REiCOP

Red Española de Investigación en COVID Persistente/Spanish Research Network on Long COVID. [email protected]/ Bluesky:

[REiCOP @_REiCOP]

🆙 Seguimos creciendo y trabajando juntos para conocer más sobre la #COVIDpersistente y mejorar la salud de l@s afectad@s.

Somos
✓68 entidades colaboradoras
✓9 colectivos de pacientes
✓ más de 270 profesionales colaboradores/as

#SomosREiCOP
#JuntosSumamos

💙🤍 Gracias

[Danilo.Buonsenso_Surf4Children @surf4children]

guys i’m so excited that this model of clinical assessment is working ibcreadibly well for the first ppl with #longcovid #mecfs !
im confident this will become a standard of care preliminary assessment for these patients.

and as always I’ve made it free for all, while clinics charge you hundreds of dollars each time.
you can just select a little tip when you use it to cover my costs and keep it always free

you want me to share the link?

[REiCOP @_REiCOP]

🔴¿Qué es el COVID persistente y cómo se manifiesta?
La paciente y médica 👩🏼‍⚕️@Anita_Your_Doc da visibilidad a la #COVIDpersistente junto a otros profesionales sanitarios
@covidextremadur @covid_madrid
https://t.co/3c5fyD1wST

[SEMG 🩺 #OrgullososDeEstarALaCabecera👩‍⚕️👨‍⚕️ @SEMG_ES]

🗣️ "Hemos normalizado ciertas cosas y eso nos ha llevado a descuidar medidas que siguen siendo fundamentales para prevenir enfermedades"

💻️ El webinar “P+REPARACIÓN PANDÉMICA”, organizado por la Red Española de Investigación en COVID Persistente (@_REiCOP), reunió a expertos nacionales e internacionales, especialistas en salud pública, enfermedades infecciosas, neumología, medicina de familia y pacientes expertos para analizar los avances más recientes.

🔬 Durante la sesión se presentaron evidencias científicas actualizadas sobre la transmisión de infecciones respiratorias y la necesidad de reforzar estándares de calidad en la prevención, así como la actualización de los marcos formativos y regulatorios en salud pública.

👥 Asimismo, se incorporó la perspectiva de los pacientes, subrayando la relevancia de su participación en el desarrollo de consensos y en la orientación de las políticas sanitarias.

Agradecemos a los ponentes su valiosas aportaciones:
🌍 Dr. José Luis Jiménez (Universidad de Colorado, CIRES)
📚 Dr. Jaime Acevedo (REiCOP / #Prevención1234 / ONG DESINFLÁMATE)
💬 Panel de expertos: Dr. José Ramón Blanco, el Dr. Joan B. Soriano y la Dra. Pilar Rodríguez Ledo (REiCOP y SEMG)
🧑‍⚕️ Isabelle Delgado (Long Covid Euskal Herria)

📰 Noticia completa en https://t.co/OcLFyH7oBl

[REiCOP @_REiCOP]

🚩Expertos analizan las claves en prevención y control de infecciones en el webinar "P+REPARACIÓN PANDÉMICA"
"Hemos normalizado ciertas cosas y eso nos ha llevado a descuidar medidas fundamentales para prevenir enfermedades respiratorias" @Pilar_RguezLedo

https://t.co/pojHRGNude

[S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic]

🧠 I find healthcare professionals pushing psych narrative on patients with neuroimmune disorders sad and uneducated. I just had a patient from a European country with good healthcare system where her doctors think #POTS and #LongCOVID are psych problems.
📢 There is a lot of education and unlearning of the old and outdated notions that physicians must do to help themselves become better doctors and help their patients to have better lives.
👩‍🔬 I am doing my part, but need others to join me!
https://t.co/qsZet12ADo

[Jon Douglas @atranscendedman]

Fudan University, 110 participants. Long COVID patients with cardiovascular symptoms showed CMR signs of myocardial involvement including fibrosis and subtle heart dysfunction months after infection.

https://t.co/OAmhY8BWXu

[Harry Spoelstra @HarrySpoelstra]

Impact of SARS-CoV-2 infection on subclinical myocardial injury in the general population: the Trøndelag Health Study

🚨NORWEGIAN CONFIRMATION BOMBSHELL:
COVID infection leaves lasting, hidden scars on the heart muscle, even years later.

