMS Speedwell during WW2. "Keep smilin' ☺️"! https://t.co/tP4ckC5m3h
#articconvoys #RoyalNavy #HMSSpeedwell #RBL #WW2Veteran

[Kate Learoyd @PKUFamily]

The current arrangements for access to sapropterin conflict with NICE guidance, risk patient outcomes and need to change ASAP. ⁦@BIMDG⁩ ⁦@LizTwistMP⁩

Open Letter to British Inherited Metabolic Diseases Group about Sapropterin Testing - NSPKU https://t.co/SwqKifpyOx

[GoLADACAN @GoLadacan]

LADACAN represents local people at Airport Inquiry

https://t.co/28wgQX1dwQ