😲 In case you missed it! 😲
#MEAwarenessHour
🇲🇽 In the first of a three-part series, people describe the challenges of living with #MEcfs or #fibromialgia in Mexico.
🧐We try to understand why the latest science is not informing proper medical treatment.https://t.co/CtvbAdpnnX
🫤 We all know the stigma of #MEcfs all too well.
But it's not the only stigmatized neurological illness triggered by infection.
😯 Hear a story about a boy suffering from PANS (Pediatric Acute-onset Neurological Syndrome):
#pans#pandas#panspandashour
https://t.co/pbYtVIDoG6
🎆Happy New Year (early)
Lastly, Quote 3 from #MEcfs expert Dr. Komaroff:
"Brain MRI has shown elevated levels of lactic acid consistent with oxidative stress... [Oxidative stress] may be a marker for […] inflammation in response to infection or injury."https://t.co/9X9xKXqu39
🎆 Happy New Year (early) 🎆
We end this year with quotes from #MEcfs expert Dr. Komaroff:
Quote 2
"If [neuroinflammation] were confirmed by multiple other investigators it would, for me, say there is a low-grade, chronic encephalitis in these patients."
https://t.co/9X9xKX8TbB
🎆 Happy New Year (early) ����
We end this year with a few quotes from #MEcfs expert Dr. Komaroff:
Quote 1
"I think most people in this field think that [...] the symptoms are caused primarily by brain abnormalities, that include [...] neuroinflammation..."https://t.co/9X9xKXqu39
🤔 Confused about #autoimmunity in #MEcfs? You're not alone!
🗣️ We spoke with @C_Scheibenbogen to try to understand where the science currently stands...
https://t.co/HgUMsMED2L
Some scientific discoveries, unfortunately, are only possible by examining dead patients.
There have been very few public autopsy reports on #MEcfs patients, but these few reports may reveal significant findings:
https://t.co/vql4Eox0am
🇲🇽 En México, los pacientes con #COVIDpersistente están espantados por la nueva realidad a la que se enfrentan.
🤔 Hablamos con @CovidComunidad para saber más.
https://t.co/XNFdjUQLPg
🇲🇽 In Mexico, patients with #LongCOVID are shocked by the new reality they face.
🤔 We spoke with @CovidComunidad to learn more.
https://t.co/XAEHTxvVRY
#MEAwarenessHour
🇲🇽 In the first of a three-part series, people describe the challenges of living with #MEcfs or #fibromialgia in Mexico.
🤔 The science is discussed, & we try to understand why the latest science is not informing proper medical treatment.https://t.co/CtvbAdpnnX
🇲🇽 En la segunda de una serie de tres partes, se describen los retos de buscar derechos fundamentales para los pacientes con enfermedades neuroinmunes en México.
🤔En concreto, analizamos el profundo reto que supone ser paciente y defensor al mismo tiempo.https://t.co/wtBEnZRxIB
🇲🇽 In the last of a three-part series, people with neuroimmune diseases in Mexico speak up about the wide-ranging consequences of the disease on their life.
🤔 Common themes include exercise, gender bias, and domestic abuse.
https://t.co/PDPgofvO6r