"An elevated cardiac troponin I (cTnI) level indicates the presence of heart damage!"

➡️Study:
- This was a prospective longitudinal cohort study within the Trøndelag Health Study (HUNT), a large population-based survey in Norway,
- Researchers measured high-sensitivity cardiac troponin I (hs-cTnI), a sensitive blood marker of subclinical myocardial (heart muscle) injury, at baseline before the COVID-19 pandemic (2017–2019) in 37,823 general-population adults,
- The same marker was then re-measured after the pandemic wave (2021–2023) in the 19,550 participants who returned for follow-up,
- SARSCoV2 infection status was rigorously determined at follow-up via spike and nucleocapsid IgG antibody tests in blood, combined with self-reported infection history and any available laboratory confirmation of prior infection,
- Infection was defined using nucleocapsid IgG (specific to natural infection, not vaccination) plus spike IgG, self-report, and lab confirmation, precisely to capture true infections regardless of vaccination,

➡️Pre-infection result:
- Higher baseline hs-cTnI was associated with a lower risk of subsequent SARSCoV2 infection,

➡️Post-infection result:
- Confirmed SARSCoV2 infection (any definition) was independently linked to higher post-pandemic hs-cTnI concentrations and a significantly greater probability of an increase in hs-cTnI from pre- to post-pandemic levels, after full adjustment for confounders and baseline troponin,

➡️Vaccination:
- Study reports that 98.9% of participants were vaccinated and explain(in Methods) why they used nucleocapsid IgG (not spike) to avoid vaccine confounding,

➡️Limitations:
- Correctly sited and commented,
- No data on symptoms, asymptomatic/mild/severe cases, or hospitalization, but one may rightfully assume that the majority were mild SarsCoV2 cases,

➡️Conclusion:
“SARSCoV2 infection is associated with increased risk of developing chronic subclinical myocardial injury in the general population, but pre-existing chronic subclinical myocardial injury is not associated with increased risk of contracting SARS-CoV-2.”

‼️To all minimiser still shrugging off SARS-CoV-2 as “just a cold” or “over”: this Norwegian study proves every infection silently scars hearts across the general public with lasting subclinical damage, and with the now-established cumulative cardiac injury from reinfections, your denial is quietly killing many! WAKE-UP!
#AvoidSars2 #AvoidReinfections
https://t.co/7CwdsPsslD

[Amy Proal, PhD @microbeminded2]

Check out these talk summaries from our recent PolyBio Symposium👇

Highlights include that four groups — Tim Henrich (UCSF), Marcus Buggert (Karolinska), Nicolas Huot (Institut Pasteur), and Esen Sefik (Yale) — presented different lines of evidence (human gut biopsies, non-human primate models, humanized mice) all pointing to the same conclusion: SARS-CoV-2 persists in #LongCovid gut tissue and adjacent lymphoid structures, and that persistence drives ongoing immune dysregulation.

[Long Covid Euskal Kolektiboa. @Euskalkolektibo]

Se amplia el plazo hasta el 10 de junio para participar en la encuesta que han desarrollado la Asociación Europea de Salud Pública (EUPHA) y la OCDE para contribuir a elaborar un documento de politicas sanitarias centrado en la #LongCovid ⬇️ ⬇️ ⬇️
https://t.co/ly4jcNA4Bx

[Long Covid Advocacy 💙 @LongCovidAdvoc]

🧵OF KEY CONCERNS

We've now read Alan Levinovitz's WIRED piece on Long Covid.

Our concern isn't that it discusses psychological theories.

Our concern is that it repeatedly conflates criticism of evidence with creating a "climate of fear".

