Adlina Rahim

Project Lead @WeCareJourney ☀️ MBBChBAO (Ireland) 🎓 Global health, healthcare design & equity 🎯

[Adlina Rahim @adlina_rahim]

20 years later, this lil girl made her dreams come true✨
Alhamdulillah officially graduated with a Bachelors in Medicine, Surgery & Obstetrics from the National University of Ireland, Galway.

This is for each beautiful soul that made me the person I am today, thank you 😊

[Adlina Rahim @adlina_rahim]

Happy that years of effort finally came to fruition. Well done NPRA & @KKMPutrajaya

[CodeBlue @codebluenews]

Malaysia Approves First Drug To Treat SMA

The NPRA has authorised Roche’s Evrysdi for treatment of spinal muscular atrophy (SMA) in adults and children aged two months and older.

https://t.co/67lKrnicdN

[WeCareJourney @WeCareJourney]

One small step for man, one giant leap for PWSMA nationwide!

Finally after numerous roundtables & lobbying, what used to sound impossible is made possible today. Thank you @KKMPutrajaya

[add rahim 🇲🇾 @add_rahim]

Just realized I collected over €100 worth of credit during uni life to be spent on digital products in App Store or Google Play 📚🍏📲

What’s your best recommendation for books/apps? Share below! Person with the best idea gets a gift card from me 😎

[Adlina Rahim @adlina_rahim]

Finally this 2 months project comes to a close, I’m emotional 😭 Had to interview so many families about standards of care & make it a whole study. Even more reason to believe there’s so much potential for Msian healthcare. 🙌

[Adlina Rahim @adlina_rahim]

@heyeaslo Hi I’m working with a Patient Advocacy Group/NGO for kids with disabilities & would really appreciate tools to organize our work flow. Thanks so much for putting this up! 👋

[Adlina Rahim @adlina_rahim]

What is the value of adding diversity, equity & inclusivity in research?

Building trust & patient engagement - patients are often left out from the conversation, reduced to mere data when they are the ones who provided consent and will subsequently be the drivers of change.

[Adlina Rahim @adlina_rahim]

Live tweeting from #GGHealthEquity @GlobalGenes because it’s too valuable to not share.

“The (health equity) issues we face now are part of a long-standing systemic problem, and unless we actually improve the health system, they will continue to happen.” - Eric Sid

[Global Genes @GlobalGenes]

Did you know it could take up to 7 years for a person with a rare disease to get diagnosed? #GGHealthEquity #CareAboutRare #RareDisease

[Laura Vinci O'Neill @lauraevinci]

How do you first identify #underserved patients? “When the medical professionals are talking ABOUT and AROUND the patient, but not TO and WITH the patient” - Eric Sid @ncats_nih_gov #GGHealthEquity @GlobalGenes

[Adlina Rahim @adlina_rahim]

At the moment the future of medicine seems bleak in any country (except maybe Australia 😂) and I would be prone to believe the grass in greener where it’s watered.

It won’t be easy adjusting to different systems but I’m gonna build where I’m destined.

[Adlina Rahim @adlina_rahim]

Congrats YB @Khairykj in bringing Malaysia onto the centre stage of global health leadership.

Looking forward to better collaboration in achieving health equality (especially for the underrepresented rare disease community) not only regionally, but also back home 🇲🇾✊

[CodeBlue @codebluenews]

Khairy Becomes Vice President Of The 75th World Health Assembly

Khairy will represent 37 countries in the Western Pacific region, including Australia, China, Japan, South Korea, and New Zealand in the 75th World Health Assembly.

https://t.co/cCHlQ1HA20

[WeCareJourney @WeCareJourney]

Kesihatan mental individu dengan Spinal Muscular Atrophy (SMA) dan penjaganya boleh terjejas teruk dengan kehadiran masalah ini.

#SMA #WorldMentalHealthDay

[WeCareJourney @WeCareJourney]

Kesihatan mental individu dengan Spinal Muscular Atrophy (SMA) dan penjaganya boleh terjejas teruk dengan kehadiran masalah ini.

Kesan Langsung - Resah Gelisah/ Anxiety

#SMA #WorldMentalHealthDay

[WeCareJourney @WeCareJourney]

Kesihatan mental individu dengan Spinal Muscular Atrophy (SMA) dan penjaganya boleh terjejas teruk dengan kehadiran masalah ini.

Kesan Langsung - Kemurungan/ Depression

#SMA #WorldMentalHealthDay

[WeCareJourney @WeCareJourney]

Kesihatan mental individu dengan Spinal Muscular Atrophy (SMA) dan penjaganya boleh terjejas teruk dengan kehadiran masalah ini.

Kesan Langsung - Tekanan

#SMA #WorldMentalHealthDay

[WeCareJourney @WeCareJourney]

Kesihatan mental individu dengan Spinal Muscular Atrophy (SMA) dan penjaganya boleh terjejas teruk dengan kehadiran masalah ini.

Kesan Langsung - Sangat Hiba (bagi penjaga)/ Grief (for caregivers)

#SMA #WorldMentalHealthDay

[WeCareJourney @WeCareJourney]

Kesihatan mental individu dengan Spinal Muscular Atrophy (SMA) dan penjaganya boleh terjejas teruk dengan kehadiran masalah ini.

Kesan Tidak Langsung - Pada hubungan ibu bapa/ On the parents' relationship

#SMA #WorldMentalHealthDay

[WeCareJourney @WeCareJourney]

Kesihatan mental individu dengan Spinal Muscular Atrophy (SMA) dan penjaganya boleh terjejas teruk dengan kehadiran masalah ini.

Kesan Tidak Langsung - Pada adik beradik/ On siblings

#SMA #WorldMentalHealthDay

[WeCareJourney @WeCareJourney]

Kesihatan mental individu dengan Spinal Muscular Atrophy (SMA) dan penjaganya boleh terjejas teruk dengan kehadiran masalah ini.

Kesan Tidak Langsung - Pada hubungan sosial dan keluarga/ On social and family relationships

#SMA #WorldMentalHealthDay

[WeCareJourney @WeCareJourney]

"Need for support system at every stage of SMA...mental torment, anger, stress, depression, anxiety..at each stage of the disease.. dealing with.. shock and grief.. mental burdens of caring...and grief when child passes away."
https://t.co/RiANyozIjg

[Pooja Varman, MD, MS @pooja_varman]

why is it “you’re too nice to be a surgeon” and not “you’re so nice, be a surgeon!”? don’t surgical patients deserve nice doctors, too?