Laurie Edwards

Writer; Teaching Prof. at Northeastern. Books: LIFE DISRUPTED (2008); IN THE KINGDOM OF THE SICK (2013)

[Laurie Edwards @achronicdose]

So thrilled to see this book out in the world!

[Jennifer Crystal @writerjcrystal]

It's book publication day! Order your copy of ONE TICK STOPPED THE CLOCK, already a #1 new release in #chronicfatigue and #fibromyalgia https://t.co/jbYXAI6WGb #lyme #lymedisease #newbook #memoir

[Laurie Edwards @achronicdose]

Scientists found a major clue why 4 of 5 autoimmune patients are women https://t.co/2WA4CS8m3O

[Laurie Edwards @achronicdose]

Cystic fibrosis treatment brings joy, complications to patients https://t.co/h2ol7YGa9J via @BostonGlobe

[Laurie Edwards @achronicdose]

A condition called POTS rose after covid, but patients can’t find care https://t.co/8rDMTXDqoe

[danielalamasmd @danielalamasmd]

Imagine if your life expectancy increased by decades within your own lifespan. That’s the story for cystic fibrosis right now. My view into this fascinating moment in time for CF. https://t.co/lz2Gzos8vu

[carolyn johnson @Carolynyjohnson]

I wrote about high-priced drugs for years. Then my toddler needed one. It was an *excruciating* lesson in personal futility. But a typical struggle in American health care. https://t.co/AeSOrDUSi5

[Cloe Axelson @cloeax]

I have alll the feels about this list. No one good way to sum up 10 years of @cogwbur's work, but the 15 pieces on this list hold up.

We're onto the next decade at @WBUR. Here's hoping the best is yet to come for our little corner of the internet. https://t.co/kcqaQbrrgu

[Jacqueline N. Gunning @jacqgunning]

We launched a study to learn more about grief in invisible, physical #chronicillness. If your #invisibleillness onset/was diagnosed between the ages of 18-30 + you want to share your story, please see survey below 🖤 #NEISvoid #DisabilityTwitter #spoonie

https://t.co/gGpupqJ5a1

[Cloe Axelson @cloeax]

I still can't believe @cogwbur is my job. But I'm 5 yrs into this gig -- and we're celebrating our 10th bday!

This thing wouldn't exist without @francesmargaret. Or be what it is today w/out @KathleenBurge and @sarajshukla.

There's so much more to come. https://t.co/IOpOD75qGo

[Ed Yong is not here @edyong209]

🧵I want to share some thoughts about reporting on long COVID and other complex chronic illnesses. (e.g. below)
This is a thread about the ethos behind these pieces, and how I’ve approached interviewing, writing, and the rest of it. 1/
https://t.co/sfyfxNOBVm

[Laurie Edwards @achronicdose]

Patients with myalgic encephalomyelitis, or chronic fatigue syndrome (ME/CFS), their caregivers, and the few doctors who treat them have spent years fighting for medical legitimacy. The coronavirus pandemic has now forced the issue, writes @edyong209: https://t.co/3izLW5tKbz

[Ed Yong is not here @edyong209]

Many docs also use inappropriate tests—like MoCA, which was only validated for elderly people with dementia—that even people with severe brain fog can ace. Hence: more dismissal. Bad testing is a comorbidity of long COVID. 11/ https://t.co/Gq8iylgfBr

[Priyanka Dayal McCluskey @Priyanka_Dayal]

My first feature for @WBUR:

To understand the mystery of long COVID, researchers are looking to an older disease: ME/CFS

https://t.co/N0BmyD4zrC

[Laurie Edwards @achronicdose]

There are so many connections between chronic illness and Long Covid, so I am especially grateful for both my books to be included on this current list, especially alongside such wonderful authors, whose work is so important to these conversations: https://t.co/JSJFJeczNV

[Laurie Edwards @achronicdose]

10 inspiring self-help books about illness and disability https://t.co/JSJFJeczNV via @usatoday

[Andrea Junker @Strandjunker]

I’ve said it once, and I’ll say it a thousand times: The treatment for an ectopic pregnancy, a septic uterus, or a miscarriage that your body won’t release is abortion. If you can’t get those abortions, you die. You. Die.

[Cognoscenti @cogwbur]

"It is one part of a larger tension high-risk patients have seen amplified during COVID: the idea that some lives are simply more dispensable than others."

https://t.co/neDDrZgTz9

[Massachusetts Medical Society (MMS) @MassMedical]

"(The pandemic) isn’t over simply because we want it to be, and if we really want the situation to improve, the needs of the #immunocompromised and high-risk patients cannot be an afterthought," @achronicdose writes for @cogwbur. https://t.co/nNFBGOsqlM

[Laurie Edwards @achronicdose]

What the airline mask mandate reveals about life for high-risk populations @cogwbur @francesmargaret @cloeax https://t.co/Aj7ZepHrDc

[Frannie Carr Toth @francesmargaret]

"[The pandemic] isn’t over simply because we want it to be," writes Laurie Edwards (@achronicdose), "and if we really want the situation to improve, the needs of the immunocompromised and high-risk patients cannot be an afterthought."

https://t.co/y9kuAUuEf0