Those are not the same thing. /1

[REiCOP @_REiCOP]

💻 Webinar "P+REPARACIÓN PANDÉMICA: cambios en prevención y control de infecciones"

📺En este momento nuestro panel de expertos discutiendo sobre prevención y control de infecciones

Todavía puedes unirte 👉🏼 https://t.co/rGhnbVlnSH

[REiCOP @_REiCOP]

📣Nuevo webinar!
"P+REPARACIÓN PANDÉMICA: cambios en prevención y control de infecciones"

📆 3 de junio
🕔 17 h
💻 Evento virtual
📝Inscripción gratuita

ℹ️ 👉🏼🔗https://t.co/dgd2paZfx4

@Pilar_RguezLedo @jljcolorado @AIREyVIDA2021 @jrblanco11 #JoanBSoriano @isabelledelez

[Manuel Ruiz @manruipa]

‼️⚠️Please read this until the end.

A widely shared article has presented a deeply misleading view of Long COVID, suggesting once again that cognitive behavioral therapy, exercise, and “mind-body” approaches may be the uncomfortable truth patients refuse to accept.

This needs to be challenged.

Not because the nervous system does not matter.
Not because psychological support cannot help.
But because confusing support with cure, physiology with psychology, and heterogeneity with “it might be in your head” is exactly how medicine has harmed post-infectious patients for decades.

There are articles about Long COVID that look like science journalism, but in reality they repackage, in modern language, a very old idea: if we do not fully understand a disease, maybe the problem is in the patient’s mind.

And that is not science. That is repeating history.

The article begins with a striking sentence:

“There isn’t a single approved pharmaceutical treatment, not even a test to verify the presence of the illness.”

This may sound forceful, but it is a very misleading way of presenting the problem.

The fact that there is still no drug specifically approved for Long COVID, or a single diagnostic test, does not mean that “nothing has been found.” It means that we are dealing with a heterogeneous disease, probably with several biological subgroups, and that medicine has not yet converted those findings into validated clinical tools.

“No single diagnostic biomarker” is not the same as “no biology.”

In just a few years, immunological, vascular, neurological, endocrine, and metabolic abnormalities have been described in subgroups of Long COVID patients: autonomic dysfunction, herpesvirus reactivations such as EBV/HHV-6, alterations in the cortisol axis, autoantibodies against GPCR receptors — including adrenergic and muscarinic receptors — persistent viral antigens, endothelial damage, muscle abnormalities after exertion, mitochondrial dysfunction, persistent inflammation, and differential immune changes.

Is everything settled? No.

Does that mean it is psychological? Also no.

Science does not work like that. Multiple sclerosis did not stop existing before we had MRI. Many autoimmune diseases do not show up in routine blood tests. If a complete blood count, a basic biochemistry panel, or an X-ray comes back “normal, normal, normal,” that does not prove the absence of disease. It only proves that you are looking with inadequate tools.

One of the article’s most serious mistakes is this: it confuses the absence of a simple clinical test with the absence of organic disease.

And that mistake has caused harm for decades.

The article also says:

“Almost $2 billion and half a decade of international effort have yielded little more than hypotheses about micro blood clots and spike proteins and mitochondrial dysfunction.”

No. That is not correct.

A hypothesis is a provisional explanation. But when you compare patients and controls and find significant differences in muscle tissue, metabolism, response to exertion, immune biomarkers, viral antigens, autoantibodies, or vascular dysfunction, you are no longer talking about “little more than hypotheses.” You are talking about lines of biomedical evidence that still need to be organized, replicated, stratified, and translated into treatments.

That is not scientific failure. That is research into a complex and new disease.

🔵Continued in the next post.👇🏻
(1/6)

[SEMG 🩺 #OrgullososDeEstarALaCabecera👩‍⚕️👨‍⚕️ @SEMG_ES]

🦠 ¿Qué sabemos hoy sobre la prevención de la #COVIDpersistente?
¿Qué evidencias científicas respaldan las nuevas estrategias de prevención?
¿Cómo están evolucionando los estándares de calidad y la regulación sanitaria?

