Access Campaign

Campaigning for better access to better treatments for all with civil society, patients, and health system partners. Content curated by @Syenza_Corp

[Access Campaign @access_camp]

Curious about the Access Campaign?

[National Kidney Federation @NKF_UK]

To request your free copies, please contact the NKF Helpline, they're available Monday to Thursday 08:30 am - 5:00 pm Friday 8.30 am – 12.30 pm

📞0800 169 09 36
📨[email protected]

Find more Helpline resources here: https://t.co/LgaOHAjsaD

We’re here for you!

[Myeloma Patients Europe @MyelomaEurope]

Discover comprehensive information about #CART therapy for #myeloma on our MPE website.
🔍 Learn about:
CAR-T therapy basics
Current research and updates
How CAR-T can impact your treatment journey
🔗Visit the page here: https://t.co/SOimcI4sY2

[Lymphoma Coalition @knowyournodes]

🔦 Spotlight on Health Literacy 🔦

Health literacy is crucial for empowering patients to take control of their health. Clear communication and accessible information help patients make informed decisions, leading to better health outcomes.

However, only 18% of patients reported feeling very well informed about their healthcare processes, according to the Global Health Literacy Report Card. This highlights the need for health-literate systems that prioritise patient understanding and engagement.

✅ Check out the Global Health Literacy Report Card that Lymphoma Coalition published this year to learn more about these insights: https://t.co/QMyunP7Tsr

#HealthLiteracy #PatientAdvocacy #LymphomaCoalition #HealthLiteracyMonth #lymsm

[National Kidney Federation @NKF_UK]

Today is #WorldMentalHealthDay2024 - We know first hand that living with kidney failure can be tough, and it’s not uncommon to face depression or stress along the way. Our helpline team and resources are here to help you manage both your mental and physical health. (1/2)

[The European Public Health Alliance (EPHA) @EPHA_EU]

📢 EPHA, with @IOGTNTOMOVEMENT, opposes proposed changes to #Sweden's Alcohol Act allowing farm gate sales. This threatens #AlcoholControl and public health progress. We urge @EU_Commission to reject these amendments!

🔗 https://t.co/LUpT8RkHkd

#EUHealthPolicy

[National Organization for Rare Disorders (NORD) @RareDiseases]

Today is #WorldMentalHealthDay!

If you're a #RareDisease patient or caregiver, you know the effects it can have on your #MentalHealth. Now learn the solutions by watching our recent webinar: https://t.co/l1DMZ5nxSQ

[Psoriasis UK @PsoriasisUK]

"Plans being cancelled became a relief and my winter wardrobe was a firm favourite, even during the summer months! I’m very much alive, but having a chronic disease has cost me years of my life in multiple ways."

Read Lauren's story: https://t.co/nxndLOo2nt

[Patient Safety Learning @ptsafetylearn]

Added to the hub today, a blog by David Fassam, Senior Safety Investigator at @theHSSIB, looking at one of the methods used in patient safety investigations: the Functional Resonance Analysis Method (FRAM) https://t.co/osMZ8WEaZD @psmn999

[SADAG @TheSADAG]

Our SADAG team is out in full force today, honouring World Mental Health Day with heart and enthusiasm! We’re so proud to connect with amazing individuals at Helen Joseph Hospital, Edenvale Hospital, and the Rand Water Central Depot Wellness Day.

[Kidney Research UK @Kidney_Research]

Exciting news! Purespring Therapeutics announces £80m fund to transform the treatment of kidney diseases. This large investment will aid the team in expanding their research into IgA nephropathy (IgAN) and other disease areas, offering the potential to halt, reverse and even cure both rare and common kidney diseases.

Congratulations to our trustee and Purespring Therapeutics co-founder, Professor Moin Saleem and fellow researchers Professor Gavin Welsh and Dr Wen Ding.

https://t.co/NEMaw8FrLT

What would this new funding mean to you?

[Global Psoriasis Atlas @PsoriasisAtlas]

TW: suicide
On World Mental Health Day, we are reflecting on #mentalhealth and suicidal behaviour in people with #psoriasis
Dr Parisi’s study found that people with psoriasis receive treatment for mental health more often than people without.
Read more: https://t.co/ZuHkLx9gCH

[National Organization for Rare Disorders (NORD) @RareDiseases]

The global non-profit @CMTCOVM, for people with vascular malformations and their families, is organizing a multi-day members' conference again in the #Netherlands from October 25-27. This is a ‘hybrid’ conference, meaning members can participate online or in person. Register here: https://t.co/awBKvWxBzN

#VascularMalformation #VascularMalformations

[SADAG @TheSADAG]

In case you missed it, listen in on the link below. @jacarandafm @ElanaAfrikahttps://www.jacarandafm.com/shows/workzone-elana-afrika-bredenkamp/press-panic-button/
#MentalHealthMatters #WorldMentalHealthDay #GoGreenForMentalHealth

[EFA Patients @EFA_Patients]

Great @SynAir_G workshop on #IndoorAirQuality in Athens!

Explored #IAQ from EU and national perspectives, highlighting the importance of clean indoor air for #allergy #asthma and #COPD patients.

☁️ℹ️Learn more about EFA's work in the SynAir-G consortium: https://t.co/HXMsSqlb0z

[Crohn's & Colitis Foundation @CrohnsColitisFn]

Do you represent a pediatric IBD Center of Excellence? Our 2024 APP IBD Preceptorship Program is accepting applications for new host sites looking to mentor the next generation of clinical leaders in Crohn’s disease and ulcerative colitis. Apply here: https://t.co/T9oHsb5Jbm

[ISO @isostandards]

🌐 This #WorldStandardsDay, let’s harness AI for good! International Standards ensure responsible AI use, fostering innovation and sustainable infrastructure. Join us! #SDG9

➡️Register: https://t.co/BtvPOgWgbF

@IECStandards @ITU

[Hospice Africa Ug @HospiceAfricaUg]

Today is World Mental health Day. Mental health and palliative care are closely connected. We take a holistic approach to palliative care that aims to improve the quality of life of our patients with serious illnesses.
#WorldMentalHealthDay #palliativecare #psychologicalsupport

[Patient Safety Learning @ptsafetylearn]

Today is #WorldMentalHealthDay.

On the hub we've pulled together a set of resources, blogs & reports focused on improving #patientsafety across different aspects of mental health services and also supporting staff with their own mental health & wellbeing https://t.co/0aELl9zABa

[AF Association @AtrialFibUK]

AF Association Patients Day at @heartrhythmcong is underway! Today we are joined by patients, healthcare professionals, and experts for discussions, educational sessions, and support on managing Atrial Fibrillation (AF). #PatientsDay #HRC2024

[Hospice Africa Ug @HospiceAfricaUg]

Join us this Saturday, Oct 12th, on World Hospice & Palliative Care Day, at our site in Makindye for a very special event “Voices of Hospice”. Hear from one of our patients how palliative care has transformed her life. Starts at 2 pm.
#WHPCD2024