Hey Twitter Peeps!
Please consider helping us raise much needed funds for ALS research in honour of my Dad. In only 2 years we’ve raised nearly $20,000 and want to keep going!
Help awesome people like @ChrisSnowCGY and @bsw5020 get the treatments they deserve.
Link below! ⬇️
As the 2025 season comes to a close, we reflect on the groundbreaking research, innovative leadership and inspiring community achievements that defined this year for Carleton University.
Read the full recap of our top stories of 2025: https://t.co/raF3srL7M1
My heart is bursting after visiting Ottawa. @ALSCanada#WalktoEndALS was such a special event today. A giant group hug, & an Ice Bucket Challenge too… everyone came together, united in passion for the cause and a rally cry for a #WorldFreeofALS/MND. Wow. https://t.co/LyJJz94ouw
DeRosa et al. provide guidance on the experimental design and data analysis of aptamers and considerations for improving reproducibility in experiments
https://t.co/8posDi7a7r
Thanks to all our riders & generous supporters, the 2023 ALS Canada #RevolutionRide has raised $280,000 and counting!
Gearing up for change & sparking action together, it’s clear the strength & determination the #ALS community brings is the foundation of the event's success! 💜
Chris has almost no use of his hands and arms but here he is today, mowing the lawn after he got home from work. Where there’s a will …
#SnowyStrong#EndALS
Six months after complications from ALS left him on a ventilator, fighting for his life in the intensive care unit of a Calgary hospital, Chris Snow is hard at work in his new increased role in the Flames’ front office.
Story from @salimvalji: https://t.co/yAuqkmT30g
A historic win for the ALS community. Thank you does not do justice to explain the gratitude felt by patients families. The future looks so much brighter for so many.
BREAKING: The @US_FDA has approved tofersen (@biogen/@ionispharma), now marketed as Qalsody, as the first therapy for SOD-1 #ALS, and the fourth for ALS overall.
https://t.co/RZAlyJZQYR
I'm incredibly proud and inspired by @BSW5020 and @Sabrevaya, their family, and the movement they've brought together to fight ALS. They've taken an incredibly challenging moment and are driving change. And they're not done yet.
To be clear, my husband is alive and skating almost 4 years after a doctor diagnosed with an aggressive form of ALS and gave him 6-12 months to live for one reason: Tofersen.
Please pay attention @US_FDA. Tofersen works and it means everything to my family. #ApproveTofersen
Today, for the first time since last winter, @ChrisSnowCGY put on his skates. He had to get used to a whole new body since the last time he was on the ice — one with 2 almost useless arms — but he did it & told me during this kids v parents game, “This is so fun.” #nevergiveup
Have general questions about ALS or questions about ALS research? You are never more than a week away from someone who wants to help. Office Hours team will be "in office" on Zoom today, and every Friday at 1-2pm Eastern - https://t.co/3jL82QwhNS
Tofersen works. We've known this for years & VALOR provided proof. It is also the MOST important scientific tool we've ever had for all ALS/MND. It represents proof of concept for transformational treatment of everyone with ALS if we have the correct target & hit it early enough.
$CLNN announces results for #amyotrophiclateralsclerosis#ALS patient function (ALSFRS-R) and ALS disease progression from the most recent 12-month data cut of the OLE of the Phase 2 RESCUE ALS trial in people with early #ALS treated with CNM-Au8®. More at https://t.co/mUw2EXpRPE
This award is presented to an early career chemist as a mark of distinction and recognition for excellence in their work in equity, diversity and inclusion initiatives. Congrats to Dr. Erin M. McConnell of @Carleton_U on being the recipient of this award. https://t.co/zJwiwxiy1Q