Te invitamos a participar en el webinar gratuito "P+REPARACIÓN PANDÉMICA", un encuentro único que reunirá a expertos de referencia nacional e internacional para analizar los avances más recientes en prevención primaria y cuaternaria, COVID persistente y #saludpública.

📅 Miércoles, 3 de junio de 2026
⏰ De 17:00 a 18:50 h
🎟️ Inscripción gratuita
🏢 Formato presencial con aforo limitado hasta completar cupo

🔹 Ponencia Marco: Evidencias científicas, nuevos paradigmas y estándares de calidad
Dr. José Luis Jiménez. Profesor distinguido de la Universidad de Colorado (CIRES) y miembro del Grupo Académico Aireamos.

🔹 Actualización formativa y regulatoria de la prevención primaria y cuaternaria
Dr. Jaime Acevedo. Coordinador del Grupo de Trabajo #Prevención1234 de @_REiCOP @ongdesinflamate

🔹 Panel de debate: Preguntas y respuestas sobre el 1er Consenso traslacional de prevención primaria y cuaternaria de COVID persistente
Con la participación de:
• Dr. José Ramón Blanco (@SEIMC_)
• Dr. Joan B. Soriano (@SeparRespira)
• Dra. Pilar Rodríguez-Ledo (#SEMG)

🔹 Narrativas clínicas y sociales en torno al primer Consenso
Con Isabelle Delgado (@isabelledelez). Paciente experta de @covideuskal.

💡 Una oportunidad para profesionales sanitarios, investigadores, responsables institucionales, pacientes y ciudadanía interesada en conocer las últimas evidencias y enfoques para afrontar los retos de la pandemia y sus consecuencias a largo plazo.

¡Reserva tu plaza y comparte esta invitación con tu red! 👉️ https://t.co/9J7bJXhCdN

#LongCOVID

[S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic]

@tylerblack32 What are you talking about? There is no secret that the brain is heavily involved in these disorders -- read our latest review on the topic. This doesn't mean that you can think or unthink yourself in or out of these disorders.
https://t.co/fEkNHAQvKv

[The Sick Times @thesicktimes]

Why are RECOVER’s first round of #LongCOVID clinical trials failing?

In this episode of Still Here, producer Melanie Marich talks to Betsy Ladyzhets about why NIH trial results have left many patients and advocates disappointed.

🎧 https://t.co/2HPZNM5XOY

[elDiario.es @eldiarioes]

Un ensayo clínico demuestra que una inyección contra el cáncer puede erradicar tumores completos en los pacientes
https://t.co/xYcyZbGjOq

[Tedros Adhanom Ghebreyesus @DrTedros]

#Hantavirus update: the number of cases reported to @WHO remains 13, including three deaths. No new deaths have been reported for almost a month.

We continue to work closely with all relevant governments to monitor the conditions of isolated patients and quarantined passengers and crew members. The overall situation remains stable and with low risk for global population.

[SEMG 🩺 #OrgullososDeEstarALaCabecera👩‍⚕️👨‍⚕️ @SEMG_ES]

🆕️Webinar gratuita: P+REPARACIÓN PANDÉMICA

Este miércoles, 3 de junio, de 17:00 a 18:15 h.

Inscripción gratuita (aforo formato presencial limitado hasta completar cupo): https://t.co/fmyXGnH9oz

[SEMG 🩺 #OrgullososDeEstarALaCabecera👩‍⚕️👨‍⚕️ @SEMG_ES]

▶️ Con este vídeo te animamos a que nos acompañes en 2026 a la cita anual más importante de la Sociedad Española de Médicos Generales y de Familia⤵️

🌿 La 32ª edición de nuestro Congreso Nacional #SEMG26 se celebrará del 11 al 13 de junio en #Oviedo bajo el lema “Raíz, alma, futuro”, que refleja la esencia de la #MedicinaDeFamilia y los valores que inspiran a la #SEMG.

🔗 Visita https://t.co/Mr6upRTFrO para más información sobre el congreso.