ABN Clinical Research Fellow @LivUni and Neurology registrar @WaltonCentre. Lead researcher on the @EPSETProject, and co-lead for Capacity Development at ERI-UK
📢Final chance to shape the work of the Institute!
The deadline for our Capacity Building survey has been extended to 11th June. The survey aims to assess the current capacity in epilepsy research and help us gain a better understanding of the ecosystem: https://t.co/2obJHdRy0p
Fantastic insights from Prof Stephanie Schorge on a successful career in epilepsy research: (1) Effective science communication is key, (2) collaborative working leads to the greatest impact, (3) set up a mentor-mentee relationship that supports independence. @ResearchNetERI
Are you an early career researcher working in epilepsy? Join us for the inaugural Emerging Leaders Symposium on 21st May. Limited places remaining - register via the link below ⬇️
The #EpilepsyResearchInstitute has been awarded £1.47 million from the UK Government Medical Research Charities Early Career Researcher Fund. The news follows the Government’s commitment of £45m to support charity-funded early career researchers: https://t.co/kZ76oQx11F
Join us at midday this #PurpleDay for the inaugural Epilepsy Research Institute Insights webinar. The session will explore the ways in which the Institute is helping to build a thriving #epilepsy research ecosystem – register here! https://t.co/j7LpYvjblz
The Epilepsy Research Institute have launched an important survey for researchers and clinical professionals. Please share your views this #PurpleDay on how the Institute can help you as a researcher in the future: https://t.co/w84aT3u5H4
This #PurpleDay we are proud to launch a survey to assess the current capacity in #epilepsy research. To coincide with the launch, today’s inaugural Epilepsy Research Institute Insights webinar will explore how we can build a thriving research ecosystem: https://t.co/rbnvsrahCd
Anne-Mari Kantanen @KantanenAM at #KES2024: "Acute status epilepticus is like the Beatles - emergency medicine & neurology with pre-planned protocols. A small, well-trained band." -- "Superrefractory Status Epilepticus is a philharmonic orchestra - hardcore neurology + epileptology, neurophysiology, neuroradiology & immunology in neuro ICU. A bigger orchestra playing well together" #TheArtOfFinnishEfficiency @UEF_BRU@KuopioEpilepsy @kuo_brain_mind @Pshyvinvointi
Thanks @KuopioEpilepsy@UniEastFinland and @rkalviainen for the invitation - great to champion the voice of people with epilepsy defining 'meaningful outcomes'. There are multiple international consensus exercises and work to do on trial readiness in the precision medicine era.
✨James Mitchell ✨provided insight about 'Meaningful epilepsy outcomes'. Epilepsy research requires world-wide team effort. @EPSETproject goal is to develop a core outcome set for adult epilepsy trials.
#UEFBRU#kuopioepilepsy#UEF#KES2024
Arrived in a snowy Finland for the 2024 @KuopioEpilepsy symposium. Fascinating start with an overview of historical context by @SShorvon. The ‘neurological trait’ concept from 19th century is strikingly similar to our current conceptualisation of epilepsy related ‘co-morbidity’.
Researchers in Liverpool are designing a study to see if Vagus Nerve Stimulation (VNS) can reduce seizures in #epilepsy. They would like to hear from anyone affected by the condition - please complete this survey, which should take roughly 20 minutes. https://t.co/S7O1BO7byc
The @EpilepsyInst welcomes Chancellor @Jeremy_Hunt's commitment of £45m to support charity-funded early career researchers, as outlined in yesterday’s budget. The funding will support research by medical charities into conditions including #epilepsy: https://t.co/qmw2qhXdEL
The Institute’s regular givers are enabling pioneering lab-based and clinical research that will unlock new treatments and understanding for the 1 in 100 people living with epilepsy.
Together, we can radically advance research into epilepsy. Thank you.
https://t.co/Jpvz5krVyo
Thanks @youngepilepsy ! Seeing this new ASM guide with life-size tablet piccies has filled me with joy. Will be so useful as children can make informed choices and recognise what taking. (Before the tablets were shown with an eye-watering range of scales!)
Thanks @EANeurology for the opportunity to present the work of the @ICHOM_ORG Epilepsy Working Group's consensus process.
To read more about implementing standardised outcome assessment for routine epilepsy care visit https://t.co/YLZgGJdddt
.@GeorgeFreemanMP, Minister of State @SciTechgovuk unveiled @EpilepsyRUK’s plan to establish a national research institute later this year, devoted to advancing epilepsy research - the Epilepsy Research Institute UK. #EpilepsyResearchInstitute https://t.co/kvMimkaqrp
.@EpilepsyRUK along with Founding Partners has announced that it will be forming the Epilepsy Research Institute UK later in the year to radically advance the treatment and prevention of epilepsy. #EpilepsyResearchInstitute
https://t.co/kvMimkaqrp