Rare Cancers Europe

A multi-stakeholder initiative dedicated to putting rare cancers firmly on the European policy agenda

[Rare Cancers Europe @_rarecancer]

.@rarecancerseurope’s call to action is there: 14 key points to make #rarecancers a commitment in all policies👉https://t.co/V2rhHWFEe5

[Annals of Oncology @Annals_Oncology]

Osteosarcoma remains a disease with an unmet therapeutic need and imperfect risk stratification biomarkers.
In Annals of Oncology, @samuelabbou and coll. report on ctDNA quantification using lpWGS as a prognostic biomarker in the OS2006 phase 3 trial https://t.co/r4z5K2CDdv

[FabriceAndre @FAndreMD]

Perception of cancer by pts is based on organ-of-origin without mechanistic consideration. @AliceFranzoi et al explain why cancer representations should evolve toward comprehensive portraits that include biology. This is a task of the IHU @PrismCenter https://t.co/5vBnffk6Oi

[Annals of Oncology @Annals_Oncology]

In Annals of Oncology, investigators report on a clinico-genomic analyses of 1817 KRAS-mutated lung 🫁 adenocarcinomas, shedding light on genomic alterations 🧬 associated with outcome, towards a clinico-genomic risk stratification https://t.co/EaEEtVbtV0 #LCSM @DanaFarber

[Rare Cancers Europe @_rarecancer]

@casali_pg speaking at the session “Opening a new chapter in #CancerControl” at the @LGCW2022 with his speech titled” Rare cancers: leaving no one behind", 14.40-14.50 GMT on 14 Nov. 2022. Because #RareCancers are not so rare.

👉 https://t.co/ZUsnz62JK9

[Tom Powles @tompowles1]

The safety results of durvalumab/tremelimumab/enfortumab vedotin #EMUC22 Alexandra Drakaki. Neoadjuvant triples for the VOLGA randomised trial! Ambitious!! The combo appeared safe with no clear ⬆️ skin, liver or neuro tox. pCRs in 6 downstaging in 9. The R3 is enrolling globally

[ESMO - Eur. Oncology @myESMO]

New 📢 #Salivaryglandcancer: ESMO Clinical Practice Guideline for diagnosis, tx & follow-up. Clinical & pathological diagnosis, staging & risk assessmt, & managemt. Tx algorithms given.
https://t.co/gGDW1Rsl5X
@Carlavanherpen @_rarecancer @ERN_EURACAN #rarecancer @ESMO_Open

[ESMO - Eur. Oncology @myESMO]

Risk reduction & screening of cancer in hereditary breast-ovarian cancer syndromes: ESMO Clinical Practice Guideline. Developed by multidisciplinary team incl. patient reps, w/ framework 4 managing clinical setting restricted by limited quality data.
https://t.co/gFzCQVRiPS
#HBOC

[Rare Cancers Europe @_rarecancer]

#RareCancers in all policies: "I know how devastating a rare cancer diagnosis can be as my son, Colin, was diagnosed w/ a #braintumour when he was 24. As a family we felt so isolated, alone & frightened." @KathyOliverIBTA
https://t.co/igxHE7qKms
#RareDiseaseDay @theIBTA

[Rare Cancers Europe @_rarecancer]

#RareCancers in all policies: We are in this together, help us shape & develop an infrastructure to support #rarecancer patients across Europe, so they can have the best QoL possible
➡️https://t.co/6i1xeEiwKh

@cci_europe @EP_BeatCancer @EU_Health @SIOPEurope @eurordis @cancereu

[Rare Cancers Europe @_rarecancer]

@EP_BeatCancer @EU_Health @ERNEuroBloodNet @eurordis @cancereu

[Rare Cancers Europe @_rarecancer]

#RareCancers in all policies: All patients w/ rare cancer should be provided w/ survivor care plan that looks not only at tx but the whole picture of living with a rare cancer @HansScheurer @MyelomaEurope President, on improving #rarecancer pts #QoL
https://t.co/vojNfH9cNl

[Rare Cancers Europe @_rarecancer]

Second part of today's RCE-@myESMO-@ESOncology Training for #PatientAdvocates brought together physicians, nurses and patients exploring the opportunities and challenges of #telepathology and #telemedicine for #rarecancer patients.
https://t.co/lWxFqzFKum

[Rare Cancers Europe @_rarecancer]

At today's session, Giancarlo Pruneri from @LaStatale on #telepathology and #telemedicine, and how networking is a solution for #raretumours and #biomarkers
👉https://t.co/lWxFqzXllU
#rarecancer @ESOncology @myESMO

[Rare Cancers Europe @_rarecancer]

In the last part of today's session, Sergio Sandrucci, Sandrine Marreaud & Federica Castiglione shared their perspectives on the implications of #COVID19 on clinical research & healthcare professionals, & how #rarecancer pts communities can be supported
👉https://t.co/lWxFqzFKum

[Rare Cancers Europe @_rarecancer]

Next up from today's session, Radu Ianovici presents main recommendations from @cancereu letter on #COVID19 & #cancer. The letter calls on policymakers to ensure pts get diagnosis & tx in a safe manner, & is signed by 320 organisations.
👉https://t.co/lWxFqzGijU
#covid19ncancer

[Rare Cancers Europe @_rarecancer]

From today's session on #rarecancers in the #covid19 era, @KathyOliverIBTA discusses @theIBTA patient survey on #covid19vaccination & highlights that the continuity and quality of care for #rarecancerpatients should be protected
https://t.co/lWxFqzGijU

[Rare Cancers Europe @_rarecancer]

Great seeing all participants at today's session with some excellent discussions on topics around the European #rarecancer policy landscape, & looking foward to tomorrow's session on #rarecancers in the new #COVID-19 era.
👉https://t.co/lWxFqzGijU
@ESOncology @myESMO @casali_pg

[Rare Cancers Europe @_rarecancer]

Great seeing all participants at today's session with some excellent discussions on topics around the European #rarecancer policy landscape, & looking foward to tomorrow's session on #rarecancers in the new #COVID-19 era.
👉https://t.co/lWxFqzGijU
@ESOncology @myESMO @casali_pg

[Rare Cancers Europe @_rarecancer]

From today's session, Ariane Weinman on rare cancers in the #EUCancerPlan, & new section on #rarecancers in the @EP_BeatCancer report. @BettinaRyll on how rare cancer pts will benefit from Horizon Europe Mission on Cancer, & vital role of #cancerresearch
https://t.co/Degrtj2xWH

[Rare Cancers Europe @_rarecancer]

Today's session will be exploring the #EUCancerPlan & #EUCancerMission, as well as the Romanian national plan for #cancer, collaboration w/ the #rarecancer national network in Italy, pts involvement in HTA in Sweden & more…
Register ➡️ https://t.co/Degrtj2079
@ESOncology @myESMO